To Do List Oct 4 to Oct 11

Discussion in 'Chit Chat' started by hugs4evry1, Oct 3, 2010.

  1. hugs4evry1

    hugs4evry1 New Member

    Good Morning all,
    I know it's been forever since I posted much, kind of hard to explain... I had months of feeling great, shopping, eating out, having a good time with no naps or bed rest needed to get through the day, then something changed.

    I have no idea what triggered the change in my health, I had switched enzymes for the PEI to an American brand because I was having trouble with my old ones. I also had increased my dose of Tazadone for sleep to 200mg a night and it did help me sleep better but...

    My blood sugar became out of control, especially in the afternoons....way too low and nothing was helping. I've racked my brain trying to see if it's something I'm doing but I can't figure it out.

    I had an episode while driving home from taking Katy to work.. I knew something was wrong, like I didn't have control of my car. I came home checked my blood sugar and it was only 41 but I had eaten just before I left as I always do before I drive.....very scary.

    I got an appt with my regular doc and had already told my husband that if he doesn't take me seriously that I was going to check myself into the hospital, luckily he listened. He got me an appt with my endo that day (unheard of around here) and the endo did his usual thorough exam but wants me to see a specialist.

    So tomorrow I'm going in the hospital and I'm hoping they can find a reason for all of this and I hope it's something we can deal with, medicate to help or even a cure would be nice.

    They've explained that it may be something that can't be helped my medication, if my insulin is out of control and I may have to eat even more often. (Like my body may be producing insulin for a 1000 calorie meal instead of a 100 calorie meal....

    My husband was dealing with my endo since I wasn't able to speak or think clearly and he thought he mentioned that I may have a benign tumor but we're not sure....The hospital I'm going to specializes in oncology, diabetes and endocrynology. (sorry sp?)

    It's been difficult to get much information since the paperwork they gave me was in German, but I know I'm going in to be tested by a specialist and I do trust the German doctors....

    Today I'm enjoying what I have.....resting and I'm going to do my best to relax and enjoy. If I'm able, I'll check back in when I get home and see how everyone's doing.

    Hope all are well...



  2. sorekitty

    sorekitty New Member

    Hi all, I haven't been able to come on here like I thought I would after my ds started school. I don't know if I will ever be able to participate like I used to.

    Nancy-It is really good to hear from you. I was worried and wondering what was going on. I'm so sorry to hear about your health problems. I hope the appointment goes well. How is Katy doing?

    I am overwhelmed with all of the therapies and doctors appointments for ds and for myself too. He has standing appointments on Tuesday-Wednesday-Thursday after school for occupational therapy, physical therapy, yoga (that is OT based), and behavior therapy. Then each week there seem to be one or two doctor appointments thrown in for good measure! Like last week he was having double vision, so we are seeing the eye dr. Yesturday he couldn't read words on a monitor that was about 25 feet away--with his glasses on. So I need to talk with the dr about that too.

    We are on our third trial of seizure meds for him and this one seems to be very good in that he hasn't had an allergic reaction and he hasn't had a severe change in mood and behavior. But we have been fighting the insurance company since June to take this med. We did the trials of two other meds they wanted to with very bad results then I asked my dr for samples of the one med she had wanted him to take all along. Once he is on it for quite a while then I suppose we will have to have another EEG to see if it is actually stopping the seizures. So we lost the first appeal, we are in greivance process and have already called to begin the next step. They don't know our perserverance!

    To do:
    Meet my old friends for coffee (already did)
    phone calls
    type up some materials we use for therapy
    Appointment with my psychiatrist
    Respite tonight-lay down and then spend some time with dh


  3. hugs4evry1

    hugs4evry1 New Member

    I am so glad that you found a chance to come on here and let us know how you're doing....but I'm so sorry that you're still fighting those battles. I don't think I knew about the seizures and I'm sorry to hear that you have this problem now too to deal with....bless you for hanging in there!

    Katy's doing great and has been a huge help around here since things fell apart. I can't even begin to tell you how much she's contributed....she cooks, cleans, grocery shops, works and fetches things for me. She's bought me roses for beside my bed too. She's even shopped for clothing and accessories that I'll need in the hospital for me, taking a bus to get to the PX. Amazing...

    She's had Mon, Tues and Wed off the last few weeks so the majority of my care has been on her shoulders and she's done a wonderful job.

    I have to say it's really hard to go from feeling great as I did for months to being bed-ridden again....

    This morning I'll finish packing last minute stuff for my hospital bag....

    Hugs all,

  4. alaska3355

    alaska3355 New Member

    Good to hear from both of you! I, too, was worried about you, Nancy- it's been months, I think. Glad you had some good weeks.....I kind of thought that was the case. I'm sorry your health has taken a turn for the worse, but I pray that your time in the hospital will pinpoint your problem and that you can get back to life as you were enjoying it!

    Molly- hang in there.....good to hear from you always. Just drop us a line whenever you can and let us know how you are doing. It's a good place to share each other's problems. We care about you!

    I also haven't been on here in about two weeks, but I only have busy-ness as an excuse. I have been canning and freezing stuff, as usual. Right now I have some peaches my neighbor gave me, so I think they will become jam. I already have lots of peaches in the freezer.......crazy. Another lady has told me to come and get the rest of the grapes, but I really don't have any more room for grapes. I have made grape juice and grape jam, so I'm done there. I am also subbing some in the schools- I limit myself to music subbing, as that is what I am most comfortable with.

    My boys have been running cross country and are enjoying the team camaraderie. It is a nice bunch of kids.

    Well, I hope to hear from more of you soon!

    Hugs, Terri
  5. AnneTheresa

    AnneTheresa Member

    Hello all,

    I haven't been posting too much either, due to a broken computer. I'm glad to finally have my new one - set-up and online - so I can visit here again.

    Nancy, I'm sorry you're health has taken such a turn. It's not fair! I'm glad your daughter is taking such good care of you. She is such a blessing. I hope your stay in the hospital will uncover the underlying health issue and provide an effective treatment.

    Molly, your life seems as busy as ever. Parenting can be a full-time job and it seems when a child has special needs it can be a job and a half. I hope you can make and enjoy some quality 'Molly-time'!

    Terri, I hope you take some enjoyment from the process of canning and freezing, given how much of it you do this time of year. If not the process you enjoy, then surely at some point in the future, you'll enjoy the fruits of your labour, perhaps when you decide to open a jar of lovely home-made jam and have some with your toast:)

    Thing are okay with me, that is to say I'm keeping my head above water.

    To-Do List

    Slice vegetables & fruits for snacks
    pick up medication from pharmacy
    make up weekly medication dispensers
    make appointment for manicure
    shower & shampoo
    paper filing
    use apartment's gym

    God bless,
    Anne Theresa
  6. hugs4evry1

    hugs4evry1 New Member

    I just got out of the hospital this moring and it was rough....had a 72 hour fasting test for an insulinoma (sp?) but of course it was longer since I ate, from the night before. I lost 6 pounds, yuck back at 119 again. Weak as a kitten too but hubby and katy have been taking great care of me and of course, it continues.

    I've had so many tests done, the hospital will call on Monday, I have a nuclear something scan on Wednesday and anther appt with my endo to go over all of the findings on Monday of next week. They don't think the tumor is the problem but I spent the last 2 days with my blood sugar between 43 and 57 ugh, it was awful.

    I'm just up for a few minutes then back to bed for me...

    Hugs all,

  7. AnneTheresa

    AnneTheresa Member

    Nancy, I'm glad you're home from the hospital but sorry you feel so rough. A 72+ hour fast is bound to leave you feeling weak - thank heavens for your kind and supportive family. I can't imagine how awful you felt with a blood sugar reading that low - yikes!

    I hope you have a restful weekend and that Monday brings you closer to getting some answers that will lead to better health.

    I'm still working (slow but sure) on completing my previous to-do list. I went for a manicure yesterday and chose a pretty purple nail colour. It looks just lovely. I hope everyone has a nice weekend.

    God bless,
    Anne Theresa