THIS WEEK: Free Online Chronic Illness Seminars

Discussion in 'Fibromyalgia Main Forum' started by mezombie, Sep 8, 2009.

  1. mezombie

    mezombie Member

    September 14th marks the start of National Invisible Chronic Illness Awareness Week. One group is offering a "conference" chock full of seminars about living with illnesses such as ours, all available from the comfort of your home by computer!

    You can listen to them live by going to and clicking "Listen to this show LIVE", which is right under "Subscribe to this blog by email" on the right hand side of the home page.

    Seminars will be offered Monday through Friday, September 14 through 18.

    I've posted an article from the site below. It's worthwhile going to the site itself as there are many helpful articles and resources there beyond the conference.



    Chronically Ill Are Perfect Audience for Virtual Conference, September 14-18

    Hard beds, traveling expenses, long walks to conference rooms, peers going overboard on the perfume, and extreme fatigue are predictably part of your average conference. For the chronically ill, however, these inconveniences oftentimes make attending an actual conference impossible. National Invisible Chronic Illness Awareness Week celebrates its seventh year, and with the power of social networking, 009’s “virtual” conference September 14-18, 2009 is sure to be a success.

    “I can only leave the house once a week, twice if I am really lucky, so a weeklong conference is normally impossible for me,” says Juliann Krute who lives with Ehlers-Danlos Syndrome and many other illnesses. “Having a conference that I can attend—even if I am in too much pain to get out of bed—is fantastic!”

    The conference will feature twenty live seminars via Blog Talk Radio that anyone around the globe can listen to LIVE or archived. The 2008 workshops have had over 12,000 listeners and are also available on iTunes.

    Topics for 2009’s conference include:
    • Applying and Winning Disability Assistance When You Are Chronically Ill
    • Managing College with a Chronic Illness
    • Find the Job You Desire and Can Do
    • It’s OK to say NO: Building Healthy Boundaries
    • Coping with Chronic Illness in Your Marriage

    Guest speakers are some of the top chronic illness advocates online today including Jenni Prokopy of; Rosalind Joffe of; Maureen Pratt, author of Peace in the Storm, and Christine Miserandino of They are joined by.Kelly Rouba, former Ms. Wheelchair NJ 2007, and best-selling authors on marriage, Bill and Pam Farrel.

    Invisible Illness Week was founded by and is sponsored by Rest Ministries, the largest Christian organization that serves the chronically ill.

    Lisa Copen, 40, founder of Rest Ministries and creator behind National Invisible Chronic Illness Awareness Week says, “Regardless of where one’s spiritual ties are, there is an fundamental human desire to feel understood, to feel like those you love have some idea about what you are going through.” Copen, who is explored this in her book Why Can’t I Make People Understand: Discovering the Validation Those With Chronic Illness Seek and Why says, “One of the most difficult adjustments to illness is that you feel life is passing you by and no one around you even realizes it. We hope through our conference we can provide a place where people find the true source of being validated in their pain, how to live joyfully despite their illness, and of course, we want to increase awareness about how many suffer silently. Like our theme says, ‘A Little Help Gives a Lot of Hope.’ It really does.”

    For more details about the free conference and other resources visit

    [This Message was Edited on 09/15/2009]
    [This Message was Edited on 09/17/2009]
  2. AuntTammie

    AuntTammie New Member

    lots of great resources
  3. Debra49659

    Debra49659 New Member

    thanks for posting this information:)

  4. mezombie

    mezombie Member

    Thanks, AuntTammie and Debra49659, for keeping this bumped.

    I'm always tickled pink when I come across something like this that promises to offer a bit of helpful advice to just about everyone dealing with a chronic invisible illness.

    I hope members of this board will check it out!

  5. mezombie

    mezombie Member

  6. mezombie

    mezombie Member

  7. jasminetee

    jasminetee Member

    This looks awesome! Thank you so much for posting it! How are you holding up these days?

  8. mezombie

    mezombie Member

    You're welcome. I've posted this on several of the other message boards. Feel free to post it on any I've missed!

    And yeah, spread the word! It does look like a good site.

    I keep reworking the title of this thread. I hope it's OK.

    You take care!
  9. mezombie

    mezombie Member

    It is chock full of information, isn't it? I'm glad this post reached you and that you like the site.

    I am I???

    My physical energy and stamina have improved a bit, but my cognitive function is still as bad as ever. I've been pretty down about it all. It's just been so long and I've missed so much of life.

    Computer time makes me motion sick if I stay on too long, but I know it's the best way to at least read about people in similar situations.

    Maybe we can connect through chat? I don't feel comfortable writing too much personal information on boards.

    How are YOU holding up?

    Take care,

    [This Message was Edited on 09/15/2009]
  10. mezombie

    mezombie Member

  11. mezombie

    mezombie Member

  12. mezombie

    mezombie Member

  13. mezombie

    mezombie Member