I have three kids in their twenties...27, 24, 21...unfortunately they have all struggled with CFS all their life in varying degrees, our older two have been sicker (they came down sick in 1988 along with me and their father) the younger one less so. If they were asked today, they would probably say they realized that "something was wrong" in their early teens. It was an immense struggle to get to school everyday for them and even harder to explain to anyone(teachers, doctors,) how grueling just getting up and going to school was . I am sure all of you can relate. Back then they were saying it was rare to see a child afflicted. So now years later, I realize there were others all along.......I would like to know if you feel your parents are ill with the disease also. I am trying to figure out how and why this has happenend to us. How are you managing becoming independent? Are you having a hard time working? Are you still relying on financial support from your parents? Have any of you gotten disability income; if so, was it difficult to get? Hopefully they can manage with careers in film and art where they set their own hours but they have alot of difficult days.