THE PAIN NEVER ENDS

Discussion in 'Fibromyalgia Main Forum' started by Lexied, Aug 21, 2003.

  1. Lexied

    Lexied New Member

    The Pain Never Ends

    But you LOOK fine to me I heard my friend say -
    she said "You just need to get out more!" and then walked away.
    What does she know about my exhaustion and pain
    she didn't stand there long enough to let me explain!
    Where are all the friends I thought I had -
    It seems like they disappear when they KNOW I feel bad.
    My days feel so hopeless - there's no escape from this hell
    I hardly remember what it's like to be WELL .
    Please Lord help me with this bitterness and blame
    these feelings I harbour bring me such shame.
    It's hard to believe how much I've changed -
    I used to be so active -now my life's rearranged .
    it now fits the schedule of this damn disease
    I can no longer do whatever I please.
    I may still look the same to my family & friends
    but inside me lives pain that never ends.

    Written by - Lex


    [This Message was Edited on 08/21/2003]
    [This Message was Edited on 08/21/2003]
  2. Pindooca

    Pindooca New Member

    Well put!
  3. pixipip

    pixipip New Member

    I couldn't have put it better myself,
    Here's to healing and feeling well!
    Love & Light,
    Jacqui.
  4. Mikie

    Mikie Moderator

    You are going through the grieving process and grief therapy may help, but first, you need to get the pain under control. See a good pain specialist; there is no reason to suffer from pain.

    Your pain specialist may prescribe something to also help you sleep. This will improve your fatigue. The ZMA sold here helps many to sleep and it works synergystically with meds to enhance their effect.

    Once you get the grief, pain, and fatigue under better control, find a therapist who will use therapy to help you remember how it feels to be a healthy person. Mine used hypnotherapy and it makes a big difference. I've been sick 12 years and had forgotten how to be a well person.

    Don't waste any energy on what others think. It's a waste of our precious energy. Concentrate on what you can do to heal. We need not sit back and just let our illnesses ravish our bodies. It is our responsiility to take control. Coming here is an excellent way to start. There is a lot of wisdom here.

    BTW, in order to get well, we also have to address any chronic infections going on in our bodies. Good luck to you.

    Love, Mikie
  5. Lexied

    Lexied New Member

    I really appreciate all the help I get on this board! I have had FM for about 3 years now and I am under the care of a Rhuematologist and a Pain Management doctor. I take a lot of different medication for my FM and I have my ups and downs, flares & good days just like the rest of FM sufferers. Through the trials of this disease I have experienced a lot of different emotions... some good, some bad. I have accepted the fact that I'm not the same physically as I was before, but inside I'm still the same person I used to be. The poem I wrote relates to just one of the many experiences I have been through since I've been sick ... and I'm sure there are many more to come. I have found it helps a lot to get my feelings out... especially if I write them down as I am "feeling" them! This board has helped so much too and I feel blessed to have found it!
    Thank you again and I look forward to "growing" with all who are a part of this message board.

    God Bless Us All - Lex
  6. badangel3

    badangel3 New Member

    This is exactly what I'm feeling too. Sometimes it's so hard to be positive when you are in so much pain and no one around understands. Jackie
  7. kerrymygirl

    kerrymygirl New Member

    I was told once to grieve my former self and passed that advice on to my patients. That the person I knew died.

    BUT, I do slip and want so badly to have my old self or even part of back.For my kids mostly. I have lyme also and no one will treat correctly here. Plus numerous other co-infect.& injuries.

    My hardest part now is finding out hardly anyone left that I have alive understands, including my kids. This makes things so much worse since we live at a distance and they just think I am ignoring them. I have no real income and they have not been able to afford visit either. This loss is my biggest of all. We all suffer financial,physical,mental,many our jobs,sports,life on the outside. It is just too overwhelming at times no matter how strong we try to be......We all are human and slip even when we think we got a grip.

    I recently just fell apart, I Do Not want to live and die like this and have tried so many alternatives that the "well", is dry....

    So just try the best you can to do for yourself to keep yourself ahead of this dang mess we got stuck in and
    Pat yourself on the back for making....it.....

    Huggssss I liked your words

  8. Momskelleygirl

    Momskelleygirl New Member

    WHEN I GO OUT TO WHERE PEOPLE KNOW ME WELL. THEY SAY OH YOU LOOK SO MUCH BETTER. BUT WHAT THEY DON'T UNSDERSTAND LOOKD MAY BE DECIEVING.

    THE BETTER THEY SAY I LOOK THE WORSE I USUALLY FEEL, AND THE MORE MAKE I HAVE MY MOM APPLY.(USUALLY)

    SOMETIMES THEY JUST SAY IT TO BE NICE. THOSE WHO KNOW ME BETTER KNOW THE PAIN NEVER GOES, AND I DON'T LIKE BEING PATRONIZED.

    JUST SAY HEY ARE YOU FEELING A LITTLE BETTER TODAY DON'T LIE, WE BOTH KNOW I' NOT BETTER, AND PROBALLY NEVER WILL BE.
  9. Dara

    Dara New Member

    today. I just got back from a trip to a family reunion and I really had a hard time trying to act normal, when I felt so sick and hurt all over. It's strange how some people understand and accept you for the way you are, and others act like they just don't get it. I don't like to talk to anyone about how bad I feel, but when I say I'm unable to do something they just don't seem able to accept that. My sister being the worse offender, asked me in front of everyone, what's the matter with you? She knows how I feel most of the time and it was very embarrassing for me to be put on the spot like that.

    I hope you will have better days ahead, and I commend you for your wonderful ability to put in writing how you feel.

    Dara
  10. Manwithfibro

    Manwithfibro New Member

    I haven't had a pain free minute for 13+ years.

    Tim