Thyroid and FMS

Discussion in 'Fibromyalgia Main Forum' started by Copper2002, Sep 20, 2002.

  1. Copper2002

    Copper2002 New Member

    Hi all,

    I know alot of folks take thyroid meds when their tests actually came out the low side of normal. My recent tests are showing the same thing, and I am looking for discussion info about its correlation to FMS. I'll be discussing this with my dr. on Monday, and I'm not very clear on the low-normal thyroid connection/treatment for FMSers.

    thanks for any help,
    Copper
    Let Miracles Replace all Grievances
  2. Copper2002

    Copper2002 New Member

    Hi all,

    I know alot of folks take thyroid meds when their tests actually came out the low side of normal. My recent tests are showing the same thing, and I am looking for discussion info about its correlation to FMS. I'll be discussing this with my dr. on Monday, and I'm not very clear on the low-normal thyroid connection/treatment for FMSers.

    thanks for any help,
    Copper
    Let Miracles Replace all Grievances
  3. AnnetteP

    AnnetteP New Member

    Here are a couple of links for you:

    http://www.drlowe.com/sitemap.htm

    http://thyroid.about.com/mbody.htm

    You might also wanna do a search in the library here. I know Dr. T's book mentions something on this subject, and its possible they have that in the library, along with other information on various thyroid tests/values.

    Hope this helps,
    Annette





  4. JP

    JP New Member

    Hello Copper,

    My tests were on the low side of normal as well. However, my doctor also tested for antithyroid antibodies. This test revealed that I have Hashimoto's Thyroid disease. It is an autoimmune thyroid disease. I also have a positive ANA of 1:320...not sure what it means at this point.

    Take care,
    Jan
  5. ssMarilyn

    ssMarilyn New Member

    I tested on the low end of normal for the thyroid test, so went to a specialist, since my GP was a dunce about this. The endoc upped my synthroid dosage and within 2 weeks, all my pain was gone, fog was gone and I had energy to burn! I have so much enthusiasm now that I can hardly STAND myself!

    Marilyn :)
  6. Mikie

    Mikie Moderator

    My test have always been in the normal range, but my doc was willing to try it. I'm only on .25 mcgs. of Synthroid but I think it is helping. I'm still testing normal.

    Some believe that blood levels of the hormone do not paint the whole picture. We can make adequate thyroid, but can't utilize it effectively.

    Love, Mikie
  7. crickett

    crickett New Member

    I tried telling my Dr. for a long time that people with FM can have normal thyroid test results, but really need thyroid replacement. He finally did some investigating on his own and came up with the brillant idea that I was right! But,he tried to make me think it was his idea in the first place. Pretty sneaky huh!! Good luck and be persistant. Unfortunenatly (spelling) I haven't had the improvemnts that I hoped for.

    [This Message was Edited on 09/21/2002]
  8. JaciBart

    JaciBart Member

    Mine was just borderline low, on the low end of normal, Doc put me on 50mcg of levoxyl, has anyone else here had it adjusted up just a bit & had success???

    I upped mine by 25% yesterday and last night in my sleep I was actually talking in my sleep, my husband thougth I was having a nightmare but it was not.....I woke myslef up, I think maybe that was a deeper sleep than I normally get, could that be the stage 4 sleep we all are missing, normally I do not have dreams or talk in my sleep. Hoping this is it.

    I also awoke with considerable less pain in neck, but I have recently started on ultram, took last does last night at 8 pm, unsure of why less pain but did 25% more levoxyl again this am.
    Jaci
  9. ssMarilyn

    ssMarilyn New Member

    After my endoc upped my Synthroid from 150 to 175, within a week or so I was hitting that deep sleep stage and I hadn't done that in several years. I sleep like a rock now and it's wonderful. I know it has to be the thyroid hormone, because things changed too fast here.

    For everyone's info, it can take up to a couple of months to see improvements from a thyroid hormone, so be patient! Some of us see improvements sooner, but most don't. Also, be sure to take your thyroid med ONE HOUR before eating breakfast. If you take it with food, it doesn't work, and you also can't take a calcium supplement for at least FOUR hours after you've taken your thyroid med. (soy products are out of the question too!) Calcium and soy products inhibit the thyroid meds actions. SO if you're not seeing any improvement a few weeks after taking thyroid hormones, it might be that you're not taking them correctly.

    Marilyn :)
  10. saffie02

    saffie02 New Member

    hi cooper, i also have a low thyroid . i havnt been told of any connectionvut i do feel better after taking the med for about 3 months.i have nerve damage in my l.leg because my thyroid was low and i did not know it. sherri
  11. JaciBart

    JaciBart Member

    I just talked to my Mom in law and we were discussing thyroid, she also had just upped hers, from 100 mcg to 150. She has polymyalgia rheumatica, is on prednisone. She too thinks she feels better, I went w/o my thyroid med a few weeks ago and I was an emotional mess by afternoon. Never again!

    Jaci
  12. ssMarilyn

    ssMarilyn New Member

    I have been on thyroid hormone since the early 90's and have researched this subject extensively. I have never heard of a low thyroid affecting nerves....who told you this and is there any written documentation?

    Marilyn :)
  13. kadywill

    kadywill New Member

    a couple of months ago. I was on a small dose for Hypothyroidism. My range is chronically low, but I never made any connection to my sleep or pain patterns until I read this! My pain is MUCH, MUCH worse since then. I am so dense!!!!!! (I'm a nurse, too!) Every once in a while when I feel totally out of control in my life, I stop all my meds as I did recently. I don't know why I stop ALL of them, though! I stopped antidepressants and some high BP meds and some pain meds....I am back on my Ultram, Diovan (for BP) and Soma now and I am taking numerous supplements. I think I didn't need so many antihypertensive meds, but the Thyroid appears to be a "must" according to this thread! I'll think about restarting it!
    Thanks!
    Kady
  14. JaciBart

    JaciBart Member

    and sleeping much better.
    Apparantly it is more important than we know!

    Jaci
  15. klutzo

    klutzo New Member

    I have low end of normal thyroid results and was part of a small study here putting FMS patients on Synthroid even though their results were low normal. I stopped after a week because it caused such awful tachycardia that I could not sleep at all or even walk to the mailbox. This means it was too much for me, doesn't it? I guess sometimes low-normal really is within normal. BTW, the anti-thyroid antibody test was run and it was normal.
    I'm so glad this is helping so many of you.
    Klutzo
  16. ssMarilyn

    ssMarilyn New Member

    You BET your thyroid meds are important!! You absolutely cannot ever stop taking them. The thyroid is the thermostat/gas pedal for the entire body and if it's running "slow/low" then everything in your system slows down and you can also gain weight. I had a lot of depression, was cold all the time, had anxiety/panic, hair didn't grow, couldn't sleep and much more! I would just curl up and die if I didn't have my Synthroid. This is the ONLY prescription drug I take. I take Tylenol on occasion, but not very often. Never, EVER stop your thyroid meds...it'll just make everything else WORSE!!

    Marilyn :)
  17. krisiee

    krisiee Member

    I am the prime example of not taking synthyroid probably, and I am a phamacy tech. For the longest time i have been taking it without enough time between when I take it and eating breakfast. I am on the 75's and now with all of your advice I might have it upped if after a few weeks of taking it properly I still see no improvements. So hopefully I will see an improvement.
  18. Copper2002

    Copper2002 New Member

    Hi all,

    great info. Thanks! still waiting for the docs' call, but I can at least let him know this is a common happening.

    I'm too short-memoried :)p , duh! ya think?) to remember who posted the thyroid links, but these sure led me to a wealth of information! muchas, muchas, gracias! I'll be discussing Dr. Lowe's theories with my doc. Thanks, again.

    Keep the thread rolling, we obviously have lots of info and questions to share on this subject.

    peace,
    Copper
    Let Miracles Replace all Grievances