since I live in a rural area...and have had FMS (dx'd at least) for 3 years...it has been a long stretch of not very much interaction with a lot of people. But, just lately , I have had 3 different people tell me about someone that they know that has fibro...and how SUCCESSFUL they are at , working, running, raising their kids...BLAH BLAH BLAH. And this has happened at other times, from other people the last few years too. My own father , when he heard that I had been dx'd, called me to see how I was, and the first thing he told me was he has a neighbor in Florida with FMS, and she is a drug addict, taking all sorts of pain meds...and he hoped I wasn't going to be taking all sorts of drugs. ARGH!!! Anyway...I guess today , I am finding that I am tired of people telling me "how to be sick". I feel like I am doing the best I can do, and it seems like these people- the "friends" and family who are supposed to care about me...really aren't behaving in a very caring way. Having read these boards for a while...I know this has been written about before, but this morning, I am just feeling "less than" because of this darn illness I guess. Part of that is the fact that people really think we are mainly "ok". That if only we - exercised- ate better- got out more- slept less- slept more-took the right pill- on and on and on...Then we could just be normal again. I understand that it is a long while since these people have seen me be well...and that they don't understand the illness...But, I guess I am annoyed at the fact that they don't really trust ME to do what I can about my health! I am tired of being on the sidelines too! I got movie passes for my birthday in July...and still haven't had a time where I felt good enough to go! If I go out...I pay for it by not doing things at home...if I do things at home...I pay for it by not being able to leave the house. This sure isn't something any one would ask to have...but HOW do I deal with people that really do seem to care about me....but have to keep saying things like.. "oh, I know someone with fibromyalgia....."