hi all, I feel, wiped out. the fight to advocate for a condition like fibro is exhausting in itself. Happy news, finally got an appointment with a rhematologist (spelt wrong im sure) and a doctors note that states i can not work full time hours due to medical disability. Hoorah, still, people around me dont help, or really seem to believe my pain, condition or just how much it effects my life. I feel i have no one to turn to who really understands. I live with my completely self absorbed teenager who would have me cook him dinner on my death bed ... parents who just think Im lazy, a field placement I just had to drop at school because i requested dropping the hours to half days, the time they told me I would be doing my work anyway, school assingments for programming that is... and they wouldnt have it, again, people look at my me... im a vibrant red red red hair young looking dress punky funky kinda girl and think, Im trying to take the easy way out, Im lazy.... I ... could... and have... cry.... any advice anyone.. I know Im not the only one with this. How do you make people around you, educate them to the need to keep life stress free... to limit my adctivities to avoid flare ups, or especially when you know youve gone to far, and evertying hurts, but according to this work slaved world, you need to work more and just such it up... how to I stop needing people tto understand would probably be a better question. but when I need support... I mean I cant even turn to my parents, when they hear I had to drop field placement cause of the limitations of my abilities, they will think like always, its me, im lazy, looser whatever... I feel so alone in this. I often wish I had a terminal disease, like cancer, then people would be like, oh sure whatever you need... can i help you... your doing to much... i know that sounds aweful, but its where I am today... I am sensory overloaded... i am mentally maxed out trying to advocate for myself, and still pursue my dreams, to finish school, something i never did. exhausted, maybe i should find a support group or something... this board certainly helps... It just hurts when the people around you... if I told my mom I had cancer, or MS she'd be all over me, now... its like.. not so much... but i know that those are other peoples standards they place on themselves and then on to everyone else, which is their problem but it hurts me.. like at field placement... they wouldnt let me cut the course in half... i am an early childhood educator in training... they work with children with disabilities.. I am one of those children grown up, and they just didnt help me... thats pretty hypocritcal i think. i should stop, Im sad, Im tired, I wish I didnt care. signed blah in Ottawa.