Thyroid Goiter AGAIN

Discussion in 'Chit Chat' started by elliespad, Jun 13, 2007.

  1. elliespad

    elliespad Member

    About 12 or 13 years ago had R-Thyoidecomy for large Goiter, about the size of a small orange. Was large enough to cause Trachael Obstruction. So,,,

    Been having severe Thyroid symptoms, chest pain, bursting feeling in chest, tachycardia (not controlled by beta blockers - odd), shortness of breath, fullness in throat, was admitted to hospital few weeks ago, did their usual cardiac test, showed I had PVC (something like that) every 6 or 7 beats.

    So, I followup with my PCP, he checks Thyroid levels and order CT Scan of NECK and Chest(Mine grows WAY below my collarbone). Went in for results Monday, says I have to have it out, pretty much NOW. I don't like that option.

    So, got an appointment the next day (Tuesday, yesterday) with my FFC doctor, as he is brave enough to treat with hormones. He feels it is NOT large enough to cause obstruction (is 3.5 cm x 4.0 cm) on left side. Levels were in normal range, so he doesn't think the extreme symptoms are necessarily coming from Thyroid.

    Adjusted a few hormones, and recommending I see a Pulmonologist for a PEP Test. Some sort of specialized test which can determine how oxygen is being utilized, and if shortness of breath is coming from thyroid, or muscles, or heart, or lung issue.

    So, here we go some more, another wild goose chase. I want to avoid surgery but I also like to breath.

    For now, I plan to followup with the Surgical Consult so I have my ducks in a row, in case I need it out despite my best efforts.

    Please feel free to pray for me, for guidance and healing.
  2. mujuer

    mujuer New Member

    but have alot smaller nodules on mine. I am on synthroid to keep it from growing. I just had another ultrasound and it was still the same so I think the synthroid helps.

    Sorry to hear that you have to have another surgery. They must have left some of your Thyroid to have it grow again. I have breathing problems sometimes to and have had two pulmonary test done and they showed nothing. I will pray for you and hope you have a speedy recovery. P
  3. fivesue

    fivesue New Member

    What a drag...! Will pray for a quick solution...just what you need, huH/

    So sorry...

  4. rockgor

    rockgor Well-Known Member

    Sorry to hear the news. Hope it's not a wild goose chase.

  5. ckball

    ckball New Member

    Been there done that. I had 3/4 of my thyroid and large goiter removed when I was 15. When I was 25 I went from 130 pounds to 89 in 3 months. Hadn't changed anything. I had Graves disease in the remaining thyroid.

    I had to do the radiation therapy and now I take synthyroid. I understanding not wanting to have surgery, some Drs are knife happy, but maybe get a second opinion.

    When I lived in VA, a freind of mine had thryroid cancer, she did recover and was fine for a couple of years then had heart problems and died.

    My thoughts and prayers are with you-Carla
  6. joyfully

    joyfully New Member

    Hi. I noticed your title and clicked onto your message.

    This may or may not be relevant.

    Beginning about 6 weeks ago, I suddenly began having very sharp pains in center of chest and on the lower right ribs. I also was having skipped beats with my heart; I've been on a beta blocker (Inderal) for decades. This ALWAYS worked to stop these skipped and irregular beats.

    Oh, and my blood pressure started fluctuating all over the place. Nothing made any sense. My thyroid levels were the bottom range of "normal".

    I had numerous cardiac tests; all came up normal. I then saw my gasteroenterologist because I was facing thyroid surgery and thought I had an ulcer.

    Long story, I know---

    Well, he told me that the irregular heart beats, the fullness in the chest, the tightness in the chest, the breathlessness, the sharp pains in chest and under rib cage
    WERE ALL DUE TO MUSCLE SPASMS! My gastroenterologist told me that there is a place where the nerve bundles from the heart and some of the digestive tract come very close together and the nerve impulse signal was crossing over to my heart. I must have rolled my eyes because he could see I thought his explanation couldn't be right. (We bet a home made chocolate cake on this!)

    He ordered dicyclomine 20 mg. (generic of bentyl).

    ALL of the goofy symptoms and pain stopped completely within about 3 days of starting this medication. Oh, I'm also on Protonix (one each morning about half hour before eating).

    I wouldn't have believed muscle spasms in digestive tract and diaphragm could possibly cause that much trouble with my heart. The cardiologist's office didn't recognize this as the culprit when I went 2 times there.

    I'm still a bit surprised by an antispasmodic stopping all this acute sharp pain and heart involvement.

    In the middle of all of this, I found out I had thyroid cancer (surgery was 2 weeks ago). I'm sooooooooooooooooooo glad that the gastro doctor diagnosed and resolved the pain issue before I had to have the thyroid surgery.

    I saw about 5 specialists within a 3 week period trying to determine the origin for all this pain and heart involvement. One of the tests involved my esophagus. THAT is how the tumors were discovered in the thyroid. One thing led to another ----and I found out that I had to have the remaining L. side of my thyroid gland removed.

    I'm wondering if YOUR chest pain, heart irregular beats, tightness, etc. is also associated with muscle spasms????