Tips for Managing Daily Life

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by ProHealth, Jan 8, 2008.

  1. twinels2

    twinels2 New Member

    I have always suffered from a cluttered messy house. No matter how hard I tried I couldn't keep up. I could never understand how "normal" women did it and for me and my FMS it seemed impossible. I discovered flylady a few years ago and man has it ever helped me. She had given me a plan I can actually follow on most days. A routine and it is all about "baby" steps with her plan. She sends me emails and text reminders of the things I need to do each day. It helps me remember what I need to do an keeps me from overdoing. I also get emails with fun and happy testimonials that inspire me and make me laugh. If you go to her website flylady.net and check it out I am sure you will love her as much as I do. It is free to join and you are never obligated or even bugged to buy anything although I have bought several of her "cleaning" helpers. The rubba scrubba is a great tool that helps me do things my sometimes weak hand just couldn't do otherwise.
    I just want to thank you all for sharing and being here. This is my first post and since I been in a recent flare I need the extra support and understanding only fellow fibromites can give.
    lots of love,
    Sharon
  2. patchesofsunshine

    patchesofsunshine New Member

  3. ilovepink4

    ilovepink4 Member

    I buy one every year. It is about 5" x 11"I get the Daily/Monthly Planner...it is $18.95 plus S& H and it is worth every penny! I have been using these for about 5 years now. I started because I would forget if I had taken my Medicine or not...so I write down the time and what meds i took every time! I can take this to my doc appointments and have a very clear picture how things have been going by how much pain meds I take....

    i note the weather, etc that might make my FM worse
    I jot down TV shows that I want to remember to watch
    I write down the name of books I want to read
    i make a list of things to get done each day
    i use the address pages to write down phone numbers, passwords, the names of the neighbor kids that i always forget
    each page is just a place to write anything I want to remember now, or ahead of time

    there is a montly calendar page, too so you can jot down appointments and birthdays and be able to see the whole month at once...

    i tape online shopping coupons inside the front page
    the datebook almost takes the place of a journal!

    i also write down the name of movies that i want to add to netflix....when i start a movie, there are always previews of other movies, and i write them down in here

    I also have a blank journal that i divide into sections....i clip photos from catalogs of things i want to get but i don't want to keep the whole catalog....and if you are an online shopper, you get lots and lots of catalogs!

    when i pay the bills online, i write that down in the "BILLS" section....the date and the amount so I can tell at a glance whether I paid a bill or not...so i don't have to turn on the ocmputer and look it up....

    i have a section for gift ideas that i fill in as people mention things they would like.....i have a list of books to read....

    i have a Fibro Ideas section to write all the suggestions I hear here and everywhere!

    I use the journal for recording my passwords and usernames for online

    i also have a list of all my credit cards and the banks and phone numbers in case i lose them....

    at christmas time, i record everything I buy for everyone so I can keep track....

    this is a good place to write down your gifts and the names of the giver so you can write thank you notes....

    I also have pretty journal for each year to record our family and my activities each day....

    i have another journal for dreams and a place to vent when i get mad at someone or something.....

    and i have a certain kind of cool gel pens i like to write and doodle with!!! hee hee!
  4. brs

    brs New Member

    Pace, pace, pace. Set your boundaries. Learn to not care what other people think. Share your energy between two places: work, tasks that you 'must' do; rest until you feel as often as you can; the other place to spend your energy....seek out someone else that could use encouragement, even those that you may not know that they need anything - I have been spending time telling at least one person a day, how much they mean to me, and what good qualities I see in them. It is very therapeutic.

    I have a severe case of chronic fatigue, and have had it for so many years. If I leave the house to go somewhere, it is like preparing to go to the moon. I can barely breathe getting into the car. I do yoga breathing exercises and meditating. I have had to, long ago, get over the pride of not wanting to use a wheel chair.

    I pray more than I eat. I believe there is a purpose for this........as there is for everything under heaven. I research, research, research........document, read, touch base with others that suffer with CFS. I surround myself with my family and grandchildren. Grandchildren mostly bring out the endorphines and adrenaline that help me to get through about an hour of feeling almost human. I take many of the supplements that doctors recommend: Dr. Teitelbaum's book, "From Fatigued to Fantastic".......the title of the book, for me, is misleading. I have suffered with this for so long, and I haven't found 'fantastic' yet.

    My husband is my best support. From the beginning, I keep him informed of everything I come across. He has gone to all doctor appts. with me. He knows me and watches the reality of the illness just destroy the person that I have always been. I keep our daughters informed, as much as possible, of every piece of information that comes my way. They started out not being supportive at all. They are now a source of great support.

    Hope this helps.
  5. georgi

    georgi New Member

    Janalynn I was nodding the whole time reading your post cos it sounds exactly like how I live my life too! All those things... ALL of them; it could have been me writing that post and I really like it. The guilt part is REALLY hard isn't it! Glad to hear you're working hard on that and on choosing your attitude. I applaud you and hope today is a good one for you :) Georgie~
  6. briz1965

    briz1965 New Member

    i'm not the only one who tries to keep everything together. mt kids think i'm nuts but it really works soph
  7. charmed one

    charmed one New Member

    I am having more and more trouble getting through the day. I can honsetly say I love my job but its getting harder for me to want to go. everyday i have to force myself out of bed and to get ready. i feel like a 37 year old in a 90 year olds body. I know my husband tries to understand but he really doesnt. I told him i was going to rent a wheelchair when we go on vacation this year so i dont ruin anyones time but not being able to keep up and he looked at me like i was doing it to be lazy. its times like that where i know then he has no clue to how i feel. i have told him over and over and tried to explain it to him had him read up on it but still doesnt really understand. Im so glad there are people on here that really understand and if you want to chat with me more it fine with me! Thanks for listening to me rant!!! love and gentle hugs to all!!
  8. WHITEMAMA23455

    WHITEMAMA23455 New Member

    The tray is a good idea. I have been using a placemat as it is easier to clean than the floor. I also have found that using the small paper plates for the can food (small cans with pull tabs only) works for me. I dont have to wash the plates and if I cant bend all the way down, I can just drop it as close to the floor as I can get with the food already on it. I also have found the automatic litter boxes a life saver. I only have to change the container once a week or so instead of scooping several times a day. It was a little expensive but worth every penny.
  9. WHITEMAMA23455

    WHITEMAMA23455 New Member

    that coupled with trying to pick up or do something each time I get up, to get a drink or whatever, on a bad day is the only way my house stays liveable sometimes. I wish I could afford a housekeeper but with the cost of medication, there just isnt any left for convienience.
  10. nancyblake

    nancyblake New Member

    Use a wheelchair, have a recliner in every room, don't let anyone keep you standing, move heavy objects with your weight, not with your muscles, make sure your head is supported when you are sitting. I was able to manage a highly responsible post as Principal Officer Health while very ill, just by being completely ruthless about keeping physical exertion to a minimum. Leaned my head against a wall, or the arm of my wheelchair during meetings, wrote up reports lying down with a PC keyboard on my lap, kept a recliner in my office and lay back while making phone calls. I am not talking about an invalid life-style, I am talking about keeping oneself able to continue a relatively normal life by becoming an expert on limiting physical exertion to the necessary and unavoidable. A lover of dancing, I used to go to our local club in a wheelchair, get up for two dances, and get back in the wheelchair. And if people find your behaviour weird or embarrassing, let it be their problem, not yours.
  11. u&iraok

    u&iraok New Member

    I like your post, nancyblake!

    Learn how much energy you have for the week and don't go beyond that (the spoons). Doing too much can affect you in a negative way for many days. If you have to do something extra make up for it in another area. Don't pay attention to what others think--Healthy can never understand Sick. Don't put unnessesary demands on yourself about what you should be doing. Do only what you can and stick to that.

    Have a schedule and stick to it. I go grocery shopping once a week and if I forget something, too bad. It has to wait until next week.


    [This Message was Edited on 06/28/2010]
  12. ilovepink4

    ilovepink4 Member

    I sleep with a sleep mask on. It blocks the light during the daylight hours and it puts a soothing pressure on my eyes that helps me fall asleep.

    My noise reducing headphones- I wear them even if i am not listening to music or a movie. They reduce the noise in the house and the pressure on my head feels good. I don't know why. Makes me feel more calm. I am weird. I accept that.
  13. Fibrolady37

    Fibrolady37 New Member

    pace myself when im cleaning & i have plenty of rest lots of sit downs.
    Also this board is my god send & all my friends on here they have been for 13 years.
    My cat is my best friend & my companion he is always there for me he sits with me on my chair & i stroke him & i always talk to him animals are fantastic therapy for us & i never want to be with out him my gorgeous baby boy.
    Take care all.
    May god bless you & yours.
    Fibrolady37.
  14. Fibrolady37

    Fibrolady37 New Member

    Sharli,My boy friend snores very very loudly & it keeps me awake a lot so i bought ear plugs,
    Ive been going to sleep in my daughters bed if she is a her dads or on the sofa NO more,]In future i wake him & he goes on sofa!
    Some times the ear plugs work some times they dont.
    Fibrolady37.
  15. Fibrolady37

    Fibrolady37 New Member

    Sharli,My boy friend snores very very loudly & it keeps me awake a lot so i bought ear plugs,
    Ive been going to sleep in my daughters bed if she is a her dads or on the sofa NO more,]In future i wake him & he goes on sofa!
    Some times the ear plugs work some times they dont.
    Fibrolady37.
  16. GinnyB

    GinnyB New Member

    Rosie, I'm so sorry to hear about how bad you're feeling. I haven't been on my computer for most of the summer, so maybe you're doing a little better now. I hope so. I heard that water therapy is good for fibro, so my husband and I bought a spa. We put it on our credit card and didn't use the card for much of anything else, but it was worth all the skimping. I keep the water around 85 degrees in the summer, 95 or 100 in the winter. I can see the steam come up the minute I open the cover--which, to my relief isn't very heavy at all.

    Of course, this doesn't help much when I'm in the house. I get
    so cold when my husband and son need the heat, and so hot sweat runs off my forehead and drenches my hair when they need the air conditioning. I bought a personal fan for about $10 at Target, and have 3 throws in the living room. I even have to put my winter coat on under the throws sometimes!
    Have you had your thyroid tested? Mine always came back normal, but then I did some research and found that there are 3 thyroid hormones, but most doctors (including mine) only test for 2--TSH and C4. I asked my family doctor to test for T3, and sure enough it was very low and taking the C4 down a little with it. I don't know what the docs are going to do about it--they see their patients every 3 months and tell us to go to the ER if we absolutely can't stand it until then.

    Nevertheless, I have pretty good doctors. They're just overworked. But I had to hunt around for them. There was the doctor (at Johns Hopkins, of all places) who refused to give me any sleep medication--for 18 months! Then my asthma specialist tested me for sleep apnea--the docs woke me in the middle of the night to put the mask on me, said it was just too dangerous to let me go another 10 minutes without it. Never, never hesitate to change doctors, even good ones. The next one might prescribe just the right meds for you.

    A neurologist might be able to give you a medication that keeps your other meds from giving you shocks. Yes, I take meds to control the side effects of other meds. Fibromyalgia is a complicated disease. I just hope you've found some help for it, or that these suggestions help.

    Love, and gentle hugs, Ginny B

    PS--EVERYONE on this board has problems similar to yours.

    bump

  17. galpal

    galpal New Member

    I'm lucky because I have a doctor who believes in natural remedies in stead of drugs. I've been using Magnesium Oil for about 2 weeks and I see an improvement in my energy and blood pressure. I rub the oil on the back of my knees twice a day. I have taken magnesium by mouth in different forms but never saw such an immediate improvement. I bought the oil from my doctor. Also, I've been using Nattokinase Plus which has helped alot.
  18. wyndi

    wyndi New Member

    We even went to seperate bedrooms. I was still concerned about his sleep. Snoring is a problem of it's own to the snorer (?such a word?). We had insurance for a short time and had a sleep test done. He has a CPAP now and we both can sleep...same room too.
  19. Barry580

    Barry580 New Member

    Good for you. I use to have 2 dogs but I lost them about 4 years ago. They kept me company and upbeat and active taking care of them. I still try to stay as active as possible. I belong to the AmVets Auxilliary and our church, St. Patrick's which I am a member of the women's guild. I do try to stay busy along with my husband belonging to the AMVets and the Honor Guard. We have a small real estate company. We help people buy and sell homes and buy and sell businesses. The worst part of my FM is not being able to focus the way I use to. I'd rather take all the pain than have this problem with focusing. I find the more you tell the doctors, the more medicines they put you on and there are so many side effects as you know. I finding walking helps and hot showers. Nice chatting with you. Take care of yourself, Warm regards, Sheila
  20. Barry580

    Barry580 New Member

    Good for you. I use to have 2 dogs but I lost them about 4 years ago. They kept me company and upbeat and active taking care of them. I still try to stay as active as possible. I belong to the AmVets Auxilliary and our church, St. Patrick's which I am a member of the women's guild. I do try to stay busy along with my husband belonging to the AMVets and the Honor Guard. We have a small real estate company. We help people buy and sell homes and buy and sell businesses. The worst part of my FM is not being able to focus the way I use to. I'd rather take all the pain than have this problem with focusing. I find the more you tell the doctors, the more medicines they put you on and there are so many side effects as you know. I finding walking helps and hot showers. Nice chatting with you. Take care of yourself, Warm regards, Sheila