TMJ is really BAD!!!!!!~~~~update!!

Discussion in 'Fibromyalgia Main Forum' started by SherylD, Jan 7, 2006.

  1. SherylD

    SherylD Guest

    My TMJ is sooo bad..

    I have been going to the dent. for about 2 months now. He made me a splint.. A hard acrylic one. I wore that for just to bed for a while. It was not helping. If fact I think it made it worse.

    I went to him before Christmas and he took th splint and kept it.. Til I went back this last Thur.

    When I went on Thur. he fit me for a different splint. This one will be rubber and go on all of my bottom teeth. BUT... It won't be in for another 2 weeks.

    I just didn't know if anyone had any suggestions to help get me through this. MY head, neck and jaw is jurting sooo bad. Ibpuprofen helps a little but not much. I have been to my chiro. and that doesn't help much either.

    Thanks..

    SherylD
    [This Message was Edited on 02/15/2006]
  2. NyroFan

    NyroFan New Member

    Sheryl:
    After dental surgury or some other painful thing, my dentist will give me some Tylenol with codeine to hold me over until the work is done and a few for after: a day or so.

    Maybe your dentist can prescribe something temporarily
    until the mold is made.

    I am sorry you have TMJ. I grit my teeth alot from tension and try to not do it: but that pain must be less than TMJ, which I have heard is quite painful.

    It is nice you are getting a solution.
    Hugs,
    NyroFan
  3. SherylD

    SherylD Guest

    He has always said that he doesn't like to give anything for stuff, cuz then he can't tell how I am really doing.

    Which is fine to a certain extent..I can't handle drugs anyways. So I don't know he could give me.

    Thanks for responding..

    SherylD
  4. laura81655

    laura81655 New Member

    Hi Sheryl, You may have to find a dentist who specializes in TMJ problems. I went to one and it was so dang expensive! So, I went to my regular denstist who made me the acrylic splint which I was able to wear. If it didn't work out I was going back to the Neuromuscular dentist.
    I know how difficult this can be at times.

    Laura
  5. SherylD

    SherylD Guest

    My dent. sent me to this dentist.. So I thought he was a specialist.

    Whow knows??

    What's a Nuromuscular dentist??

    Thanks

    SherylD
  6. sydneysider

    sydneysider Member

    The things that helped me were...VERY hot water bottle, or heat pack.. trying to loosen jaw by brushing teeth, or eating crunchy food e.g. apple slices.. sucking ice..keeping neck and jaw muscles as loose as possible..taking panadeine before going to bed. I also have crushed Panadeine tablets and mixed jam to help them absorb quicker.

    These things sometimes only gave me minor relief, but that was better than nothing.

    However reading your post made me wander.

    I was diagnosed with TMJ after having braces on my teeth in my late teens. I had horrible headaches, and was given a bite plate which eased the headaches. A few years later I developed a dizziness similar to being drunk, or drugged.

    I am now 45, and last year was finally diagnosed with compressed disks in my neck, osteophites, plus slight reversal of the neck curvature. I now have symptoms which indicate problems in the arteries in my neck.

    Although I believe that I DO have TMJ, I believe that my neck problems have been the cause of many headaches. Interestingly, the only reason the Neuro suspected neck problems was that I was given an exercise for dizziness involving leaning from one side to another. Every day when I did this I would get a headache.

    Anyhow, reading your post made me wonder if you have checked for neck problems.

    I was told that the reason my neck disorders have gone undiagnosed, is because these problems are usually found in older people. It seems that if you're young then they don't even consider that you might have these problems.

  7. Windytalker

    Windytalker Member

    I haven't visited here for a while and your TMJ post intrigued me. At the first part of December I suddenly acquired TMJ and I'm very empathetic to your problems.

    A dentist made me a mouth insert about 5 years ago saying I clinch my teeth, but I developed a sensitivity to plastics and can't use it (or drink/eat anything involving plastic). Motrin seemed to help most. My doc thought it might be being caused by a sinus infection..he's a pill pusher and I left with 3 prescriptions that did no good whatsoever.

    Sunflowergirl suggested a rice sock and to be honest, between that and the Motrin, these were the biggest help. Most meals were processed in a VitaMix...who can chew? Right? I also started using a vaporizer (not a humidifier) at night and it seems to help, too.

    I read on a TMJ sight that over 50% of TMJ sufferers have an underlying heart condition (do you have CFS?).

    It has eased up, but my teeth ache all the time and have some very sensitive spots (one area swelled in the AM, but went down by PM).

    One day recently, it flared badly (about takes you to your knees, doesn't it!!). I was trying to fix something to eat and drapped my rice sock around my neck (rather than having it on my jaw) and the pain eased up. I was amazed! So, your neck problem is a contributing factor (I believe). Headaches seem to be a side effect.

    The rice sock molds easily to the jaw or wherever the pain is worse. I have 3 sizes...child's, women's and a tube sock. Filled them each with rice and sewed small ribbon through the top. Pull the ribbon tight to seal the sock. Put the sock in microwave for about 1.5 minutes. Be cautious if you make one...don't get it so hot it burns your skin. If you make one, try it on your neck instead of your jaw first..this was a "breakthrough" for me.

    Hope this helps. Let me know how your new mouth piece works. I'm hoping to find someone to make me a metal one, but I'm concerned the pressure on metal will crack my teeth.

    Do take good care...



    [This Message was Edited on 01/07/2006]
  8. SherylD

    SherylD Guest

    What kind of test did they do to find it??

    I have had a terrible time with my neck for many years. I have a headache everyday. It just depends on how bad it is.

    Everywhere I go they say it is the myofacial pain and the TMJ. I am to tense and can't let things go.

    I just said to my Husband.. What if it's something more. I know this has went on now for probably 16 years. Just sometimes worse times that others.

    I went through TMJ treatment probably 12 years ago and I wore a splint back then for a year. It got alot better.. Then I started having problems again and he said don't you wear your night spint.. Well I never had anything and didn't know I was suppose to wear anything after It was better.

    Now I don't think all the raw veggie and nuts help it all eiter..

    I gave up on it and now I am paying big time for it. I do really worry about the dizziness. I have had several x-rays done on my neck.. The only thing the coment on is I do have some arthritis.

    Thanks a lot
  9. sydneysider

    sydneysider Member

    I had MRI.

    If you know that you have neck arthritis, then I think that your neck may be part of the problem.
  10. SherylD

    SherylD Guest

    I have been saying now for a while that I think I should just have an MRI done to just rule things out.

    Peace of mind so to speak..

    How do I go about it.. Just ask my Dr. to have one done?

    That's like being on this computer all the time just kills my neck..It gets sooo bad.
  11. sydneysider

    sydneysider Member

    I use the night splint, and find it helpful. Guess it depends if you actually have a jaw problem.

    I also was told that TMJ MPS was the problem.I was also told many other things that turned out to be rubbish.

    I became suspicious about a neck problem after I befriended an FM lady who went into hospital for a fibroid operation with no other problems. She later developed many problems, and was eventually diagnosed 2 slipped disks in neck+FM. She is suspicious that she was dropped, or something, while under anesthetic.

    Please do not stress, if possible. I have minimal pain these days, and believe that it is mainly due to learning to keep my muscles as relaxed as possible.

    I hope you are not alarmed by anything I have posted, I just thought that you had some similarities to my case, and I know that I would of preferred to have known earlier.
  12. sydneysider

    sydneysider Member

    I live in Australia. A Neurologist got my MRI. But a regular doctor might be able to order it. Just ask. Ask to be sent to the best place available, as not all MRI machines, and not all the people who write the reports are 'equal' so to speak.

    Don't be afraid to ask doctors questions. Just keep pushing, and if your doctor won't help, then search till you find a good one
  13. SherylD

    SherylD Guest

    I am not worried by what you said at all.. It is just something that has always crossed my mind for a long time.

    I am getting a new split in a couple of weeks. A soft one.. So I will see how that one goes and take it from there.

    I just am suffering and was looking for some help..

    I have been putting some arnica gel on it.. Helps a little.

    Thanks a lot
  14. SherylD

    SherylD Guest

    Thanks for the help..

    I have a rice sock.. I do use it sometimes. But sometimes I hate to say it.. I forget about it.

    I will get that out.
  15. victoria

    victoria New Member

    (I'm reposting a post I made the other day about what helped me...)

    Then I found a dentist who does functional orthodontics. They have an organization:

    http://www.aafo.org/

    I had been to the 'grandfather' of TMJ dental treatment wayyy back in early 80s and everybody else since who were all 'specialists", until I found the one who did the functional orthodontics. He was the first to make a splint that slid my bottom jaw slightly open plus slightly forward, out of the joint, instead of pushing it 'into' the joint.

    The difference with functional orthodontics was that they learn a wide range of handling people based on individual needs - every case is slightly different; before that, everybody had a 'one-size-fits-all' theory of how to handle it, ranging from it was all psychiatric (really!) to dryneedling trigger points (gave me a seizure) to grinding down 'high points' on teeth... but they always did basically the same things to every one. And no matter what I did or they did, pain always came back. Until the last dentist....

    I have been TMJ pain free now for OVER 10 years :)))

    I had had to quit several jobs because of the pain caused by talking - had been in sales while in school, then was a hypnotherapist - so of course both involved a lot of talking :((

    While I did go thru 2 years of wearing a splint to let jaw stabilize, then 3 years of orthodontics to be able to not have to wear a splint, and it did cost a lot ($5K back then), it was worth every penny!

    (The major cost was from the major orthodontics in order to maintain what the splint had achieved; if I'd wanted, I could've just worn a splint for the rest of my life.)

    Hope this helps someone achieve the relief I have had!

    All the best,
    Victoria
  16. dannybex

    dannybex Member

    I've read that TMJ can be related to a parasite problem. A google search will turn up several articles and studies. I would look into treating the cause or causes while you temporarily take things or use splints to help with the pain.

    I believe there is a study that showed that calcium and pantothenic acid helped with TMJ -- also another one with that used glucosamine and chondroitin...

    d.
  17. Beadlady

    Beadlady Member

    I have dealt with this pain for over 30 years. It comes & goes, but over the years I have learned this:

    No caffiene products--if you drink a lot of these, try cutting back slowly on this. Keep in mind, some pain relivers contain caffiene too

    Drink lots of water

    Take a Calcium w/Vitamin D about a hour before bed--this helps to relax your muscles

    Moist heat helps the best. Take a wet dish or hand towel, put in the micro=wave for about 30 seconds and wrap around your jaw from ear to ear.

    Using a shower massager on the back of your neck muscles and your head helps to reduce the tightness

    Rub Icey Hot cream or similar product on your neck & shoulders and then put an ice pack on that same area for 15 minutes

    Try Chiropractor adjustments--many offices also use massage & ultra sound therapy to help with the inflammation

    Wear your splint faithfully--it may take several weeks for your jaw to get used to it

    Eat soft foods

    No gum chewing

    don't lick your lips

    Good Luck, I hope some of these ideas help




    [This Message was Edited on 01/08/2006]
  18. SherylD

    SherylD Guest

    I put my arnica gel on and used my rice sock when I went to bed last night.

    I woke up and my neck is sooo stiff I can't ever move my head. It's all locked up.

    I am going to get in the shower and try to do some stretching..Se if I can loosen it up.

    It's bad..Makes me feel sick all over.
  19. busybusymom

    busybusymom New Member

    I have been having TMJ problems the last month. Nothing has really helped - I was up during the night last night with severe pain in the TMJs and I was really dizzy. My chiro hasn't really helped either. She said just buying a mouth guard at the sporting good store was just as good as spending $500 at the dentists office. Maybe you could try one of these. I haven't really given it a good try yet. She also suggested masassging the inside of your mouth (where the TMJs are) with your fingers. It is suppose to help loosen those muscles.

    I sometimes put ice on the area - this just feels good and helps relieve some of the pain.

    I'm sure your dentist told you to eat soft foods as well.

    I've had this problem in the past and it does go away. It just takes time.

    Jennifer
  20. danaDoo

    danaDoo New Member

    Ive had triger point injections in my back but this time got to a specialist finially knowone here worked with tmj with out cash. Ive had tmj since teenager but never like this . I feel for you !

    LOve,
    Dana