this support stresses me

Discussion in 'Fibromyalgia Main Forum' started by fibolady, Oct 18, 2002.

  1. fibolady

    fibolady New Member

    this is just to to tell what's been stressing me and how it affects my fms. i feel yanked at both ends, first by my doctor and counselor and then by my spouse.

    i take meds to function. in learning what everyone does (which is different and if you know my background, i have tried herbs, accup., etc.) i don't think i really take a lot. 50 mg. ultram a day (100 if really bad but actually after 75mg it doesn't help) sometimes advil, flexeril when muscles knot, klonopin, and sometimes ambien for sleep. and of course vitamin and mineral supplements, plus grapefruit seed extract herb which i think is helping with ibs & yeast (still little early to tell) found this information here.

    my spouse has really reared up about going to see some other doctors, specialist. i see a rheumy. so i have made an appointment for next week. but he ALWAYS brings up "all those meds aren't doing you any good and they make your mind fussy." thus, putting the guilt trip on me again for taking meds. i am so tired of this. they just don't get it, why can't they get it, i'm so sick of even my spouse saying this to me, time after time.

    i am always trying something new, always proactive in this dd. i walk, stretch, am working on my diet again, go see a counselor. he even brought up this board, that i shouldn't sit around and use this board. this is where i have learned the most in the last 6 months, how dare he.

    yep, i am mad. i don't have any friends to share with so this board has been a lifeboat for me. i think he likes that i don't have anyone else to talk to. of course, he has a life, out the door to play golf this morning.

    should i be feeling this way or am i in a state of "crazy woman!"

    warm regards, fibolady









    [This Message was Edited on 10/19/2002]
  2. fibolady

    fibolady New Member

    this is just to to tell what's been stressing me and how it affects my fms. i feel yanked at both ends, first by my doctor and counselor and then by my spouse.

    i take meds to function. in learning what everyone does (which is different and if you know my background, i have tried herbs, accup., etc.) i don't think i really take a lot. 50 mg. ultram a day (100 if really bad but actually after 75mg it doesn't help) sometimes advil, flexeril when muscles knot, klonopin, and sometimes ambien for sleep. and of course vitamin and mineral supplements, plus grapefruit seed extract herb which i think is helping with ibs & yeast (still little early to tell) found this information here.

    my spouse has really reared up about going to see some other doctors, specialist. i see a rheumy. so i have made an appointment for next week. but he ALWAYS brings up "all those meds aren't doing you any good and they make your mind fussy." thus, putting the guilt trip on me again for taking meds. i am so tired of this. they just don't get it, why can't they get it, i'm so sick of even my spouse saying this to me, time after time.

    i am always trying something new, always proactive in this dd. i walk, stretch, am working on my diet again, go see a counselor. he even brought up this board, that i shouldn't sit around and use this board. this is where i have learned the most in the last 6 months, how dare he.

    yep, i am mad. i don't have any friends to share with so this board has been a lifeboat for me. i think he likes that i don't have anyone else to talk to. of course, he has a life, out the door to play golf this morning.

    should i be feeling this way or am i in a state of "crazy woman!"

    warm regards, fibolady









    [This Message was Edited on 10/19/2002]
  3. pam_d

    pam_d New Member

    I'm sorry you are going through this! My sense is that your husband would LIKE to be the one to have all the answers and the magic "cure" for you, but can't and that's very frustrating & maddening for him---instead, you are finding comfort, information and support in this message board, which you very much need, appreciate & are entitled to, but he feels shut out of that. I don't know why our family & friends feel threatened in the first place---we're NOT expecting them to have the answers, just to be supportive & kind to us when we're at our low points, which occur often, unfortunately, with this DD. I hope he cames to understand that this board is maybe the one thing that allows you to function as well as you do, that it's important to you & and maybe allows you to find out the kind of info that will someday make a real difference. My husband is the one who found this message board for me--but he's a diabetic, and he knows the value of these boards for finding info & support! Good luck to you, fibolady, I will be hoping things get better for you & sending positive vibes your way...

    Hugs,
    Pam
  4. kats1978

    kats1978 New Member

    I have met a lot of people like me has the FM but I have also learned and worry more about what might happen in my future. I have see a lot by going though everything that I have to go through. But I have also to take one day at a time. Birds are actually my best of friends. They don't have to tell you but I know that they know what I am going through and how I would just like everything to go away.
    Looking at my present although I am so thankful that I only go trough periods of not being able to walk but I still try. I am not taking meds due to the doctors that I have feel as though I don't really need them anymore and my life is starting to get better.
    I just feel like I am glad that I am still able to go out there and make something of myself. Hopefully you will get a brake.
  5. Vamp

    Vamp New Member

    STRESSSSSSSSSSSSS ?????
    Got that issue BIG time and yes my partner has a life and is never with me either - so here I sits alone in a big house rolling around like a marble ...... I am new here fibro, but think we have seen one another before.....do keep in touch with me as I see this board may be of large help to me also due to my isolation. I am green here, so could use pointers how to really work all this stuff....
    Vamp
  6. Vamp

    Vamp New Member

    Again here Fibro and all - still learning here -
    Vamp
  7. fibolady

    fibolady New Member

    thank you for your thoughtful replies. it makes such a difference to hear other persons takes on your feelings and especially those that are so enlightened (have this dd)

    i am glad we are here for one another. this group is so smart it just overwhelms me sometimes. i will be posting on my "new" future doctor apptmtents (hoping to get a mri so my spouse will be quiet!, colonscopy for ibs, complete physical and see a neurologist for these dang headaches.)

    from my rheumy's point of view, what i am experiencing is the fibromyalgia. the treatment he has prescribed has been the one i have been following. the usual, drugs to help with the sleep, as much exercise as i can tolerate, pain meds to help, rehab (i did twice) and couseling.

    so probably until christmas i will be going to doctors. once and for all, we can put this diagnosis to rest and maybe then my marriage won't suffer so much.

    i will keep you posted on each doctor and what the experience was and the tests run, like a running novel! and of course, if i find the "cure" i'll let you know first!

    warm regards, fibolady


    [This Message was Edited on 10/20/2002]
    [This Message was Edited on 10/20/2002]
  8. Fibrobeachbum

    Fibrobeachbum New Member

    I know what your going thru when the stress hits. My blood prssure yesterday was 162/122 and I could have a heart attack or stroke. I have a great hubby though he is very supportive. I never got back to you about my daughter having fm. She started having aches in feet and them muscles cramps, then in started in her hands and my rummy said that is this dd just like we all have. If you need to talk just email me.
    Ann
  9. kats1978

    kats1978 New Member

    I know at i migt be strict at what I wrote but I have my days where I don't want to leave my heatted bed. So I do know wat everybody is going trough
  10. LisaMay

    LisaMay New Member

    and if I lived closer, I would kick your hubby in the pants! This board is the best thing I've found to find info, get support, and be able to be "me" without critisism.

    I saw my rheumy this AM for a f/up. Told him about my thoughts on Tramadol vs. Ultram and headaches. He didn't think that was the problem, but said to switch and see if it helps. Still not sleeping even with increase in Zoloft and Ambien, so now taking Flexeril. Really need some ZZZZZ's.

    Will be seeing the neuro Thursday for my headaches. They are persistent little (sometimes big) buggers. It really drags me down further into the black hole. I'm keeping my fingers crossed that they will either find something and fix it or have a miracle up their sleeve! I'll keep you posted.

    Gentle hugs and warm thoughts, Lisa
  11. fibolady

    fibolady New Member

    what a disappointment, did get the referrals to the gastroentrologist (ibs or whatever is going in) and neuro for the headaches, but not until 2003 could they "squeeze" me in.

    the next week long headache i am going to the er, i am sick of this!!

    can't wait until thursday to see how your neuro went, please bump the post up with your apptment!!!!!!! i live in a pretty big metro city, we have 1,000 of doctors, it is hard to believe you have to wait so long to get an appointment.

    warm regards, fibolady