First off, Let me give some background. I've been diagnosed with CFS now for roughly 7 years. I've had some better times then others, but have not been ever 'right'. Onset originally was immediately after a required MMR vaccine so I could enter college. Up to that point, I was a healthy individual who never had any severe problems - basically the typical rural healthy&fit farmboy. I kept getting sicker and sicker and barely made it through two semesters of college. Back in Dec of 2007 I was tested for and found to have Mycoplasma. Since then, I've been treated for it, but in all honesty, in a erratic and haphazard mannor. Erythromycin, Doxycycline, and most recently zithromax. They may have helped, but I'm really unsure in the long-term. I had seemed to be better last year, but any gains I made were lost when this spring when I had a outbreak of shingles. I was put on Famvir. It eventually cleared up the shingles, but seemed to aggravate the mycoplasma. Mycoplasma was actually better under control with shingles raging and the 'chicken pox bumps' on my arms. Trying the treatments for the mycoplasma after the shingles have resulted in no improvement. At this point my doctor(s) seem to not know how to proceed and seem hesitant to try some of the now more recognised-as-needed longer-term treatments for mycoplasma. I'm sorry, but 5 days of IV treatment or 14 day cycles of doxy or azithromycin isn't going to cut it at this point in my opinion considering how I have not responded well to that approach in the past. Thoughts have been thrown around that I should consider the Cheney clinic, or Dr. Lerner. Problem is, from what I understand, those clinics like to start at ground zero and not pick-up on my current treatments. I do not have the $10,000+ to throw around on starting at ground zero paying for tests and such I have already had done. Bottom line. I know this is all a gray area, but there has to be a doctor out there fimilliar with treating Mycoplasma that isn't afraid to try treatments to combat it head-on, more along the lines of what Dr. Garth Nicolson in Calif preaches (too bad his group does not see patients outside of studies), but without the absolutely absurd upfront consulting 'fee'. My insurance likely won't cover the doctor himself, I realise that. Paying several hundred or a thousand or two would be do-able. It's likely my insurance would cover the meds and/or treatment, if the doctor was willing to work toward those paramaters not just say 'pay for it all up front, take it or leave it'. Any suggestions on any current doctors or clinics around the country that are familiar with treating mycoplasma in a CFS context, but are more rational in working within insurance and other parameters? Thank You.