Time to Vote on Videos for PSA

Discussion in 'Fibromyalgia Main Forum' started by UsedtobePerkyTina, Apr 13, 2011.

  1. UsedtobePerkyTina

    UsedtobePerkyTina New Member

    Time to have your say. PSAs were offered for patient feedback recently. The designers took that feedback, made a few changes and have offered their final versions.

    Please vote on which public service announcement you want to be aired in May for ME/CFS Awareness month.

    View PSA #1 Hallmark here: http://www.youtube.com/watch?v=rcPkcg9Rj-w

    View PSA #2 Serious here: http://www.youtube.com/watch?v=x07VKqkBhzg

    View PSA #3 Prevalent here: http://www.youtube.com/watch?v=ik-FeVruYWg&feature=channel_video_title

    View PSA #4 Whirlwind here: http://www.youtube.com/watch?v=g3j2mEeiTVM

    To take the survey, please go here:


    The winning designer will received $400 from the MCWPA donations. An anonymous donor has also offered to give $100 to the winner's favorite charity. The second place winner will receive $200 and the third place winner will receive $100.

    Voting ends on April 18 at midnight EST. Please share this through your facebook account and forward to all other ME/CFS patients and their families.

    We also are asking people to help in distributing these PSAs to local news media. Please e-mail volunteers@mcwpa.org to help.
  2. mbofov

    mbofov Active Member

    I voted for the 3rd one - I liked the 3rd and 4th ones the best. My only comment was that I wished they had spelled out what ME/CFS stood for - chronic fatigue syndrome, as much of the general public has heard of chronic fatigue syndrome, but I think most won't have a clue as to what ME/CFS stands for. And I'm sorry I didn't take the time to look at these in the earlier stages when you were asking for input.

    Thanks for all your work!

  3. UsedtobePerkyTina

    UsedtobePerkyTina New Member

    Mary, that was a tough decision. This was discussed. The designers had very little space/ time. If they put in the whole "myalgic encephalomyelitis / chronic fatigue syndrome" then a precious two seconds would have been lost because they would have had to have left it up there long enough for people to read it. And let's face it, "myalgic encephalomyelitis" is so hard and complicated, the viewer would have gotten stuck on those two words alone.

    Plus, we continually hear that patients don't like the word "fatigue". The NIH is now using ME/CFS, so that serves both purposes, short and doesn't carry the baggage.

    It's about rebranding. And to rebrand, you got to use the new term. Now, the whole point of this is to create news coverage.

    So, in the interview, we can explain. And in press release, we can explain.

    There is the website address. So they can see more there.

    It was tough. Many things to consider. Hard to get all that needs to be said in 30 seconds.
  4. mbofov

    mbofov Active Member

    Those are all really good points and totally make sense. Also, I didn't realize the NIH is now using ME/CFS - amazing.

    You guys did a really good job!

  5. UsedtobePerkyTina

    UsedtobePerkyTina New Member

    Just over 24 hours left to vote. So don't let the deadline slip up on you.


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