Those of you who have applied for SSDI

Discussion in 'Fibromyalgia Main Forum' started by moreinfoplease, Jun 20, 2008.

  1. moreinfoplease

    moreinfoplease New Member

    1) What were the disabling conditions you listed?

    2) Were you formally diagnosed with each by your doctors?

    I do have several diagnoses, but I know that they don't reflcect the full picture of my illness, and importantly, do not fully reflect why I am not able to work.

    To date, I do not have a doctor on record saying that I have CFIDS (what I suspect).

    Do I list CFIDS, just what I have formally diagnosed, list the symptoms that have not been given a diagnosis, or wait to apply until I have gotten the symptoms diagnosed?

    I have printed out the SSDI forms and got most of my medical records, but am really confused as to how to proceed.

    FYI, I am diagnosed with orthostatic hypotension by tilt table test, and have an abnormal sleep study with no rem and alpha delta sleep. I also have hashimoto thyroiditis (with thyroid supposedly normal on tests), OCD, and secondary depression. The main reasons I had to stop working were really bad "brain fog" and really bad fatigue and worsened anxiety. I have pain also, but could have uncomfortably kept working if that was the only symptom.
  2. willruthie1965

    willruthie1965 New Member

    I think you should list what you wee diagnosed as having. I would definetly ask the doctor to help you look into your fatigue problem.HE can't just ignore it.He has to document at least that you are complaining of chronic fatigue.

    I read somewhere where you should ask your doctor to document the things you are saying. RUthie
  3. moreinfoplease

    moreinfoplease New Member

    yes, my doctors' notes do (sometimes) include mention that I am complaning of fatigue, but the full extent of that problem is not reflected in the diagnosis.

    I will continue trying to get these doctors to take my symtoms more seriously and also continue investigating alternative doctors.

    It sure takes a lot of energy though, and today has been one of those trying days when I wonder if it will ever get any better.
  4. marti_zavala

    marti_zavala Member

    but it is not in the Social Security sticky at the top of the page. That is a shame because it was a good question with good answers.

    Marti
  5. jole

    jole Member

    I received mine on my first try, without a lawyer. The main thing they look for is documentation, documentation, and more documentation. I had gone to a neurologist, psychologist, rheumatologist, and my PCP.

    .....I had a CT scan of the brain and upper back due to the pain, brain fog and migraines.....negative.

    ....The psychologist diagnosed me with severe depression, anxiety/panic attacks and possible bipolar.

    ....PCP and neurologist dx was FM, chronic migraines, IBS, cognitive difficulties and imbalance.

    ....I was sent to physical therapy, which didn't help.

    .....The rheumatologist ruled out arthritis and confirmed the FM dx.

    So you see, the more docs and specialists you go to who confirm your diagnoses, the better your chances.

    On the SSDI forms there is also ample space for you to tell what your daily life is like, for instance....I sleep poorly and wake up exhausted. I can make my bed, but with severe difficulty and a rest break. Taking a shower is exhausting, and many days impossible. (Get the picture)

    I was lucky. I had insurance through work that allowed me to seek all the medical help I needed. Many are not able to do that due to cost restraints. But it is probably the biggest factor, along with sending in ALL medical reports and doctor's notes.

    I also want to say that going on SSDI is not always the answer. It is extremely difficult, if not impossible, to get any insurance coverage (unless you are covered under your husband's plan), and SSDI medicare does not kick in for 2 years after you are approved. So no medical coverage for 2 years.

    This was an immense problem for me....no one would cover me since I was disabled, and I am still waiting, with no ins. coverage...praying to make it to the 2 year mark.

    Also, there is a great emotional let-down for many of us when officially known as "disabled". Something I never in my life wanted, and I HATE being so dependent on others, much less being "labeled" as such.

    Best of luck to you.


    [This Message was Edited on 06/21/2008]
  6. marti_zavala

    marti_zavala Member

    Jole wrote:
    "I also want to say that going on SSDI is not always the answer. It is extremely difficult, if not impossible, to get any insurance coverage (unless you are covered under your husband's plan), and SSDI medicare does not kick in for 2 years after you are approved. So no medical coverage for 2 years.

    This was an immense problem for me....no one would cover me since I was disabled, and I am still waiting, with no ins. coverage...praying to make it to the 2 year mark."

    Hi, Jole,
    Thank you for a great post. It is very informative.

    Just a reminder to those who are in the process of waiting. The two year wait is from the date THEY determine you were disabled. If you have had to go through appeals, and they use a prior date, you may have already met the 2 year waiting rule or most of it.

    When I was approved, I only had to wait 5 months of the 2 year period. I also was approved without a lawyer or Allsup. My experience is in the Social Security post at the top of each page.

    I had several diagnosis and no doctor's letter or report or support. I think the neuropsych test which include the hand grip test was a big part - the Department of Rehabilitative and Assistive Services were the ones that sent me to the neuropsych.

    Marti

    Marti



    [This Message was Edited on 06/21/2008]
  7. Cinderbug

    Cinderbug New Member

    I listed all the dxs my doctor gave me but it was in the reconsideration phase that they sent me to their mental health doctor.

    I feel very sure it was on her recommendation that I was approved 9 months after I first applied.

    I did have a note from my doctor mentioning CFS, FMS and panic disorder.

    I probably was approved on the panic disorder , they didn't really say. When the SSDI doctor asked me why I couldn't work, I feel she took my reasons very seriously.

    So maybe I would have gotten it even without my own doctor, I don't know though.

    Good Luck,

    Cindy


    [This Message was Edited on 06/21/2008]
  8. kking0412

    kking0412 New Member

    get letters from all of your doctors is you can. it will probably cost a little extra money but will also prove to be worth it. I expect if anyone ever gets around to looking at my case file, the last letter from Dr Brewer will make a big difference. IF anyone ever looks at it!(bitter? me?)