Some of you know I've been posting on this board once in a while over the course of well over a year. I've been having symptoms that can be Lyme, FM or CFS. I've been through all kinds of medical specialists...no diagnosis. Since I do have pain in my knees, hips, shoulders, and most recently, the knuckle on one of my fingers I'm thinking there's a chance it could be Lyme, even though I live in Florida. Someone on this board recommended that I have Igenex labs test me for Lyme. I called, got the kit and have the forms to give to my doctor to request the test. The test costs in excess of $400, depending on which or how many tests they do. Then, I received some literature from the FFC (Fibro and Fatigue Center)in Atlanta. They said that if I went to them, on the first visit, they'd order extensive bloowork and the Lyme test would be included. So I figured, why should I have Igenex do the Lyme test and if it's negative, then I'm only going to go to FFC and pay for the same test again included in their battery of tests. When I talked to the FFC on the phone, (or should I say, their representative at the call center in India) they tell me that their "package" for people who have to travel quite a distance to see them costs $1300 for the initial visit and two remote follow-ups. They won't tell me how much the bloodwork that they will order is going to cost. And they don't divulge how much the treatment or supplements, drugs, whatever they recommend will cost. I understand that different cases require different things but they should at least give a range of what it could cost. Since this stuff is not covered under insurance, I don't have the big bucks that this will likely require. I also have my doubts about the FFC too, because from what I've seen and heard from them, they seem more concerned with milking me as a cash cow rather than helping me. They have all kinds of fancy marketing materials, complete with a call center in India so they don't have to pay Americans their modest call center wages so that the fat cat (and this case, it's literal) at the top of the organization can get richer. One of the people at the call center (disguising herself with an American name) even called me today to try and ramrod me into making an appointment. Can you believe it? SALES PRESSURE from a health care facility! It really turns me off that they are so eager to get me to commit to spending a fortune with them, yet they don't want to answer my questions or give me any idea of how much that fortune might be. There's a Homeopath in my area who thinks he can help me. So I'm wondering do I get the Igenex Lyme test and narrow it down and let the Homeopath take it from there, or do I sell my house in order to go to the FFC? Has anyone here been to the FFC? Was it as expensive as I'm envisioning, and most importantly of all, did it help? What can I expect it to cost? Are facilities like this regulated? Who holds them accountable? Without regulation, it is rife with potential for them to be a big ripoff organization that exploits people who are vulnerable and desperate to feel better and be well.