Discussion in 'Fibromyalgia Main Forum' started by twitcher, Sep 10, 2006.

  1. twitcher

    twitcher New Member

    I'm having tingling, numb feelings on the whole left side of my body. I've had this before. I have a lot of pain too....neck, shoulder blade, rib, hip, arm. I have the pain on both sides buy much worse on the left. MS has been ruled out by 3 neuro's and an MS specialist. Is this consistent with fibro. I've been diagnosed with fibro.
  2. sweetpeafabrics

    sweetpeafabrics New Member

    I have tingling quite a lot in my legs and wrists. I have quite a lot in my hips too and neck. somedays it is worse that others. keep a diary of what you do and if it makes it worse this might help keep it to a minimum
  3. Hope4Sofia

    Hope4Sofia New Member

    I believe you can still have some form of neuropathy without having MS. What tests have you had done?

  4. twitcher

    twitcher New Member

    MRI's of brain (twice), cervical spine (twice), thoracic and lumbar spine, EMG, evoked potentials, spinal tap...all normal.
  5. rachel432

    rachel432 New Member

    i've had numbness and timgling in my fingers and in spots on my legs for yrs now. my dr's also ruled out ms. also it seems like my arms and hands fall asleep very easy from just the slightest amount of pressure on them. it must ne an fm thing as i have no other explaination for it.
  6. Leaknits

    Leaknits New Member

    Sometimes for days/weeks on end, I get sort of "electrical" buzzing/tingling that starts at the back of my neck, goes across shoulders, down both arms and to my hands & fingers.

    Then out of nowhere I will notice it has stopped.

    Here, finally, comes the question:
    Is this buzzing that feels like I stuck my finger in a light socket a part of fibro, myalgic encephalomyelitis, BOTH, OMG, or none?

    I already asked my medical dr and he didn't have any answer so I'm now here asking the real experts!

  7. FriendonthePath

    FriendonthePath New Member

    On the one hand my fibro pain has lessened (yay!)but on the other hand the tingling that I only felt in my hands has spread to my buttocks and down my legs to my feet. The other day the skin on my right leg hurt to the touch.

    If you look up the symptoms for Fibromyalgia tingles, pins and needles and skin pain are all there. For some reason, these sypmtoms scare me more than the others.
  8. jeffmarathon

    jeffmarathon New Member

    I am having the same tingling now in back of my head to the upper part of my neck. I went to my military neurology and think it is in my head. I also get it from time to time in my finger tips. I am new with CFS it seem like I am at the end of my rope.
  9. twitcher

    twitcher New Member

    I have lots of pain but I can just ignore it because the neuro symptoms consume me.
  10. FriendonthePath

    FriendonthePath New Member

    Have you tried magnesium?
  11. buddyJ

    buddyJ New Member

    I've CFS and the tingling/buzzing/numb thing as well, AND no MS. I've tried various MS meds and also Magnesium. None of it helped. Now I just do my best to sort of ignore it, and do what I have to, and try to live well.
  12. jeffmarathon

    jeffmarathon New Member

    They given me so many different drugs. They are now trying XYREM which gives me bad dreams.
  13. FriendonthePath

    FriendonthePath New Member

    I'm just one big tingle today. It feels like I'm sitting on a vibrating chair. My feet are buzzing. The skin on my arms and right hand feels like someone has spread novocaine (sp?) on it.

    Magnesium seems to stop eye twitches for me, but is not really aiding this tingling which has now gone on for a week.

    If you're tingling today, know that you're not alone :)
  14. Abbycat

    Abbycat New Member

    I haven't had all the tests but have a similar problem. Twitching and numbness, though not as severe as you. I've been prescribed Lyrica for "nerve pain" and it does help, but not enough.

    My problem started as shoulder to fingertips numbness and pins and needles feeling. Diagnosed with RA, I was sent to all the docs and came out with a fibro diagnosis besides.

    Are you left handed? Just wondering why your left side was more effected.

    Where is your pain the worst? Shoulder blade pain is my personal hell. What about hips? I have pain on the side of my hips, not where joint pain should be, but so sensitive to the touch that I will hit you if you touch there.

    Have you looked into myofacial pain syndrome? If you put "trigger points" into your search you will find a few very good sites. See if this fits you. I have found unexpected relief while waiting for a drug that worked for me.

    I hope this helps, have more to say on the subject, but too tired.

  15. FriendonthePath

    FriendonthePath New Member

    I went back to Fibromyalgia and Chronic Myofascial Pain Syndrome by Devin Starlanyl and found these symptoms under her section on REactive Hypoglycemia and Insulin Resistance. If the tingling is due to Hypoglycemia, it will disappear within 5-10 minutes of eating sugar.

    Worth a try.