tinnitus with fibro/fatigue anyone?

Discussion in 'Fibromyalgia Main Forum' started by grace54, Jan 15, 2007.

  1. grace54

    grace54 New Member

    Seeems to get worse when I have allergies or sinus pressure. I wish I knew how to stop it as it drives me nuts and creates anxiety.I can get it to change volume with a loud noise near my ear such as a hair dryer. DR's say live with it. I have researched it but found nothing that helps. I see there are products to stop it but I am skeptical and have thrown money at enough things that don't work.

    I used to enjoy the silence but it has been years now since I have enjoyed it for more than a few days at a time.I have been able to accept many things with fibro/fatigue but this one still gets to me. Anyone else?
  2. wish_to_be_healthy

    wish_to_be_healthy New Member

    It was one of the 1st symtpoms I got...It used to drive me nuts...then I slept with a fan on...then as my sleep got worse, I started using ear plugs, and that makes it LOUDER...so I just ignore it.

    At night I do this to minamize the ringing bothering me as much:

    I take my sleep meds, then when the kick in, I put the TV on sleep timer on a music channel, and turn down the light on my TV...when I have caught myself drifting off, then I put them in, (my ear plugs) when I wake up, and quickly slide back into sleep.

    If I put them in when I am too awake, the ringing bothers me.

    I don't know of anything that helps it...it's like the floaters I have in my line of vision...they showed up at about the same time as the tinnitus...drove me bonkers 20 yrs ago...I ignore it now.

    Suz
  3. jesuslovesu

    jesuslovesu New Member

    that you never wake up from i have had it for a while now and nothing helps there are lots of things that make it worse of course but i can't find anything to improve it and for someone to sit and tell me " you just have to live with it" until they have been there they have no idea. the day an ENT told me that their was this buzzing noise outside the exam room and he kept looking around trying to figure out where it was coming from and finally got up to see what it was because he said "my gosh that noise is killing me"!!! i was like oh really can you imagine hearing that all of the time and he kind of laughed it off tinnitus is NO laughing matter.........sorry i have to vent this is one of my worse symptoms it drives me crazy.
  4. grace54

    grace54 New Member

    Thanks for your replies. I don't hear much about it on here and was starting to think I was alone with it.

    Yes it is my worst symtom also as I can treat or bare with most everything but there is nothing to help with this. I think it is good to talk about it as its one of those things people don't understand until you experience it.

    Some people can't cope with it. I read of DR who couldn't deal with it. I do pray and meditate for the anxiety relief. There are wonderful days that I jump in bed and realise there is no buzzing,whirring or high pitched sound and I say thank you God.

    I also remind myself that the suffering we all share is time limited and many days I have to start over and stop the negative thoughts and count my blessings. One day at a time is all I can handle with these DD"s. My hope is that we all find peace and comfort asap:)
  5. lillyrose33

    lillyrose33 New Member

    I have this also and sometimes I feel like I am going crazy. The sounds get so bad that I feel like I am just going to loose it.
    I have seen two ENT's and they say there is noting they can do. I am loosing my hearing on my left side and all of this has changed my life. I was diagnosed with Meniere's and there is no cure just like the fibro you have to learn to live with it.
    I do a lot of praying and my family are very helpful but it gets to you after awhile.
    One day I want to wake up and there are no sounds in my ears and head and my body doesn't hurt almost at every spot...I can dream can't I well, I would if I could sleep.

    Lillyrose
  6. littlebrownwren

    littlebrownwren New Member

    Have had this for yrs. I hate it.

    I recently learned antibiotics can make it worse, as if I needed to know that. Just had 5 rounds of antibiotics in the hospital. My TV has since been turned up a notch to cover the ringing sound and it's not working.

    I also learned that heavy doses of antibiotics can cause permanent hearing loss.

    So you have a sympathizer here.

    Wren.
  7. grace54

    grace54 New Member

  8. jarjar

    jarjar New Member

    Along with other cfs/fm symptoms is a red flag for Lyme disease. You might want to have an Igenex Western Blot test taken to rule it out.

    Jar
  9. apl

    apl New Member

    I've had this since 2002, NONSTOP. It started befre I got really sick with FMS and CFS in 2005. I had my hearing checked and all was fine with that - no hearing damage. Just incessant ringing.

    Someone else mentioned this starting along with "floaters" - similar with me. I got a black spot in my left eye about a year after the tinnitus, right in the middle of my field of vision. Luckily it is small. I also have other larger spots in my peripheral vision that came later.

    I wish I had a cure to tell you about, or something to alleviate it a bit, but so far the only way I can deal with it is to have a radio going at all times, and at night I also turn on an air purifier or a white noise machine to drown out the ringing a bit.
  10. apl

    apl New Member

    Tinnitus is a symptom that is listed for all of these illnesses.

    Someone mentioned that it's a good idea to get the more accurate test for Lyme to rule that out. I agree.
    That is a good idea whether you have tinnutus or not. Lyme shares many similar symptoms with CFS and FMS.

    I have yet to get that test myself, but I am currently looking for a Lyme and CFS-literate doctor/infectious disease specialist in town. So far I haven't been able to find one in Columbus, OH.
  11. grace54

    grace54 New Member

    That is interesting, the Lyme connection. I went to the FFC and asked the DR if she suspected Lyme and she said no so no additional tests were done. Now I'm wondering again as my health hasn't improved much with their treatments. I guess I will research Lyme now. Thanks all:)
  12. jarjar

    jarjar New Member

    Talking about floaters and tinnitus....these are both major lyme symptoms! Please look up the Igenex site and have a Western blot test mailed to your house.

    Have you doctor request the test. Other lyme test may miss 50 percent of lyme.

    I was misdiagnosed for ages and always said no way do I have lyme only to find out that I did.

    J
  13. LittleBluestem

    LittleBluestem New Member

    I find that Ginkgo Biloba, 60 mg. twice a day, reduces the volume of my tinnitus. I also take MSM to keep my allergies at a low level. That probably helps my tinnitus indirectly.
  14. grace54

    grace54 New Member

    I had heard of this and tried it one time but not very long. I will try it seriously and I already take MSM so maybe I'Ll up it a bit. Its amazing how bad I got yesterday as I was so tired. I had a full orchestra in my ear. I wonder what on earth could make it so bad when tired/ Thanks all
  15. grace54

    grace54 New Member

    I wonder if Tramadol has caused my tinnitus as thats the only pain med I take. I will research this, thanks
  16. Granniluvsu

    Granniluvsu Well-Known Member

    Grace and all,

    Yep ,me too. I have had it a long time along with all my other symptoms and pressure in my head. My Physical therapist even tried some of her tricks and unfortunatly they did not work. She said to get my hearing checked but I don't know what that would do except tell me that perhaps I can't hear as well with all the buzzing going on (-: !!

    Maybe that is also why I like some kind of noise going on all the time, radio, TV etc. Fortunatly,now that I am taking two meds at nite - gen. Flexaril and Klonopin that has helped me o sleep anyway.

    If anyone finds a cure PLEASE let me know. I just have gotten used to it like all my other horrible sympotoms (20-25 yrs or so). Just got dxed about 10 mo. ago with FM/CMPS. Don't you think it is about time ??

    Warm hugs to all,

    Granni (Marilyn)
  17. grace54

    grace54 New Member

    It seems that tinnitus was reported in less than 10% of tramadol users but I suppose I could be in that category.As someone said there are many drugs that can cause this and I would suspect that using many meds could contribute even more to the problem.

    Some things I read that helped some were melatonin,gabapentin,Ginko and various other herbal formulas. I hope we find something that helps.