Those of you w/EBV -How high are your Titers?

Discussion in 'Fibromyalgia Main Forum' started by suz9601, Apr 18, 2006.

  1. suz9601

    suz9601 Member

    Just curious how high everyones titers were. Mine seem to go between 1.28 and >7 which I guess is as high as the lab goes. Just wondered how high everyone elses get. I used Quest for my labs, so obviously other labs will be different values.

    Thanks
    Suz
    [This Message was Edited on 04/18/2006]
  2. KMD90603

    KMD90603 New Member

    I'm not quite sure how high mine are, but I'm going to have my infectious disease doctor run that among other tests when I see him on friday. I'm hoping it may give me some kind of clue as to what's making me feel sooo gosh darn sick lately.

    Gentle hugs,
    Kim
  3. sop28

    sop28 New Member

    I just had it done 1 month ago. My VCA IGG and EBNA IGG were >5.0. I haven't had anything done about this yet. I went to FFC but I can't afford to go there.

    Currently looking for new doc.

    I have a question though. Do you know why EBV is a problem for CFS/FM patients? cuz anyone who comes in contact with EBV (which apparently is alot of people) will have antibodies and it doesn't cause them any problems.

    It's like if you get immunized for hepatitis. After the injections work you will have antibodies, but you don't have hepatitis.

    What are you doing for this?
  4. bunnyfluff

    bunnyfluff Member

    EBV Ab VCA, IgG >170 (should be 0-19)

    EBV Nuclear Antigen Ab, IgG 39H (should be 0-19)

    It also said chronic or reactivated infection in convalescent phase. I was pretty sick when the blood draw was done, my Dr said the re-activation showed to be about 1 month old according to the test scores.

  5. ldbgcoleman

    ldbgcoleman New Member

    Yes it's true 90% of the population tests positive for EBV. However most people have inactive EBV. The thoery is people with FM or CFS either have a trauma or illness that allows EBV to become actrive. In my case it was a difficult pregnancy. I had hypercoagulation of the blood which gave the EBV a place to hide out. I also have mycoplasma. Do a search on stealth viruses to get tons of info.

    My Ebv was 16 times higher than normal. I am to lazy to dig through and find the actual test results. Now the EBV is better than normal. The mycoplasma is still around. EBV can become active again so I am being extra careful to keep it at bay.

    The main treatmentr I did for EBV was FAmvir. I took it for 9 months. Also transfer factor, miyake mushrooms. I think these were the thinghs that tartgeted EBV.

    Take Care Lynn
  6. bunnyfluff

    bunnyfluff Member

    The difference is that in an active reactivation the scores are high again in certain areas of the test. That is how they determine that.

    So, the only way to tell if you are in a current reactivation is when you are sick, get tested for active EBV like my Dr did for me. There are differences on the way the virus shows up in the testing that makes it currently active or dormant.

    I also have a strep virus that lives somewhere (a Dr believes in my spinal fluid) that reactivates, and it shows up very, very high from time to time on my blood tests. Right now it is 571, and anything over 200 would be considered high. But I never actually get strep throat.
  7. Cromwell

    Cromwell New Member

    Mine is consistently about 2 to 4 times normal.

    Love Anne C
  8. vertiesmth

    vertiesmth New Member

    HI,EVERYONE, I HAVE EBV AND MAYO SAYS IT AUTOMATICLY GOES INTO FM, WHICH IS TRUE, I HAVE IT ALSO. THE IMMUNE SYSTEM GETS RUN DOWN AND THE TIRENESS IS TERRIBLE. SO I TAKE THINGS TO RAISE MY IMMUNITY. THE PAIN STARTED IN MY HANDS AND THE BACK OF MY NECK AND GRADUALLY SPREAD TO THE REST OF MY MUSCLES AND ETC. IT IS A BATTLE ISN'T IT? YOU KNOW WE ARE ALWAYS SEARCHING FOR A QUICK FIX BUT I'M NOT SURE THERE IS ONE, SO FAR. ONLY A HEALTHY LIFE STYLE. I AM WORKING AND HAVE TO TAKE A HANDFUL OF PILLS TO BE ABLE TO FUNCTION. NEVER PAIN FREE. BUT STILL NOT GIVING UP!!!!!!!!!!!! CAUSE LIFE IS TOO SHORT. HUGS, VERTIE
  9. freshair

    freshair New Member

    I think that the active stage of ev is IGM, i think we all show positive for IGG which shows that we have had in the past active EB. i can be wrong,,,,,
  10. futurehope

    futurehope New Member

    Here they are:
    IGM - Negative
    EBV Early Antigen (IGG) - Positive
    EBV VCA - (IGG) - Range is 0-19 - Mine was 170
    EBV Nuclear Antigen - (IGG) - Range is 0-19 - Mine was 200

    This test was done about one month ago.

    My Infectious Disease Specialist told me it was Chronic. I still remember the first time I had the activation years ago.

    I have spoken to 2 different doctors and was told there was no way to get rid of it.

    I see too that different labs have different ways of measuring. Some look similar to my results and some look completely different.

    I just know I hate having so many problems!!

    Love and prayers,
    Brenda
    [This Message was Edited on 04/19/2006]
    [This Message was Edited on 04/19/2006]
  11. futurehope

    futurehope New Member

    How do you get the Doc's to run so many tests on you to check for different things. It was like pulling teeth to get the Infectious Disease Specialist to test me for anything.

    And if I suggested that I thought it would be a good idea to test for a certain thing, he would just say no and not budge!!

    Brenda
  12. andrea1459

    andrea1459 New Member

    my EBV IGG AB is 3.97 AND MY NUCLEAR ANTIGEN OR ebna igg IS >5.00 IM ALWAYS OUT OF RANGE WITH THIS
  13. futurehope

    futurehope New Member

    It is my understanding that IGM is not a reactivation of EBV. It is the IGG readings that show a chronic or reactivation stage.

    Brenda
  14. bunnyfluff

    bunnyfluff Member

    You still show markers for the EBV in your blood for the others if you aren't reactivating- like the tests they did on my husband @ the same time they did mine. His ranges were normal, though, on the rest of the tests.
  15. suz9601

    suz9601 Member

    Are you talking about your ASO levels when you mention strep? If so mine are always high between 200 and 300...Trevor on this board has the same problem. I haven't found a doc that knows what this means. So yours says you have a hidden strep infection? What did he say to do about it? Did he know where it is located? I haven't found a doc to help w/this. Thanks
  16. mme_curie68

    mme_curie68 New Member

    The problem with viral infections is that viruses mutate very quickly and can "hide" from our bodies' immune system by literally hijacking the cells that our bodies depend upon to destroy foreign invaders.

    Anti-viral therapies typically target one portion of a particular virus - for example the outer shell, or by inhibiting replication of its genetic code.

    If a virus mutates and becomes different enough such that an anti-viral is no longer effective, viral load increases and the immune system is further supressed.

    Viruses are amongst the oldest, simplest and yet the most dangerous adversaries known to humankind. They are capable of crossing species, leaving the human population and returning to the human population weaker through mutation or unbelievably stronger through mutation.

    It's the dirt-simple mutations that keep the most brilliant researchers struggling to keep up finding anti-viral drugs - viruses are capable of adapting faster than the highest level of human technology allows us to respond.

    Great virus books if you are interested and want to read up on them -

    "The Great Influenza - The Epic Story of the Deadliest Plague in History" by John M. Barry

    "The Hot Zone" by Richard Preston

    "Virus Hunter" by C.J. Peters and Mark Olshaker

    "Level 4 - Virus Hunters of the CDC" by McCormack, Fischer-Hoch and Horvitz.

    I have to admit to a major medical geek's fascination - they're all sitting on my bookshelf - LOL!

    Hugs,
    Madame Curie

  17. bunnyfluff

    bunnyfluff Member

    Anti-bodies released in reaction to strep virus in your body. I was on anti-virals for a month, didn't do a whole lot of good I don't think.

    My Dr told me that the virus is capable of living in your spinal fluid or your kidneys, lots of places, and it just sort of hangs out and flares up, and I guess you never really get rid of it, or can get rid of it.

    I think that's why I end up with the sore throats and low-grade fever from time to time. That was the problem when the ASO was high this time, some lymph involvement, but it never goes full blown.

    I was on anti-biotics for years for acne, that didn't help, either.
  18. suz9601

    suz9601 Member

    I wonder how many of us w/CFS have high ASO titers too? I bet a lot of us have never been tested. I have been sick for 10 years and only got tested a couple of years ago for ASO. I have been on abx several times too and it still stays high. Take care,
    Suz