Tinnitis Anyone?

Discussion in 'Fibromyalgia Main Forum' started by littleleafhopper, Aug 22, 2006.

  1. littleleafhopper

    littleleafhopper New Member

    Hi to all ,

    I'm just picking one of the really bothersome symptoms to post about. Have any of you with that constant ringing in your ears been able to get rid of it? If so how? I'd really like to hear Ha! any suggestions.

    Thanks!
  2. Windytalker

    Windytalker Member

    Do a search here on the board. This topic has come up in the past and I believe there's some advice in the responses.

    Mine comes and goes...seems to be worse when I'm stressed and overtired.
  3. littleleafhopper

    littleleafhopper New Member

    Good idea! I'll start a search.....
  4. Granniluvsu

    Granniluvsu Well-Known Member

    Hi Littleleafhopper ( cute name),

    Glad you started this thread ! I was thinking about posting about this, another one of my most aggravating symptoms besides the PAIN !!!!! Alot of the pain is in my head and neck and when I press on parts of my head I can hear it louder or differently. I feel like there is a pressure in my head somehow.

    My PT even tried a few things on me that did not work !! I have had this for years. I was finally dxed with FM and CMP and it only took over 20 years to do so -good grief ! She did mention getting my hearing checked which probably a good idea. However, I doubt if that would help my tinnitis.

    PLEASE, if anyone can find anything on this please post any ideas on help you might have gotten.

    Go to work everyone !!!

    Blessings to all,

    Granniluvsu (Marilyn)

  5. Fudge43

    Fudge43 New Member

    Ok ... if there is anyone else out there with this weird conclusion .. I have tinnittus in my right ear .. sometimes the "noise" drifts to the back of my head so it sounds like stero cicadas WHINING .. lovely eh ?
    But... the WEIRD thing is .. my hearing is better in the AFFECTED ear than my "good" noiseless ear ... now how is that for a dose of " wonderful, now what ???"
    Joy
  6. jarjar

    jarjar New Member

    It is caused by cell wall defecient bacteria. It is very common with this disease. You might want to look at the marshall protocol.
    J
  7. LittleBluestem

    LittleBluestem New Member

    The reason for getting your ‘hearing tested’ is to get checked for tumors that are a rare cause of tinnitus.
    [This Message was Edited on 08/23/2006]
  8. Barbie56

    Barbie56 New Member

    Yes, I got it about 6 years ago after a bad infection in my ears. It was so bad I thought I could not live with it. My brother and sister in law have it to. Everyone hears something different . Mine sounds like little bugs. It always gets worst when stressed or if I have a cold. I was so upset because I was told that there is no cure. But my doctor said it is true but there is treatment. The Tinnitis Association is the first place to start. They are a great help and so many treatment centers out there. Believe it or not, you will learn to live with it because your brain will start tuning it out. After a while you won't notice it so much. Hope this helps..Barb
  9. greatgran

    greatgran Member

    Since I have had CFIDS, Fibro have had tinnitis 24/7..When I am tired or in a crash it is much worse..I have ask the doctors, ENT and all the others but have gotten no answers..My PCP thinks its just part of this DD...No answers but sure can relate...

    Oh, have had it for five years....greatgran
  10. charlenef

    charlenef New Member

    and hyperacusis(hearring too loud) you can go to hyperacusis network they sell a pink noise cd that you can lisen to and in about 12 months it gets rid of the ringing it cost 15.00 good luck charlene
  11. charlenef

    charlenef New Member

  12. Granniluvsu

    Granniluvsu Well-Known Member

    It's me again that granni,

    Are any of you who have tinnitis also able to hear your pulse in your head, along with the actual tinnitis? I have had this for years. It almost feels like I have pressure in my head or something but no one seems be bothered by it when I mention it to docs or PT's.

    If so any ideas on minimizing or getting rid of it? Nothing like one dumb symptom after another. Good grief !!

    Soft hugs and blessings,

    Granniluvsu (Marilyn)
  13. Michelle_NZ

    Michelle_NZ New Member

    Yes, I've just started noticing that I have ringing in my ears, but I've been getting these strange clicks and squelching noises on and off too. I think I will go to see and ENT specialist

    Marilyn - I can also hear my pulse in my head. Not every day, but on days that I can, I generally feel much worse. I've been using a system that enables me to record heart rhythms, and when my pulse is like this, my heart rhythms are very erratic. THis is a sisng that your nervous system in not coping very well and is not synchronised with the rest of your body.

    Take care
    Michelle
  14. lillyrose33

    lillyrose33 New Member

    Yes, I have it but the ENT told me it is Menieres Disease.
    It is driving me crazy all the different sounds. I here buzzing, ringing, swishing, and all kind of different sounds. Sometimes it is not as noticable but when it is quite or,I am in a room of people the sounds get worse. If the fibro wasn't enough now this.

    Lillyrose
  15. ANNXYZ

    ANNXYZ New Member

    and it DOES go with the disease . I have become more tolerant of it as the CFIDS seems to overshadow it
    and be the worst problem .