The Marshall Protocol??

Discussion in 'Fibromyalgia Main Forum' started by malony33, Nov 22, 2006.

  1. malony33

    malony33 New Member

    Has anyone out there heard of this protocol, or perhaps undergone the treatment it discusses?

    I think there's a Marshall Protocol clinical trial, also. I'm curious and excited...SOOOO tired of, well, BEING TIRED! And then there's the FMS grind...you all know already!

    Happy Thanksgiving, everyone! Hope you have a warm and happy family day.

    Barbara
  2. victoria

    victoria New Member

    I'm really tired right now as I started making things for tomorrow...

    but yes, it has helped me, and others ... if you do a 'search' in the box up above with 'marshall protocol' you'll see a lot of posts about it pro and con over the past 2 years. Also, if you go to the Marshall Protocol site itself, you will also see information there...

    all the best,
    Victoria
  3. malony33

    malony33 New Member

    Thanks so much for the info!

    Did your MD work with you, or are you in a clinical trial?
    We're going away for a week, but I wrote a quick note to my MD - a WONDERFUL CFS/FMS doc who reseaches, teaches, publishes - to ask him to consider if it's right for me.

    Someday, there WILL BE diagnostic tests and definitive treatments - we gotta believe!

    Take care,
    Barbara
  4. jarjar

    jarjar New Member

    I am doing great on the protocol. Never have felt this good in ages. Still have a way to go but I am loving the health that I currently have and realize it will only get better.

    One of my docs have 200-250 patients on the protocol with cfs/fm diagnosis. She recovered on the protocol and is great success with her patients.

    The best tip that I learned from her was to add glyconutrients starting out with just a tiny bit and work your way up.

    It speeds up the whole healing process.
  5. victoria

    victoria New Member

    I found a doctor, he's very well qualified, works at one of Emory University's clinics and open to new things happily... he has more than a few doing it the last I asked.

    If you go to the MP site, they do have a doctor referral site.

    And again, to reiterate, I have yet to see any protocol that works for every one... we seems to be split into subpopulations when it comes down to finding out 'what works'...

    For an example, I'm guessing you could also find a site where people talk about the bad side effects of SSRIs, I could be one in that group, as it caused a very bad side effect it me that could have been devastating. . . caused me to think thoughts I've never thought before or since, after only 2 doses.

    All the best,
    Victoria


    [This Message was Edited on 11/24/2006]
  6. jarjar

    jarjar New Member

    Whats keeping us all ill is Cell Wall defecient bacteria.
    Doctor Sujay who use to post here frequently when she was ill says she realizes that the about all of her 200+ cfs/fm patients would test positive for lyme if she sent their bloodwork to one of the best lyme labs. Most all are responding great to the MP.

    So be it mycoplasma or lyme or whatever when the hidden bacteria starts dying off you start feeling better.

    The MP is being reviewed currently by the FDA for a CFS treatment.

    Go read the success stories at marshallprotocol.com. Its not a quick fix but nice steady improvement. You will see many cfs/fm postings.
  7. munch1958

    munch1958 Member

    My doctor does not let any of his patients try the MP because of the issues with vitamin D and sunlight. I have pulmonary sarcoidosis, FM and CF. I feel much better on sunny days so I could not imagine blocking out all sunlight in my home and covering up with zinc oxide oinment as required by the MP.

    In order for me to commit to that protocol I'd have to give away all of my houseplants. If there is enough light to grow a plant then the windows need to be covered. Wearing special sunglasses 24/7 is too crazy for me. I did try the Road Back long term ABX protocol instead and started taking 2,000 IU of vitamin D per my doctor's instructions. This is a complete opposite of the MP.
  8. jarjar

    jarjar New Member

    The marshall protocol has evolved over time. It is so new they are learning as they go along.

    More emphasis is being placed on avoiding foods with D then light.

    I wear sunglasses outside but just keep the home dim. Also keep t.v. and computer dim. But no glasses in the house.

    Also wear zinc oxide sunscreen which is invisible thanks to new micro products. Also wear a hat.

    It is all worth it to me as I have improved so much.
  9. dannybex

    dannybex Member

    ...ONE person who has "recovered", and by that I mean has STOPPED taking the drugs suggested by the MP?

    The last I read, even Marshall and his fellow patients with sarcoidosis have yet to stop taking the drugs -- so how can anyone, especially Dr. Marshall use the word "cure" in his discussion of the protocol?

    It should be noted that nearly all negative stories related to the MP have been removed from the official Marshall Protocol site. Over the past few years even several people who worked as volunteers with the site have quit or been forced to quit dare they question any aspect of the MP.

    I know at least four people in my area who started the MP and had to quit within six months or less. One woman nearly developed kidney failure. Of course I don't know if this was due to the MP, but she did finally recover after several months off the MP-suggested drugs. Her doctor has gradually begun to take more and more of her patients off the MP because of these so-called "Herxheimer" reactions.

    I mean no disrespect towards anyone who may be on the protocol, nor towards Marshall himself -- I'm sincerely glad that JarJar is improving -- but in the tradition of free speech, it should be noted as Skeeix mentioned above, that there are many, including volunteers who worked w/Marshall, who did not fare well at all -- some with very serious heart issues and drops in blood pressure.

    And even Dr. Paul Cheney has expressed concern regarding the MP.

    I'm blabbing on and on, forgive me. My original question still stands? Has anyone stopped taking the MP drugs and remained recovered?

    Sincerely,

    Dan

  10. Misdiagnosed

    Misdiagnosed New Member

    Munch

    At the root of Dr Marshall's discovery is the role of Vit D in people with Th1 diseases - without trying to explain the science (the MP website is the place for that), it acts as a secosteroid dampening down symptoms, which is why some people feel better in sunlight and supplementing with D. However behind the scenes the intracellular bacteria continue to multiply and do their damage unabated.

    In very simple terms, the foundation medication on the MP lowers the Vit D and restores the body's hormonal imbalances. You often feel worse at first because it removes the palliative effects of the excess D and exposes the real symptoms of your condition and allows your immune system to detect and kill the bacteria. The abx stop the bacteria replicating and are used to control the severity of the immune reaction as the body rids itself of the intracellular bacteria.

    So contrary to popular medical thinking, supplementing with Vit D will exacerbate the underlying condition while offering what seems like improvements. Dr Marshall has proved this. Yes avoiding sunlight and ingesting Vit D is difficult but what price is your health. Light sensitivity is a very individual thing and many people still work while on the MP. The easist thing to do is test your Vit D metabolites as the relationship between these 2 will tell you if you have Th1 inflammation that can be successfully treated using the MP.

    With chronic illnesses such as CFS/Lyme/Lupus/Sarcoidosis/RA etc doctors at best treat the symptoms only with immunosuppressive drugs such as prednisolone, while the MP treats the source of the problem. Doctors, in good faith, think they are doing the right thing supplementing with Vit D, but they are sill really in the dark as to how to cure them so for patients with these illnesses, it pays to do your own research and take charge of your own health.

    Regards
    Gill
  11. dannybex

    dannybex Member

    You said:

    "So contrary to popular medical thinking, supplementing with Vit D will exacerbate the underlying condition while offering what seems like improvements. Dr Marshall has proved this."

    Perhaps with sarcoidosis, yes. But his theory is just that...theory...when it comes to the other diseases like CFIDS, fibro, etc., that he claims are "TH1" diseases.

    Dr. John Cannell M.D. of the Vitamin D Council, may strongly disagree with some of the statements you've made. Vitamin D is in fact a proven treatment or part of a treatment for many conditions, including heart disease, cancer, tuberculosis, and multiple sclerosis. There are many scientific studies in PEER-REVIEWED medical journals to back this up.

    One might say the same thing about the MP -- that it is only palliative. Please keep in mind I said "might". If it is truly curative, then I repeat my question -- do you or anyone else know of anyone who is off the antibiotics, etc., and is fully recovered or cured?

    Respectfully,

    Dan

  12. jarjar

    jarjar New Member

    Yes I do know of a few. I talked with a girl last month that is feeling over the top great but is extending her MP abx just to be on the safe side. But plans on stopping real soon.

    She said she almost doesn't even remember the bed ridden sick person she use to be.

    You have to take into account that the MP is new to cfs/fm. Most people need to set aside 2 years for a major recovery. The MP was only introduced to the cfs/fm/lyme community in 2004.

    It takes awhile to kill off all the bacteria that has made you so ill.

    But yes I do know of those that have stopped taking the MP
    but best of my memory Dr. Marshall suggest for those that have recovered to do a "house cleaning" with a short period of abx once a year so that you don't ever worry about it coming back. Its been awhile since I read about that post.

    Once again like all treatments eveything doesn't work perfect for everybody. I just so happy it is working for me.

    I will mention again that Dr. Teitlebaum told me verbally that he thinks the science behind it is brillant and is using it with success in his practice.

    If anyone decides to to go the MP route feel free to contact me as Sujay, who has 200plus patients on the protocol has some tips to include with the MP that will enhance and speed up your recovery time.

    Danny i am aware of all the behind the scene things that went on with the Mp board. That is why you very seldom see Sujays patients post on it. They get all the information they need from her.

    Best of health to all

    J
    [This Message was Edited on 12/06/2006]
    [This Message was Edited on 12/06/2006]
  13. victoria

    victoria New Member

    it is felt that you probably never get rid of them...

    and so individuals may need to take yearly or occasional rounds of abx or antivirals to keep them at bay/low enough for the body to handle...

    and is what my son and a friend, both dx'd with chronic Lyme (according to CDC standards even), have been told.

    best,
    Victoria

  14. Mikie

    Mikie Moderator

    Many of the pathoens we suffer chronically never really go away. Lyme and mycoplasma patients can have cysts deep inside the body's tissues and they can reactivate. Herpes Family Viruses never go away; they just go latent in the body.

    I always have ABX and an AV on hand for whenever I get sick or rundown and feel my infections trying to reactivate.

    Transfer factors have to be pulsed as the immunity from them isn't permanent.

    Regardless of which treatment protocol one chooses, ABX, AV's, and/or TF's will likely be a fact of life for us for the long term.

    Love, Mikie
  15. dannybex

    dannybex Member

    I received an email from Dr. John Cannell, M.D. this morning telling of an article to be published this week in Newsweek magazine. The article is written by Professor Meir Stampfer, chair of epidemiology at the Harvard School of Public Health.

    Here's a short excerpt:

    "...But new research suggests that the RDA (of vitamin D) may not be sufficient to protect people against several diseases other than rickets.

    Studies link low blood levels of vitamin D to type 1 diabetes, multiple sclerosis, tuberculosis, colon cancer and even the flu.

    High levels of the vitamin may help fight HIV infection. And the vitamin's role in bones extends way beyond preventing rickets.

    Levels higher than the RDA offer older adults protection against fractures, through strengthening muscles as well as bones."

    The article can be found online, but also in this weeks issue of Newsweek, available tomorrow.

    Respectfully -- and yes, Happy Thanksgiving to all,

    Dan




    [This Message was Edited on 12/10/2006]
  16. munch1958

    munch1958 Member

    Everyone is different! If the MP works for you that's great. We are all so desparate for a cure we will try anything. If I'm not mistaken the papers written on the MP have not been accepted for publication by any peer reviewed medical journal. Please Google "Risks of Marshall Protocol".

    My Vitamin D levels were analyzed and I was found to be deficient. In 2001, I was hospitalized for 3 weeks in intensive care with kidney and liver failure due to the acute onset of pulmonary sarcoidosis.

    I am being followed by a team of medical specialists at a university level teaching hospital and not one of them will prescribe the MP. Even my alternate therapy doctor would not consider it since the science didn't make any sense to him either.
  17. Mikie

    Mikie Moderator

    I decided against the MP because I also found it to be too risky. Anyone with a chronic bacterial infection will improve when taking long-term ABX. Also, they will feel worse before feeling better. Has Marshall done his protocol without the ABX to isolate how the vitamin D affects patients?

    I do hope this treatment works for those who choose to do it. It just isn't for me.

    Love, Mikie
  18. jarjar

    jarjar New Member

    Too bad you live so far from Sujay as she could talk you into it in less then 30 miinutes. She had to get a NPRN to start working in her office as her patient load was becoming too much for her to handle. She has just recently been able to take people off her waiting list and was able to start seeing new patients.

    Word is getting around in the Northwest of her success with the MP.

    J
  19. Mikie

    Mikie Moderator

    I were convinced of the MP protocol, I couldn't live with my windows covered. It's so bright in here all the time with the FL sun shining in. When we have a few cloudy days, I get really depressed.

    As I said, I pray all who are on it are getting results but it just isn't for me. I'd still be interested in whether Marshall has tried the treatment minus the ABX.

    Love, Mikie
  20. jarjar

    jarjar New Member

    Sujay has a few patients using just benicar, watching D intake in diet, watching sunlight exposure and using ambrotose. No abx. When your blocade is dropped with benicar and cuttting back on D the ambotrose turns you immune system into a killing machine.

    Mikie I will say this also that they are finding some poeple do not have to monitor sun exposure that much. But they do have to watch out for foods with D.

    I don't live in a cave and I don't walk around the house in shades. I just keep the rooms somewhat dim but not dark. I dim my T.V. and computer screen. Wear Copppertone spectra 3 with invisible zinc oxide and shades and a hat when I go out. Not that hard to do.

    I do understand if you aren't ready for it though.
    [This Message was Edited on 12/11/2006]
    [This Message was Edited on 12/13/2006]