To Klutzo

Discussion in 'Lyme Disease Archives' started by suexi, Dec 12, 2006.

  1. suexi

    suexi New Member

    Hi, thanks for the info....where and who is this llnd/doctor in san fran?
    thank you
    susan
    xxx
  2. klutzo

    klutzo New Member

    Hi,
    Due to DEA persecution, search and seizure, and prosectution of LLMD's, I would never give a full name in public on a forum. I cannot figure out how to PM you on this forum, so I will just suggest you go to LymeNet's flash discussion forum, and in the Seeking Doctors section of the forum, post asking about the LLNP whose initials are GS, who works for Dr. S in San Fran. Someone there will PM you privately with the info.

    Klutzo

    P.S. If you know how to PM on here, please PM me, and I will send you the info.
    [This Message was Edited on 12/14/2006]
    [This Message was Edited on 12/14/2006]
  3. victoria

    victoria New Member


    Unfortunately there are no PMs on this board... chat rooms are about the only option altho I've never tried it.


    [This Message was Edited on 12/14/2006]
  4. suexi

    suexi New Member

    on the cfs board they put their docs names all the time... ok thank you anyway and i will try that. i dont know what pm means. is that private mail?
    susan
    xxx
  5. klutzo

    klutzo New Member

    PM means private messaging. LymeNet has it and once you register and post your request for the LLMD and LLNP there, the info will be sent to you via PM, so it cannot be seen on the Board by any trolls that are on there looking for doctors to harrass.

    A troll is a shill, usually from a govt. agency, trying to put LLMD's out of business, dragging them through the courts at high cost to force closure of their practice, etc. It goes on all the time and great docs are losing their licenses and/or going bakrupt trying to defend themselves. That is how G.S., the LLNP, ended up in San Fran. She was run out of Texas by these trolls who threatened the doctor she was working with. As a result of this, my Lymie pal and her family, who live in Texas, can no longer get their ABX and are going downhill fast. This does not happen to CFS docs, since they are not using long term ABX as a treatment.

    Klutzo
    [This Message was Edited on 12/15/2006]
  6. bct

    bct Active Member

    If you call Igenex Labs in Palo Alto they may be able to direct you to a LLMD. When I called them I spoke to Dr. Harris (I believe he is the big honcho at Igenex) and he gave me several names.

    Good luck,
    Barry
  7. suexi

    suexi New Member

    ok, that makes sense not to post their names.. Thats really Sad how such good docs are going out of biz due to their treatments and thats such a shame about your friends in texas going downhill. I heard that there is Lyme specialists in Texas. My mom and brother live there and they are doing research for me, as a possible option for me to stay w/them.
    So back to the treatments of long term abx; i am assuming there is controversy on this and other drs see it as possibly dangerous? i'm assuming.


    o,btw barry thank you for that; i will call igenex 2 c if they can help me w/an llmd.
    susan
    xxxx
  8. victoria

    victoria New Member

    My son's doctor has been censured by the medical board altho he's been allowed to keep practicing with them looking over his shoulder.

    As a result, he is only allowed to treat those who came up positive on the Western Blot according to CDC's "guidelines", even tho the CDC itself says doctors should evaluate a patient based on the presenting clinical picture.

    Therefore I know people who were being helped but cannot return until his year's "suspension" is up. (thankfully my son fit the CDC's "guidelines" and can still be treated.) The Infectious Disease association's (IDSA) recent release of their recommendations is not going to help this picture of doctors being persecuted.

    My son's doctor has had to declare bankruptcy in order to get his finances in order and sold part of his practice (he was one of the first doctors in SE to treat HIV/AIDS);

    He has re-organized as a research facility, this way I think he can continue to treat pts based on the 'clinical picture' of Lyme after the year is up. I admire his persistency as well as knowledge! Many would've given up, and at the first hint of censure.

    Such a shame!

    all the best,
    Victoria


    [This Message was Edited on 12/17/2006]