tmj PAIN FROM FIBROMYALGIA

Discussion in 'Fibromyalgia Main Forum' started by XRAYFFDANIEL, Sep 18, 2002.

  1. XRAYFFDANIEL

    XRAYFFDANIEL New Member

    Has anyone suffered TMJ pain from fibromyalgia? my pain firts started in 1983 and i was having severe pain in my jaw. i had a helicopter accident in service and suffered much P.T.S.D. I went to many physicians and dentists until a ENT physician diagnosed me with TMJ syndrome. today my neck and facial pain is severe.

    SUFFERING IN FLORIDA
    GOD BLESS


    dan
    NEVER FORGET 9-11-01

  2. XRAYFFDANIEL

    XRAYFFDANIEL New Member

    Has anyone suffered TMJ pain from fibromyalgia? my pain firts started in 1983 and i was having severe pain in my jaw. i had a helicopter accident in service and suffered much P.T.S.D. I went to many physicians and dentists until a ENT physician diagnosed me with TMJ syndrome. today my neck and facial pain is severe.

    SUFFERING IN FLORIDA
    GOD BLESS


    dan
    NEVER FORGET 9-11-01

  3. JaciBart

    JaciBart Member

    Does our tmj problem cause our neck problem, my neck is the worst, I can hardly stand it, just starting on pain meds for that & my achilles heel, those are so painful, 24/7.

    Jaci
  4. XRAYFFDANIEL

    XRAYFFDANIEL New Member

    yea i am suffering 24/7 on the same thing? any suggestions ?

    thanxs
    dan

    WE WILL NEVER FORGET 9-11-01
  5. kadywill

    kadywill New Member

    I finally saw an Oral-Maxillofacial surgeon and had 2 arthroscopic surgeries followed by a biggy, a mandibular osteotomy, which has lasted for the twelve past years. I still wear the biteguards and I still have pain from chewing and from keeping my mouth open at the dentist; otherwise it leaves me alone!
    In health,
    Kady
  6. Allen2

    Allen2 New Member

    When I came down with the Fibro thing, I also was diagnosed with TMJ--it didn't prove to be the main problem. Arthroscopic surgery was ineffectual; actually any surgery is rarely ever recommended. I saw a specialist in orofacial pain and neurologist and eventually dxed with Atypical Facial Pain similar to Trigeminal Neuralgia. Hope you can hook up with people who know their stuff, Al
  7. dhcpolwnk

    dhcpolwnk New Member

    I've had TMJ problems for years, but I was only diagnosed with fibromyalgia 2-1/2 weeks ago. I've probably had fibromyalgia for a long time before the diagnosis, though, so that doesn't rule out a connection. In fact, it was when I read that people with fibro often have TMJ problems that I started to think I might have it.

    My dentist is someone I've known since high school and who specializes in craniofacial pain, especially TMJ. He also has TMJ dysfunction himself and is on the board of the TMJ Society. He keeps very up to date on the latest research and is willing to reach out beyond conventional medicine when he thinks it will help. (He used something called a bidigital O-ring test to check out pain in my jaw and right lower molars, since X-rays didn't show anything. This led him to diagnose several infections, including--I think--candida. In addition to prescribing Amoxicyllin (the O-ring test confirmed what I'd already found out by experience--straight penicillin didn't work for me, and it increased my acid reflux problems big time), my dentist prescribed Omega 3 capsules. After a few weeks, he tested me again. By that time, the pain in my jaw had subsided to almost nothing on an ongoing basis, and the O-ring test showed my body had gotten rid of the candida and other infections.

    I understand that some people think that candida may be a culprit in fibromyalgia; so maybe there's a connection in that. It seems pretty clear that there's frequently an *association* between fibro and TMJ problems, but I'm not sure anyone can tell which is cause and which is effect.

    By the way, the first mouthpiece (my dentist called it a "splint") that I had for TMJ went over my bottom teeth. Apparently, this type of appliance actually *increases* the strength of gritting, clamping or clenching. I now use an NTI device that just fits over my incisors (the two top front teeth). I use it at night. I still get TMJ headaches occasionally, but it's much better than it used to be. My son and husband also use NTI devices. We're a family of clenchers.

    I hope this information is of some help.

    --Laura
  8. XRAYFFDANIEL

    XRAYFFDANIEL New Member

    Thanks for all the great information ....
    i guess iam not alone.

    God Bless


    dan

    9-1-01 always remember


  9. nancyneptune

    nancyneptune New Member

    Dan, I've had TMJ since I was 21. Now I'm 52. Mine is a thing I started doing due to stress and tension. Gritting my teeth, all day, all night. After I started with the fibro, it got much worse. I went to the rehab place in town and the nurse showed me how to massage the jaw muscles from the inside and outside at the same time. Hurts like hell but really relaxes them for awhile. You have to reach way back inside your mouth with you index finger, behind your teeth and grab that muscle, then rub it in circular motions from the outside. It looks mental, so do it alone, lol. good luck, N
  10. garyandkim

    garyandkim New Member

    first the chicken or the egg.

    I just know that more things just keep on croping up.

    Take care, Kim and Gary
  11. LisaMay

    LisaMay New Member

    I suffer from neck pain and TMJ. My dentist is fitting me with a splint. After reading some of the replies, I'm not sure this is the answer. Self massage is helpful too. I try to be conscious of my clenching during the day, but who will watch me in the night?

    Just another crappy day in the neighborhood of FM.
    Lisa
  12. XRAYFFDANIEL

    XRAYFFDANIEL New Member

    yes i will try that self massage...also i better do alone i think others will wonder if iam ok lol

    i just wonder if any relief will ever come? when i get my TMJ's flared up i cannot turn my head and it causes me to become isolated.

    i have tried the bite block , i find it on the floor when i wake up. i wonder what iam doing in my sleep ?
    i have had many medical work ups and found no mechanical reasons for TMJ's to hurt.

    massaging mouth in florida

    dan



    GOD BLESS


    9-11-01 ALWAYS REMEMBER