the pain is driving me crazy!! HELP

Discussion in 'Fibromyalgia Main Forum' started by aldejavu79, Feb 10, 2006.

  1. aldejavu79

    aldejavu79 New Member

    So my pcp diagonosised me with fibromyalagia,after a month and a half of flu symptms, fatigue, not myself. I even had an ER visit only to find out that my heart is A ok. Anyways, the pain is driving me insane, i now have these headaches that won't go away, pain in my wrists and elbows, and upper back, and behind my knees like growing pains. So my pcp did blood work for lyme's, lupus, hepatitis, mono- but ruled that out already, and 3 other tests. She prescibed me Amitrptylin, but should i take it? But this pain, is bad, i cry alot, my poor boyfriend. But i just want to get to the bottom of this. I am calling my local Fibromyalagia center on monday for an appointment. If i do have lyme disease what can i be doing now to help myself.!! Please healp, everyones words of wisdom have been great so far!! Anyone from the philadelphia area?

    Allison aka allie
  2. Sandyz

    Sandyz New Member

    I`m so glad you found this support site, it will help you alot. I took amitryptylin for almost 10 years for my Fm. It gave me a fairly normal life. I had to eventually try some new things. I was on it so long, it wasn`t doing much anymore. Now I take cymbalta and ultracet.

    The thing is the pain and fatigue with Fm is so bad your going to have to take something or your not going to be able to function. Their are many things to try including supplements. I like the Fm Calm sold here, it settles my pain down and relaxes my muscles.

    I have had this going on 20 years so I have been through it all. I`ve made it through it and so can you. We are here for you!

    Hugs,
    Sandy
  3. aldejavu79

    aldejavu79 New Member

    Thanks Sandy for your words of wisdom. I just had a crying fit and a bad headache episode. But i did some deep breathing and relaxation and i calmed myself. But Others on here beleieve that i might have lyme disease rather than fm. So i am trying now just to cope with the pain. Thanks and i look forward to dropping lines on this site quite often.

    Allison
  4. Smiffy

    Smiffy Member

    (((Allison)))


    Bumping this as it's slipping down the pages!


    Amitriptyline is widely used to control pain & sleeplessness in fibro, but it does take a few weeks to 'kick in' with some people. It can be used with lots of other painkillers. I have taken 10mg at night for years; if you are nervous you could start by cutting it in half at first. The other thing I've found helpful is a memory foam mattress topper.
  5. lilaclover30

    lilaclover30 New Member

    Another bump

    i am on gabepentin (Neurontin) but------i gave in yesterday and took tylenol #3 and it did help for the day.

    It is a never ending battle, i am sorry to say. Keep after your PCP, then ask him to let you see a specialist in FMS.

    i went for massage 3 yrs ago for horrid headaches. i went for just 3 weeks ans she worked at the base of the skull and they disappeared.Have not had that kind of headache since.

    Good luck and Gentle Hugs.

    we are here for you.
  6. Smiffy

    Smiffy Member

  7. Cromwell

    Cromwell New Member

    vERY LOW DOSE 10 MG AT BEDTIME. ALSO ABOVE POST RE MASSAGE AND STRETCHING AT AXIS WORKS SO WELL. MY DOC WORKS ON THE "LESS IS MORE" PRINCIPAL. THIS MEANS ONE CAN LOSE EFFECT BY TAKING TOO MUCH. THOUGH SOME HERE TAKE A LARGE DOSE OK.

    I AM SORRY YOU ARE SUFFERING I AM ALWAYS IN CONSTANT NECK AND HEAD PAIN LIKE MANY HERE, THE OTHER PAINS ARE MORE GRADED AND MY PAINS ARE IN THE SAME PLACES AS YOURS PLUS WHEN I GET FLARES THEY AFFECT THE WHOLE LEG.

    WISH YOU WELLNESS. LOVE ANNE
  8. NyroFan

    NyroFan New Member

    aldejavu79:
    I take the same medication as you, along with pain killers.
    I take it at night and wake up with good sleep and less morning pain.
    I hope you feel better soon. Have you gone to a rheumatologist? That is who takes care of my FM/CFS.
    He is a good guy that knows the ins and outs of the disease.
    I am not in your area, but wanted to tell you that fighting these disorders is the only way to get 'at it'.
    Hugs,
    NyroFan