this migraine is ruining my life

Discussion in 'Fibromyalgia Main Forum' started by dani78xo, Mar 24, 2006.

  1. dani78xo

    dani78xo New Member


    Does this ever get better?
    Since I got sick with fibro, i've gained over 10 lbs,
    probably because of the cymbalta,
    I've basically had to temporarily drop out of school,
    and i'll probably have to take another year as a senior
    The school decided i'm to wait until next year to take MCAS,
    And at the same time they're pressuring me to get better.

    They don't seem to understand I can't INFLUENCE this illness,
    And this retired headache specialist has been talking to my mom, and they're driving me INSANE because this woman apparently thinks the ONLY reason i cannot go outside with a migraine is because i THINK i'm going to feel sick when i do. really, if i wanted to ruin my life by basically dropping out of school, this would NOT be how i'd do it.

    everyones treating me like a hypochondriac, my mom doesn't even believe half the time i'm actually sick, even though SHE'S BEEN THROUGH FIBRO. i'm extremely jealous of her, she can go out and do whatever she want, now.

    and my friends don't understand, try as they might, why i can't ever do anything anymore. it's hard enough to battle the fatigue when i'm NOT going through amigraine cycle, but i've had this migraine for almost a month and i seriously don't know if i can take it anymore!
    i haven't seen any friends since i got this migraine,
    i just don't want to be pitied anymore.

    and now that i have a migraine that won't go away no matter what...all the triptans don't even TOUCH it. all the meds i've tried don't help.

    i kindof want to go to the hospital and beg them for the strongest painkiller they have, but judging by how they FORGOT about me last time and i had to sit there for five hours, half asleep from the benadril and compazine, i don't really want to do it again.

    i think i would be okay, and i could accept this illness if i just didn't have migraines...but nothings helping. and i'm about ready to give up.

    everythings jsut falling apart, mostly from the migraine. i could get used to this, to not going into big stores anymore or malls where i have to walk too much..i wouldn't have trouble adjusting to that. but i can't take these migraines, and everyone tells me, 'hang in there, it'll get better" and i keep WAITING for this migraine to let up, and it won't.

    and i don't want to be one of those people that have migraines for years on end...this migraines too severe, it won't let up for anything.

    and i've tried going to my therapist but i end up almost throwing up twenty minutes after i get there, and the only reason i can get to my doctor is because i still hope they'll find a way to get rid of this.

    at this point, it's a lose-lose situation. i'd be willing to try anything to get rid of it, but at the same time i'm SO scared of trying another med...i tend to have HORRIBLE reactions to all of them. i was sick in bed from topamax, and i dont' know anyone who's had a bad reaction to that.

    compared to the migraine cycles, the fibro is nothing.
    this is only the second one i've had and it's lasted about a month.
    if i could just get rid of it...i think i could keep from starting another.
    but it won't go away.

    this is agonizing...i don't want to do it anymore.
  2. NyroFan

    NyroFan New Member

    dani78xo:
    Why not take a visit to a doctor. There are so many good medicines these days for migraines, especially those to take before the migraine hits. I used to have them, but no more.

    A visit to the doctor could not hurt. Just my opinion.

    N.F.
  3. Cromwell

    Cromwell New Member

    Finally got an injection of imitrex I think for her migraines as oral stuff or up the nose stuff did not work yet the jab did.


    See if you can get that.

    I feel so badly for you honey.


    Love Anne C
  4. mme_curie68

    mme_curie68 New Member

    Dani -
    I'm sorry to hear you're not feeling well. You definitely need to be seen on an emergent basis for the never-ending migraine.

    I just wanted to throw out the possibility that your migraine may be from a chronic sinus infection. My sister had migraines so bad that she went to a neurologist - the migraine medication helped a little but the migraine didn't end. So they tried treatment for an entrenched sinus infection (double cycle of antibiotics) - and her migraine was cured.

    At this point, I am sure you are willing to do anything - it wouldn't hurt to suggest it to the doctor. Drug-resistant bacteria are everywhere these days - you get an infection with them, they are very troublesome to root out.

    If your pain is towards the front of your forehead and your face - it may be the sinuses. They kind of lie on the front of your skull and brain. In some spots the sinuses and the brain are separated by millimeters of bone or cartilage.

    Hope this (might) help,
    Hugs,
    Madame Curie
  5. jake123

    jake123 New Member

    Hey Hon, Even if it is sinus, it can be a migraine, get help. I know how you feel about going outside. It has caused a migraine for me before. I am absolutely sensitive to light, noise, smells, even some motions (god forbid a kid bouncing a ball repeatedly near me).
    Luckily I have a good neurologist who has worked out a plan with me. I have kept a record of my headaches(severity and when)and what meds I took and he has tweaked my meds to the point that I have alot less headaches.
    I can't get too much or not enough sleep. It will set me up for a headache.
    There are times when my meds don't work, Topamax, Relpax, Phenergan, Indomethicin, and Skelaxin and I just get tired of trying to treat it and not succeeding and I run to the ER. They are for the most part sympathetic.
    Please get some help from someone.
  6. cinnveet

    cinnveet New Member

    Like you I had migraines. they were so bad I woul keep a bag of frozen peas in a pillow case. One for my head, One for each side of my neck and one on the back of my head near my shoulders.

    It was so bad I went to hospital and they did a head ct.
    MY sinus cavity on the top of my head was so so infected.

    I had to go thru 3 surgeries to correct it and have an infectious deisease treat it.

    before they found out what was causing the migraines they put me on all sorts of med's imetrex, etc...and they wouldnt touch the headache.

    Make an appt for an ear noise and throat dr. just to make sure you can rule out sinus's.

    I would have never thought my sinus's as i never had a stuffy nose or allergies or even had to blow my nose.

    Good luck to you.

    cindy
  7. cjr2003

    cjr2003 New Member

    Dani,

    I too suffer from chronic migraines, and one thing that is always true for me, is that when I have a migraine that lasts more than 7 days, it is always a sinus infection. I def. agree w/ those who have suggested to have that looked into. When I have a sinus infection, the migraine will not go away until I have a strong antibiotic in my system. Migraines are so debilitating, aren't they? And yes, they can basically ruin your life when they are out of control. Have you gone off any meds recently. The one exception I have had was a 5 week migraine, and it was due to going off Neurontin and Effexor last year. It was horrific. I took migraine pill after pill and thought I would surely lose my mind from the pain and suffering. I truly am sympathetic. I go to the ER about once every 6 weeks or so because I get a migraine that the meds won't touch. They give me demerol generally and it sometimes takes 2 shots over a 48 hour period to get the migraine under control along w/ strong m. relaxers. My migraines can stem from my muscles getting so knotted up in my neck and head. If they can get that under control, I am in alot better shape, that is for sure. Hope that you get some relief, and soon. Thinking of you. Carla
  8. helpeachother

    helpeachother New Member

    Hi Dani, sorry about that AWFUL suffering. I only get them occainsionally. I heard this way too simple "cure" for the migraines. At some point, anything is worth a try, no matter how ridiculous. Drink two glasses of Gatorade and allegedly the migraine will go away. Good luck and please let me know if it works for you. Peace
  9. Cromwell

    Cromwell New Member

    I used Pedialite and it did recduce my migraine I meant to tell you that. so give it a try. It is the electrolytes in the pottasium.

    Love Anne C
  10. dani78xo

    dani78xo New Member


    nyrofan,
    my doctors are all aware of my situation,
    the last time i went to my doctor
    she only gave me a shot. which didn't do anything.
    i dont' remember what it was called,but it was something like...toradol.
    my neurologist has NO idea what to do,
    all she gives me are triptans, which don't do anything.

    sweetpotatoe,
    yes, i can sleep.
    but they're always there when i wake up.
    and they never go away.
    i have really bad insomnia, so i have to take ambien.
    its the only way i can get to sleep, but i do.

    madame curie,
    i doubt it's a sinus infection.
    i don't have any symptoms, and the migraine is in my temples mostly. just a stabbing, excruciating, wish-i-could-take-a-hammer-to-my-head kindof pain.


    jake123,
    does the ER stuff usually help?
    last time i went there they forgot about me,
    and it was horrible being drugged up for the rest of the day
    when my migraine didn't even go away.
    they didn't give me any real pain meds though,
    compazine and benadril, and then vicodin to take home.

    cromwell and helpeachother,
    i would try gatorade but i can't drink it.
    it messes up my acid reflux HORRIBLY,
    and lately anythings setting it off.
    i don't know why gatorade hurts it so much,
    but i'm afraid i'll get real sick if i try it.
  11. dani78xo

    dani78xo New Member


    wakemeup,
    yes, i have had an MRI.
    they did that not too long ago,
    to rule out anything else i could've had,
    which is how they came to FM.

    there's not too much i can do about my acid reflux,
    since it's gotten worse i've found the nausea i've had
    IS due to that, and since i'm already on the highest mg
    of protonix, there's nothing else i can do.
    and the protonix is one of the only GERD meds that works now,
    i was trying out other ones but i got real sick from them not working.

    as for the migraine, i HAVE been waiting it out,
    but i'm worried that it's not actually GOING to go away on it's own,
    i've heard about other people having them for a really long time.
    and it's been going on for about a month now.
    i'm thinking about asking about an imitrex shot,
    but they also gave me depakote, that my neuro and GP wants me to try...
    i'm really nervous about trying it though so i haven't,
    i have SUCH bad reactions to meds.
  12. jake123

    jake123 New Member

    The meds I take at home are preventative and I think that is the best way. That way I don't inconvenience anyone, it is cheaper, there is less scrutiny at the ER, etc.
    The Toradol the doctor gave you is excellent medicine. The ER doctor always gives it to me in my IV. It reduces inflammation in your brain where all the nerves and everything is screaming.
  13. minkeygirl

    minkeygirl New Member

    I just went for almost 3 years with migraines and slamming headaches. Docs just gave me more meds which made it worse. Google rebound cuz after 7 docs I figured it out on my own.

    I went cold turkey off all pain meds. No triptans, excedrin, fioricet, nothing. The first few days were bad and I lived with an icepack on my head. I also would tie a rag around my forehead, mine were like pressure on my forehead, and that helped. Its now been, over a month and I've only had to take imitrex twice. Rebounds are bad, no one tells you how bad and some people have to go to hospital. The only thing to do if rebound from what i read is have doc give you some non rebound med like depakote or neurontin (which causes weight gain) or some inderal to slow down blood pressure. also biofeedback. I did this on my own after i brought up to doc and she said could be it, but still wanted to dump off on neuro or shrink. Check it out and good luck. they suck.