Discussion in 'Chit Chat' started by Mikie, Apr 11, 2014.

  1. Mikie

    Mikie Moderator

    Thought it was time.

    Love, Mikie
  2. sunflowergirl

    sunflowergirl Well-Known Member

    Leah: Please don't fret over anything on this board. You've done so much here, your gift is encouragement to everyone and I feel bad if you're getting upset. Personally I'm finding I just don't have the "umph" to post at times, just too much stress at home right now.

    And since everything is anonymous, my husband has lost another 6 lbs. in l l/2 weeks.......he's llooking very gaunt. My son talked to him about medical's up to him whether he wants to try it to give a bit of an appetite. At times it's like I'm sitting on the sidelines watching a play unfold and I have no control over anything. And I'm getting very worn out by everything.
    Last edited: Apr 11, 2014
  3. jole

    jole Member

    Hello my friends~ It's not that I don't think of you, but just no energy. I thought I'd caught a cold and have been down for nearly two weeks. I don't have major allergies to pollens, so think it was a cold. However, hubby and DD/grands never caught it from me. My normal 'lack' of energy turned into a battle of simply finding enough to keep up with my drippy nose :( But yesterday and today are finally better, so here I am.

    Mikie, I had to chuckle in the last porch edition when you were talking about the lack of energy... and people drinking in front of an alcoholic, or eating a huge candybar in front of a diabetic. Yep, describes it so well. I have a sis-in-law who has told me so many times that I just need to 'force' myself to exercise. Heck, I don't even have the energy to argue the point with her:(

    Leah, my hubby is very hard of hearing also. Deaf in one ear and the other one is so bad hearing aides won't help him. We spend most of the time not talking to each other, which I hate. But if I'm not right beside him he doesn't hear me, and usually only hears part of the conversation anyway. I think he makes up the other because he always thinks I've told him something that I didn't even know anything about. I wish you and your hubby all the best, because lack of communication is a hard thing when our space in life is so small.

    Sun, prayers going up for your hubby and you also. Yes, watching from the sideline is sometimes a really hard place to be. Lots of stress in your life right now, so please be gentle with yourself. Is he the type that wants your help, or is he the 'do it myself' type of guy?

    Julie, you sound like you're feeling better again. And it's good that all your help is giving your DD some peace of mind as well. Little ones are very draining to a mother that's feeling well, much less one with problems.

    Rock, it's always good to hear from you. Love your wit. Also love the way you and Gordon help each other out. Be prepared to go a bit 'crazy' when he retires though........

    Be back tomorrow hopefully. Hugs to all........
  4. rockgor

    rockgor Well-Known Member

    Hello Kids

    Quiet day around these parts. We went to the library. I found a new author. I can't remember if I posted about same or not. Anyhoo her name is Rebecca Shaw. Once her kids grew up she started writing. I read the first book in her series. It's about life in a village. Enough going on to maintain interest and peaceful enough to be soothing.

    Gordon was on TV yesterday. Well, at least his voice was. He called some garden show with
    questions about raising raspberries. The host said he didn't know too much about raspberries
    himself, but referred him to a nursery named Brambles and some books.

    I was on TV myself about half a century ago. It was one of those women's afternoon shows.
    The hostess was Virginia Graham who hosted shows in the 50s, 60s and 70s. Anyhoo before
    the show started the audience was given cards to fill out. I gave a silly answer to some
    question (can't even remember what it was), but somebody in charge liked it and asked me
    to respond to Virginia's question when she made an entrance coming down the aisle.

    Anyhoo, the gist of the story is that the hostess, who had a master's degree and a Phi
    Beta Kappa key according to Wikipedia, (how believable is that?) got a little confusiated
    and asked the wrong question. My inlaws were visiting from Minnesota. They thought it
    was very exciting. I thought it was absurd.

    Gordon is making chicken stew. Instead of our old friend the crockpot, he is doing it on the
    stove top. The chef's prediction is that it will be ready in another two hours.

  5. rockgor

    rockgor Well-Known Member

    Hi Fellow Porchers

    Good to hear from you, Jole. Glad to hear you've been feeling better the last couple days. Sorry to hear about hubby's deafness. Is he a music lover? That makes it even worse.

    Yup, Julie. "Zoom" is a good example of onomatopeia. Any word that mimics a sound is: thud, whoosh, bang, hiss, zip, etc. "Having a little talk" reminds me of "a trip to the woodshed". I guess that wouldn't mean much to a kid today since woodsheds have pretty much disappeared.

    My folks sold their house in 1960. Seventeen years later we went back to see how the place
    looked. Both inside and outside were greatly changed. The woodshed was still there, but it
    had been moved about 20 feet. Other things like trees and the enormous lilac bush were

    Oh, I see Mikie is here. Right on time. Thanks for all your work as a moderator, Mikie. I was
    asked to be a moderator 2-3 years ago, but I didn't feel up to it. I didn't want to say I'd do
    something and then not be able to do it after all.

    Got a kick outta your Chic Khaki post on the previous thread. Don't see Chic and Khaki
    together too often. I wonder if the military issues special khaki makeup to our female troops.

    Springwater, I moved your post from the last thread. There is no fee for this service since
    you had a coupon. Ha ha!

    Gotta go lie down, Kids


    Here is Springwater's post:


    after reading Dars post, i went over to Homebound but didnt see any offensive
    post, i dont know which it was or was it taken off or what..

    im sorry if you felt you had to post anything re people being welcome,

    Dar - pls dont mind, we all of us here understand how this DD would
    affect the daily functioning of anyone afflicted with does take
    its toll and to a horrific extent sometimes, more power to you for
    keeping on going and NOT letting the DD rule you completely.

    God bless"
  6. Mikie

    Mikie Moderator

    Yes, everyone, please go back to our last Porch to read any posts y'all may have missed.

    Leah, the word, "overwhelmed," describes how I often feel just trying to navigate when I'm so run down. Just going to the grocery store yesterday was an ordeal, not because of lack of NRG so much as my addled brain. This last round of my HFV flare has really affected me cognitively. This last round of HFV flare has really affected me cognitively :confused:. Ha! Ha! We have to have a little humor and laughing at ourselves is an easy target, at least, for me. If I took my shortcomings too seriously, I would have nothing to amuse myself. On the other hand, a major flare can really make us sick and can be scary. I hope you are feeling better. We love to have you here.

    Sunflower Girl, is there a support group for spouses, friends and/or SOs in your area? How about a therapist? You are going through far too much to have to bear the burden by yourself. Please feel free to come here to explain what is going on as we care so much for you. I pray for you both. If medical Mary Jane is an option, I think it would be worth a try. I've seen a lot of people on TV talking about what a difference it made for them during chemo. Keep us updated.

    Julie, I'll bet DD wasn't the only one ready for a nap. You touch so many lives. I mentioned my cognitive problems. One of them is using the wrong word when I type. I just typed, "I'll bed DD wasn't the only one ready for a nap." Well, bed and nap do go together. Sometimes my poor addled brain makes a mistake that kinda makes sense. Another opportunity to laugh at myself. Yes, "Zoom" is an excellent example of that word I can never remember. All I know is that I like it!

    Jole, I'm glad you got a kick out of my venting. I love living here but in a condo community it's like a big family, all living in close quarters. I'm sure it's confusing for my friends because I do more than most of them even tho I'm sick a lot. I'm also about 10 years younger than most of them. I don't know which is worse, illness or age. People in a community can be catty, caring, helpful, not helpful, rude, loving, etc. all at the same time. Sometimes, I just have to stay to myself so they don't drive me completely nuts o_O. Unfortunately, most people simply do not understand our illnesses. I don't even try to make them understand but if they ask, I'll answer their questions. Then, I just get the confused stares. They understand eye diseases, heart problems, cancer, etc. but they just can't conceive illnesses like ours. No one can unless they've been through it.

    Rock, I remember Virginia Graham's show. She didn't strike me as the most sincere person but that may have been her schtick. When I was home with little ones, I watched a lot of daytime talk TV. I especially liked Merv Griffin. He was a really smart guy. It wasn't until Phil Donahue that I was entertained and learned a lot about life and other people. It was a perfect storm of his show and feminism which motivated me to go back to college in case I were ever on my own and had to make a living. Well, my ex was so intimidated by my newfound "independence," which wasn't independent at all, that he figured I was getting ready to leave him so he started womanizing, looking for his next wife. That's his story and he's sticking to it. My getting a part-time job and going to school part time was never a threat; only in his warped mind. It took me years to finally finish my degree but I stuck with it and graduated with my DSIL. But, I digress... Chicken stew--Mmmmm! You lucky guy! I had two breakfasts yesterday so didn't eat anything else much for the rest of the day.

    Simon showed up around 5:00, just as I was about to throw the paper down to Ilona. He ate a lot so I'm glad he came by for his breakfast. All in all, I'm feeling good about all the cats now. Tweety and Sylvester are doing great. I get to see them outside but don't have the responsibility which I really don't want or need at this point in my life. My French neighbor downstairs asked if I would come down to take care of her cat, Potet, if they go somewhere. I jumped at the change. Potet is a real love. Or, should I say, "Amour!"

    Well, my dear Porchies, it's time for me to go. Have a blessed day.

    Love, Mikie
  7. Mikie

    Mikie Moderator

    Hi, Rock, geez it must be early out there on the Left Side. Yes, Boho Chic, Khaki Chic, and Shabby Chic just don't go together. Lately, I've been too lazy to get out my jewelry so I just keep putting the same hoops in my ears. I like wearing jewelry but bling doesn't always go with very casual clothing so something ethnic looking or Boho Chic is just the thing to jazz up an outfit. Of course, when I'm working around here, I don't bother. Most women wear 20 percent of their jewelry 80 percent of the time; the 80/20 rule yet again.

    Rock, I think you would be a great mod. We've had some who were not able to do a lot but did what they could. Some others had to give it up as their illnesses worsened. With our savvy members reporting spammers, it makes my job sooooo much easier now. I don't troll the boards but I do go to the worship and CFIDS boards.

    Well, dear friend, it seems that once again, we were here at the same time, hence, my serial posts. Great minds...

    Again, wishing everyone a great day.

    Love, Mikie
  8. Soul*

    Soul* Well-Known Member

    To Darrae: Just to make sure, I sure hope it wasn't my post that made you feel unwelcome.

    I read the posts on the porch to find out what all was going on and what Mikie was talking about on the homebound bedbound board, and tried to figure out what went wrong where and if I might have been any part of it.

    I noticed that you didn't post anymore after my reply to your post.

    And I just want to make sure that you didn't take MY reply to you as the 'those not homebound bedbound are not welcome here'... That for sure has never been my intention at least. I only emphasized on what you already emphasized in your post too, that it is a whole different perspective to look at the world (or weather in this case) from the point of being in bed not able to go out, or from still being able to go to work and having to go through all kinds of weather every day.

    Only you know if it was or wasn't my post, I just hope that if I ever say anything that makes anyone feel bad that they let me know, or that someone else who is aware of that lets me know that I might have caused that, or that you report my post to the admins so that they can let me know what post caused that. Honesty and being clear about things only helps to keep the sky clear and to improve on how we communicate in a way that is supportive for everyone. I care as much about everyone on this board as on any other board. I have always felt welcome here, and hope everyone feels welcome on any and every board too.

    So whether it was my post or not, I really don't know, but I just want to make sure that in case it WAS, that you know it wasn't meant in the way you interpreted it and I would hate to make someone feel bad in any way at all, that serves noone. And noone deserves that.

    Hello to everyone, though I'm not able to keep up with the porch I do wish you all well.
  9. Granniluvsu

    Granniluvsu Well-Known Member

    Dear Soul,

    I don't think that you were the one causing the problem , that hurt Dar's or anyone's feelings. I just don't think you are that type of person. When I went onto the housebound and bedbound board I didn't see any evidences of anyone trying to hurt anyone else feelings, at least at that time. W all just have to be careful what we say on these boards. It is easy for others to possibly take things the wrong way, especially if you are feeling badly or worse than normal.

    Write now I almost feel like I have the flu but don't think I have the fever. With me and my aches and pain it is hard to tell what one has. Still have the congestion, plus DH is starting too and he is not quiet about his symptoms. I did more walking yesterday so that might be part of the extra symptoms for me.

    Just got back from WM and more walking and getting my Armour Thyroid script. After Medicare part D cancelled my Armour Thyroid I did some investigating and fro WM the cheapest for me anyway. I was also surprised at how very much more expensive some of the other pharmacies were without the insurance for AT. Unbelieveable. !!!!

    Gotta run for now. Thinking about you and ALL our dear Porchies.

    Jole - So glad to hear from you and sorry to hear about your DH's poor hearing. Mine isn't so great either, especially with the ringing in my ears.

  10. Mikie

    Mikie Moderator

    Hi, Kids,

    Just stopping in after doing a little housekeeping on the website. Thought I'd drop in while I'm here. Not much to tell as I finally did a bit more ironing and am almost through. One more session. It's hard on my back to iron.

    Leah and Soul*, I just added to my sticky post over on the other board and got in the mood to share with everyone what I see out my window. I won't be doing that on a continuing basis, but your posts got me so inspired. It made me stop to better appreciate what I have just outside. I think the threads on Out The Window are wonderful. Reminds me of when my Mom used to tell me about what she enjoyed looking at on the ranch/farm as the seasons changed in NE when she was a child. When I had kids, we would gather at the big window in our house in the foothills of CO and watch the clouds, mountains and sunsets.

    Granni, I sure hope you and DH feel better. There is sooooo much congestion going around. I coughed in a crowd in Bealls (into my elbow, of course, just like Elmo showed us :) and told everyone it was just allergies. I didn't want them thinking I was spreading something. One woman who worked in the ER told me that the doc there told her the sizing in new clothing can make a person cough. Learned something new! I don't remember whether I mentioned to y'all that I went online and clicked on Publix's virtual coupons. You put your phone number in at the card slider and if you buy anything you clicked on, it takes off for the virtual coupon. They also had a coupon for it in their paper brochure and I had another one from Target. They accept competitors' coupons. Long story short, I saved $9 on a $15 Nasacort. Woo Hoo! Y'all know how I love those coupons.

    I'm sitting in bed writing this as my body is aching all over from the whatever HFV. I've stopped taking the TFs and am not yet back on the AVs. Pulsing these things confuses the viruses and is a more effective way to treat. The afternoons are the worst so I use the mornings to do what I want, or need, to do. Today my bod hurts but not my head (knocking on wood) so that is an improvement. It'll probably take a while pulsing the AVs to drive the tiny terrorists in my body back into their caves. I guess the TFs are my Seal Team :cool: They are verrrrry cool!

    BTW, there is a very prolific virus attacking websites. It's a good idea to change you passwords on any critical sites. I just changed my banking password. There is a website, www.LastPass/heartbleed where you can type in any websites you use and it will let you know whether they have patched the hole where the hackers were getting in. I'm going to change my e-mail password even though Yahoo has done the fix. It's possible the hackers got in before the fix. I think we are all sick of having to deal with this.

    Have a wonderful evening.

    Love, Mikie
  11. Granniluvsu

    Granniluvsu Well-Known Member

    Mikie - For what exactly do you use Nasacort? I haven't looked it up at all but since you mentioned it, I though I would ask. Do you use it every day or what?

    Julie - I hope you are dong well and the family hanging in there.. You wear me out just thinking about what do every day. I really need to go take shower and get ready for church tomorrow. I am so achy and hope that I'll be able to get through the holidays coming up also with the congestion I have been having.

    Now DH is complaining about some of the same symptoms so now it is more complaining :)!!! How I can get through Holy Week and some company at Easter and all the extra singing - geez !!! Also the Priest have asked the person the like to be the head of music and liturgy department. He lives in the Boston area and will come to see us on Good Friday with his wife. Not sure if he will be there for the whole weekend or not. They have a big decision to make. They are gong to have a special coffee for him .Hope I feel well enough at that time to sing and to be there.. Our small group also has another program on Tuesday of this week. They are so short of sopranos right now I to miss.

    Bye for now.

  12. Mikie

    Mikie Moderator

    Hi, Kids,

    Granni, I used to get sinusitis this time of year when I lived in CO. Nasacort has a steroid in it to open up the sinus areas and stop infection/inflammation. I so seldom have that down here. I use non-steroidal OTC nose sprays when I have headaches and they help. I only use the Nasacort when my sinuses are soooo stuffy that I can't clear them out with the normal saline or the other sprays. It used to be an Rx with an expensive co-pay. Now, it's only $15 for a 60-spray bottle. With my coupons, I got it for $6. You only use two sprays in each nostril in 24 hrs. Steroids are not good for people on the peptides so I use this stuff sparingly, but it's great to have around when I need it. My stepdad was the choir director waaaaay back when he was a younger man. I don't know how he found the time with a thriving medical practice. A composer in the church dedicated a musical piece for a Mass to him. He was such a multi-talented person. I have a pic of him and a pic of Mom on my dresser alongside her ashes. I kiss my fingertips and touch their pics every night and thank them for everything and for watching out for my family from Heaven and for praying for us. I pray for them that God holds them in the palm of His hand.

    Julie, I think others' input in how you help your family are not important. Inside yourself, you know instinctively how you feel and what you want to do. You also know your own kids. Just do what feels right to you. That's all! Our families don't come with instruction books so we have to rely on our own instincts which are actually the best guide of all. You are such a loving and caring person that everything you do will have ripples you can't even imagine in these kids' lives.

    I just read Cort's newsletter, Health Rising. ProHealth advertises in the newsletter. The newsletter itself is filled with great articles, just as PH's is. One such article is on the use of Qigong for healing. I've always believed in using meditation, chakras and visualization for healing and have been helped so much with them. Even if all one does is take time to sit quietly and just focus on breathing, it is so relaxing that it is healing. How much relaxing do we actually do in our lives. Just having CFIDS/FMS/ME means living in a rigid state of anxiety and pain. I believe it is vital to our health to learn to relax.

    As most of y'all realize, I've posted about being in a mini-crisis spiritually and emotionally. I've felt the tuggings inside me that all is not well. I just opened myself up to letting whatever is wrong expose itself to me. It is what I knew intellectually all along but could not accept emotionally until now. Some of my friends and neighbors in the hood, whom I love like family, are hurting me by my being with them. There is gossip and backstabbing going on. The main focus of their lives is what everyone else is doing and digging in everyone else's business. Loving others means caring if they need something but this is often meanspirited. Sometimes, there is even joy at someone's "getting what they deserve." The other main focus is eating. Not everyone engages in everything I've mentioned but it's bad enough that it's finally eaten into my soul. The last thing, which may be the worst for me, is that these people love to argue and "be right." It's almost impossible for people to mention anything without someone's telling them, "You are wrong!" That's not fostering a loving atmosphere. Dr. Wayne Dyer says, "If you have to choose between being right and being kind, choose being kind."

    The other side of these people is that they will do anything to help neighbors when needed. They can be very caring but the caring is often being done alongside the negative energy they put out. If I am to survive and like myself, I have to separate myself from this. I have actually already been doing this because I've not felt well enough to join in activities and, by activities, I mean sitting on the Balcony watching the other neighbors. I will still see my neighbors, of course, but I will severely limit the time. I am going to be spending a lot of time on myself, using meditation and prayer to strengthen myself. I feel sapped by all the negativity. I know it's not up to me to try to change these people's negativity; it's up to me to change how I respond.

    Thanks for letting me vent here and use all your kind patience while I've worked this all out. Cort's newsletter had some excellent Qigong practices, including two beautiful visualizations which I printed out for myself. Rock, does Gordon use the five elements in Chinese Cooking or in other areas of your lives? I use them in Feng Shui but never heard of them in cooking.

    Well, think I'll take my tattered spirit and start working on myself. I probably need to get back to working on my tattered old bod too. While I've had this HFV, I've slowed down but am feeling better now. I hope all y'all are feeling well. Take some time each day by yourselves just to relax and see if it doesn't help. Over on the Housebound and Bedridden forum, they have an ongoing series, like our Porch, but it's what they see outside their windows. It's amazing how relaxing, and exhilarating at the same time, it can be just to observe and note the sometimes subtle changes out in nature. By sharing what they observe, they enrich everyone's lives. Again, I say, "We have the best, most generous and kind members here."

    Love, Mikie
    Last edited: Apr 13, 2014
  13. sunflowergirl

    sunflowergirl Well-Known Member

    Julie: great idea about the fence. It will help both you and Lindsey. It's just plain hard to have to run after little ones constantly. I hope she's got the napping down to a "science" where she also can lay down. And I'm assuming she has a baby monitor? Even now I use it when the kids come over to sleep. My mom has been gone almost 7 years and I remember using it with her, so I could rest but still hear if she needed help.

    Mikie: negative people are a REAL DRAIN on oneself, and I think we know intuitively how to disconnect from them. I hope these negative ones aren't the ones you're closest to in the hood.

    My DH is not doing good. He's not eating because of terrible gas, which he can't get rid of. I'm going to call his oncologist on monday. I told him not to take his pills last night, gave him a charcoal tablet to kinda "clear things out". Personally I would tell the doctor NO on the pills he's been given. This is not a life that's good when you're in constant agony. And I'm finding I'm consumed with his pain and suffering........same thing happened when my mom was still alive. I kinda put myself on the back burner and I know that's not good for me.
  14. Mikie

    Mikie Moderator

    Hi, Guys,

    Sunflower Girl, I agree with Julie. I'd call the doc too. With severe illnesses, the treatments can cause such horrible side effects but one also has to consider the quality of life. Usually, there are other, or additional, things which can be done to make patients more comfortable. Your quality of life is just as important if not more so. DH needs help and if you don't take care of yourself first, you will be no good to yourself or him. May God bless and keep you. You are in my prayers.

    Julie, I also agree with Sunflower Girl (and you). A fenced-in play area should appeal to the little ones if it's a fun place to be. My area wasn't fenced in but when the girls were a bit older, we had sand trucked in and a jungle gym and swing set put in there. They could play anywhere so no need for a sandbox. It was so much fun, they didn't want to leave nor did all the other kids from the hood who came to our yard because it was the "fun yard." Oh, the Popsicles, Kool Aid, and snacks I went through. Of course, I fixed healthy meals to counter the junk.

    I went to the pool before 10:00 and the "horrible family" arrived shortly after I did. They have two small girls and an older one. They have been making a lot of noise with the kids constantly screaming and shrieking all day. When they little ones climbed on the rope across the pool, I told the Mom that we weren't allowed to hang on the rope as it eventually causes the rings on the side to work loose and we had to spend a lot to fix it. She didn't reply to me but told the girls not to hang on them. I said, "I'm sorry but it's an expensive repair." She said, "I'm sure it is!" Then, it came to me. This is the woman who refused to get her family out of the pool after dark last year because she said the swimming lesson wasn't finished. I had to tell her it was the law and they had to leave. She must have remembered me. One of her kids started to scream and she actually told her to stop it or she would have to get out of the pool. I hadn't said anything about how noisy they were but I'll bet someone else did. Parents like these must have to go through life with others telling them what to do because they don't have common sense to do what needs to be done. This woman obviously has anger issues toward rules and those who enforce them and this is the lesson the kids are learning. Thing is that I'm always so nice when I say anything to anyone, apologetic even. Sheeeesh! :mad:

    Before I went, I had decided that nothing is worth getting my panties in a wad so this didn't phase me and I felt calm through it all. It wasn't ugly but it certainly wasn't friendly either. These people are obviously family or friends of someone who lives here. We are friendly and helpful people and if she were nicer, their stay would be even nicer. People here are mostly nice. What has gotten to me is the underbelly of the beast which goes on among people who have known one another a long time. In any case, once I came home, I tried out one of the Qugong visualizations with some slight changes personalized just for me. Wow! It left me feeling soooooo relaxed. These visualizations are so mystical and beautiful and can be done by anyone. There is nothing in them which would interfere with anyone's religion. I feel as though everything is going to be OK because God has me in the palm of His hand and I'm safe and loved.

    My wish is that all y'all feel the same peace.

    Love, Mikie
  15. Granniluvsu

    Granniluvsu Well-Known Member

    Geez all you gals, I agree with everything you have all been talking about. You are all so smart :)!!!! To lazy to menton everyone's name and really shouldn't stay on here to long. I have some cards I need to write to get ready to send and handout.

    I could just go on and on what MIKIE, SUN AND JULIE were talking about. Yes Mikie, some people absolutely have no common sense whatsoever. Unfortunatley you cannot get away from those type of people and most likely they aren't going to change either. Do you listen to CD's for your meditation? I am glad it is helpful for you and am sure it would be for all. Just continue to be as sweet as you always are and if they don't change you have done as much as you can. Thanks for the info on Nasocort. I need to stay away from cortisone as much as possible with my bone density problem, even though it seems to have gotten somewhat better,

    Julie - Your idea of getting the fence is just perfect. I think we have almost always had one when the kids were very small. No one or even two people can know what 3 or 4 little ones are going to do or go where there whims and will s take them. They don't think, they just GO GO GO !!! Glad you got to have a date with Den, twice I one day yet, even if par of it had to do with getting fencing materials.

    Sun - I also agree with and others here about you calling your DH's oncologist. Maybe he can either suggest something or change the med. he is on. Hope he will have an idea of what else could help him and hot hurt him so much. It is bad enough he has problems eating. Ask or the doc if he can try Boost, Ensure or something like that. It might at least help him keep some weight on, if they are not to sweet and make him nauseous.. Thinking about you and can't imagine having someone so close suffer so badly with cancer treatments, and I am guessing this is probably one of the least troublesome ones since it is the pill and not IV.. However, everyone reacts differently to different treatments.

    Have to a few more things around here so I will sign off for now. The thoughts of such a busy week coming up plus Easter dinner and we are having some company, is already wearing me out. Wish I could get rid of this junk in my nose and throat. It is supposed to rain here later today or tonight. Hope we get so to clear out some or all the pollen around here - awful !! Every time they promise rain, it seems like we get little or none ):!!

    Lots of LOVE to ALL,
    Granni :)
  16. sunflowergirl

    sunflowergirl Well-Known Member

    Jam: don't know anything about baking soda or the other cancer treatment but I'll certainly read up. I did a ton of reading about cannabis oil yesterday. My DH is VERY'm a bit more daring and what I've read it sounds very good though you have to be off the chemo otherwise you're really sick.

    1. I did call the clinic and talked to the internist on duty. He told me to stop the chemo pills until we talked to the oncologist and he also told me to get prilosec for the gas......said comparing it to GasX was like comparing kindergarten to HS. Also told me to get some gatoraid to add things back into his body. I read's lots of sugar which isn't good but I guess since he's badly dehydrated this will help.
  17. Mikie

    Mikie Moderator

    Wow! Julie, I hope everyone is better. There are evidently all kinds of viruses going around now and some are quite strong, causing all kinds of complications. I'm glad you are resting. Sounds as though the fence is coming along. I hate setting posts. It's been years but I still remember it as something I didn't enjoy.

    Granni, I have such a vivid imagination that I sometimes come up with my own visualizations or, if I use a "ready-made" one, I will customize it to my own needs. I felt so much better after my meditation and visualization yesterday. I actually talked to a friend about what is going on with me and I think she has a better understanding; at least she wasn't rude about it and said she was sorry if she'd been rude. I can't talk to the other one as she is "never wrong" and gets very defensive to the point of lying. I don't need that. I've never felt these people are "wrong" so much as their behavior leaves me feeling worse after being around them. So, it's up to me to remove myself from that negative situation. As you said, I've done what I can and will continue to do what I can for my own self and not expect anything of anyone else. Nasacort is one of what I call my Big Guns in treatment. I don't mess around with steroids but sometimes, it's a choice of the lesser of two evils. Sinus infections have made me sooooo sick and addled my brain. My last semester in college, I got one which made me sick for two weeks. The worst part was that we were taking a very complex math/computer class solving very complex problems. I almost failed. I finally talked to my professor to let him know what was going on. In the end, I got better and ended up with a B in the class. I was happy with that. If I get to the sinusitis early enough with only a day or two of using the Nasacort, it will almost always prevent an infection. And should I actually get an infection, the doc always prescribed Nasacort. Now that it sold OTC, I don't need the doc. Another $50 saved.

    Sunflower Girl, I drink Smart Water and it has electrolytes without any taste or added sugar. Jam is right; sugar is the worst. I can't stand the taste of Gatorade but my Mom used to drink it as she easily got dehydrated and would pass out. In hindsight, it probably affected her heart to get dehydrated like that. She had a couple of really nasty falls when she passed out. Once, as I was waiting for the ambulance, her heart and breathing stopped. I pulled up on her neck to start the old-style CPR and it jolted her back. Well, that and my screaming at her at the top of my lungs not to leave me.

    I felt so much better yesterday after my water aerobics and meditation but started to ache in the afternoon. Don't know whether it was a reaction to working out after a lull or just the last of the HFV symptoms. In any case, I took some acetaminophen and went to bed and watched a "Long Island Medium" marathon. I woke and tried to watch "Revenge," but I fell asleep again. Forget "Game of Thrones." So, I have a lot of catching up On Demand. I slept sooooo deeply. I woke at 5:30 (sleeping in for me :) . Simon was nowhere to be found. I stopped to look at the full moon with Mars just above it. I hope I wake early enough tomorrow morning to see the lunar eclipse. We are supposed to get rain tomorrow so it may be too cloudy to see it. This HFV has left my brain addled and my memory kaput. I forgot my new e-mail password and just redid it and have already forgotten it again. I wrote it down yesterday but can't find the bill I wrote it on. I'm a semi-mess :confused:.

    I'm going to get out my light weights and bands and do a little nonaerobic working out today. I need to build some strength for skating and, when I can find someone else to go with me, a kayak trip up the Estero river. My biggest fear is not having enough NRG to paddle. They have two-person kayaks so, perhaps, I could get a nice big strong man, or woman, to help. I'm pretty sure they have them for people who are older, not strong, etc. I even saw one man peddling his kayak in the reclining position like those bikes. When I was in rehab for my shoulder, I warmed up using a stationary bike with moving handles for my arms. OMG! It wasn't long before I was strong as an ox. I think it's because I was a jockette growing up at high altitude in my youth (or "yute" as they said in the movie My Uncle Vinny :D.

    Hmmmm, as I look out the window, it's a bit foggy out. Not much, just a mist. It's a good day to work out and finish my closet project. It's almost done. I should probably get on my Kindle and play some electronic games to try to jog my brain into operation. Of all the things I've lost, I miss my mind the most!

    Love, Mikie
  18. sunflowergirl

    sunflowergirl Well-Known Member

    Mikie: thanks for the info about the Smart Water. And thanks to you too, Jam. The oncologist/nurse tells me NO sugar, and then this doctor tells me to go get gatoraid. I bought 3 of the 6packs so will take two of them back today to the store. I don't want to add to his problems.

    Sounds like you're getting things under control and good that you had that talk with your friend. It's easy to slip into negative talk....I KNOW because I'm guilty, and have to be reminded. A kayak trip????? Gee......that sounds like a ton of fun. I really hope you're able to do that. Are there kayak clubs around you where you could hook up with a strong person.....I would choose a man if possible!!! LOL

    Julie: I'm praying for your family, expecting that your little ones will stay healthy. It's possible that when a bug comes around everyone gets it harder because of the mold. I know you've looked into all the possibilities and haven't come up with a solution yet. Rest when you can.

    I was going to call my DHs primary care doctor this morning but DH said he's better. Geeeeeee.....that's because I'm nagging him constantly about how much water he's drinking. With the chemo it's a minimum 64 oz plus and he's not used to so much liquid. So far, he said he wants to continue with the'm leaning toward finding a doctor who can help without it. He just doesn't understand how all of this drains me of energy. We've been married 46 years and it's scary to think that I might be alone.
    Last edited: Apr 14, 2014
  19. Granniluvsu

    Granniluvsu Well-Known Member

    Good morning awl ! I finally got dressed at close to 11:00 a.m. as I needed to get the Country Style ribs or whatever you call them. They are more like long pork chops. I needed to brown them first in broiler before putting in the crockpot. Put on hi a bit and then on low along with onions and BBQ sauce. I is pretty god cooked that way and they get very tender.

    Sun - Sorry about your DH and glad that seems to be doing better . I know what you mean about having to nag (r pester )them to doing what is needed by the doc. Yes, you are doing the right thing even if you have to nag or get after him, It is so hard to know what to do especially when it is a life threatening problem. Jam is right - keep away from the sugar as I understand it, cancer feeds on sugar. Hard that also from my daughter who had breast cancer. Hope that he isn't a real sweets lover. If so, there are many no sugar treats to be bought, once I awhile. Keeping him hydrated is very important but I know myself who is not a big drinker and have to work on it to drink what I need to or should drink. DH isn't a really big drinker either and we both mostly drink water and he coffee and me Green tea in the a.m. It is SO hard to know what to do in the cancer situation about treatments.

    Keep your head up hon and keep doing what you are doing. I know it is a very stressful situation. If you can try and take a little time for yourself to relax. I know that is also not an easy task.. Keep thinking and praying for you on my long list.

    Julie - Oh my , so sorry to hear that the babies are getting sick again. That sure make for a VERY tired momma and grandma and dad too if he happens be home. Praying that they all will get well soon and you don't get it, whatever it is. I am still coughing some and have some congestion. DH also has it but he doesn't drag on with this stuff like I do. He didn't even go to church yesterday.

    Supposed to go sing tomorrow, geez . I even started taking some antibiotic I had leftover to see if I it will help. The mucous does seem to be less colored than it was. This is the season, I think. Many times starts with allergy and then possibly going into something else.

    Hi also to Rock, Diane, Mikie, Jole, Dar, Frieda, Soul and so many others.

    Love to everydobby,
    Granni :)
  20. ConfusedInPA

    ConfusedInPA Well-Known Member

    Sun --

    A couple more suggestions for you and hubby. I get dehydrated so easily, and I hate drinking plain water. Usually I have about 16-24 ounces of plain water a day. Then I just can't drink any more water, no matter how hard I've tried over the years. The other liquids that I drink are other things I enjoy drinking, besides water.

    Is sparkling water (like perrier or club soda) maybe with a "squirt" of lime or lemon appealing to your hubby? I drink that sometimes, because I crave some carbonation.

    Glucerna (shakes/drinks). They are marketed for diabetics. My hubby drinks them. But I do too, my doc said that they wouldn't hurt me. (I don't have diabetes.)

    Gatorade G2 -- LOW SUGAR drink. Just an option for you, if all your hubby wants to drink is Gatorade.

    There's a POWERADE drink -- Powerade Zero, it has electrolytes, zero calories, but it also has artificial sweetener (Splenda).

    I've always been researching "sports drinks" since I tend to dehydrate. One I've found is ULTIMA REPLENISHER. It has a store locator on its website. It seems to be sold at Whole Foods (I keep waiting for the Whole Foods to open in my area!). The website said that it's used for cancer patients.

    Now, take all of this with a grain of salt, please! What works for one, you know.... Do your research. Each product I mentioned has a website. I drink all of them, but not the ULTIMA REPLENISHER. I own no stock in any of these companies, etc. Just wanted to give you some suggestions.

    Mikie, I'll have to check into that water you recommended. Maybe with some lemon, and stevia, I could make an electrolyte sugar-free lemonade for me!


    I'm not up to posting any more, right now. I do read all the posts. My thoughts and prayers are with y'all. Oh, BTW, Kevin and I and the kitties are all doing pretty good. :)

    Love and hugs and prayers to all,