To Lane symptoms and ssd

Discussion in 'Fibromyalgia Main Forum' started by zggygirl, Jun 5, 2003.

  1. zggygirl

    zggygirl New Member

    Hi Lane,
    At some point could you tell me more about the guidelines for SSD and not having a diagnosis.
    I applied , was turned down and am appealing. But I am worried as I don't have a diagnosis. I thought that was very important.
    Thanks a bunch,
  2. MemoryLane

    MemoryLane Member

    Go to Google and type in a search -> Social Security Memorandum Chronic Fatigue

    Look for this hit:

    SSAS - Fibromyalgia & Chronic Fatigue Syndrome
    ... Social Security is moving toward a formal recognition of ... Deputy Commissioner’s memorandum
    on Fibromyalgia & Chronic Fatigue Syndrome

    When you click on this hit, you will find an image in Adobe format of the actual reply regarding the absense of a diagnosis from the memo I referenced.

    Also go to the ssa gov website and click on "search" from the blue title border, not the "Questions About" search box, but the blue border above this box. In the new search box type in "SSR 99 2p" (with the quotation marks) and hit "go". The ruling on CFS/FMS should be the first hit. Explore the SSA cite, you literally have to dig, but there is much to learn.

    At the end of 2002, the SSA made some subtle changes to their "Blue Book" (see: For Health Professionals Disability Evaluation Book Now Online) categories of impairments and launched it with a new look to their website design. I guess this was in hopes of confusing everyone - it worked!

    SSA redesigned the impairment categories, so that multi-system conditions like CFS & FMS could not be pulled from just one like you could before. You now have to look through each category of impairments and find the conditions that apply to you. Even though they list specific diagnoses in most cases, you or an evaluating physician would have to try and explain what you have in terms of..."can be compared to this" or "the impairment is at least as severe as this" and so on. Your treating physician, if you have one, is supposed to get special forms to fill out describing your conditions as above, but not always - mine did not.

    Unfortunately, you (and I) are caught with your claim under two different application guidelines. I can not be sure how this will affect us, but I have an idea that anything new or added to an existing claim since Jan 2003 is going to fall under the new revisions. Fortunately, the rulings themselves still stand, but there are plans on the board to revise the definitions for Immune Disorders and for Mental Disorders - SOON. This may help or hurt - I don't know.

    Have you seen this from our on-line library here?

    Five Crucial Steps to Winning your CFS disability Case
    by Scott E. Davis


    In April 1999, the Social Security Administration (SSA) delivered an early holiday gift to individuals trying to obtain disability based on CFS in the form of SSR 99-2p, “Evaluating Cases Involving Chronic Fatigue Syndrome.” This landmark ruling should forever change (for the better) how SSA decides CFS disability cases. Indeed, if the ruling is used properly by a CFS claimant, SSA has finally “leveled the playing field.”
    The ruling is SSA’s formal policy statement that CFS is a legitimate medical disorder that can be the basis for a finding of disability. The fact that SSA found it necessary to issue a formal statement legitimizing CFS is both surprising and disturbing. Rumor has it the ruling is SSA’s attempt to provide consistent nationwide treatment for CFS claims by educating its employees who decide eligibility for disability. You may be thinking, “Doesn’t everybody believe CFS is a legitimate medical disorder?!” Unfortunately, prior to the ruling not everyone did, as some CFS claims were denied by SSA employees and/or Judges due to a lack of education. The ruling is clearly an important landmark because it mandates fair and consistent nationwide treatment for CFS claims. However, you must understand the new ruling in and of itself will not win your claim…it only insures your claim will not be denied simply because it is based on CFS. The truth is, the ruling simply elevates CFS to the same status as other more widely accepted disabling medical disorders.

    The ruling places an absolute premium on the diagnosis of CFS through signs, symptoms and/or laboratory findings. This requirement could make the ruling a friend or foe to your case depending on how well the diagnosis, and more importantly, physical and cognitive impairments/limitations are documented in your medical records. As I will discuss later, if you do not use the ruling to your advantage it may become more foe than friend…

    This article will educate you on how to use the ruling to maximize your odds of winning by utilizing the following five crucial steps:

    Step 1. Don’t believe it when SSA says you don’t have a CFS disability claim A woman recently called me from the East Coast and said she contacted SSA years ago to file a disability claim. The SSA employee told her CFS was only a symptom and not a basis for obtaining disability. Deflated, she hung up and did not file a claim.

    Unfortunately, failing to file a claim cost her two years of monetary benefits and Medicare. Although I do not think this type of misinformation from SSA is common, it does occur. SSA implemented the new ruling to avoid exactly this kind of scenario. The longer you wait to file a claim the more it will cost you. It is easy to do, there is no charge and SSA must accept your claim. Every person who has been unable to work for twelve consecutive months (or it is expected they will be), should immediately file a disability claim with SSA; call toll free (800) 772-1213 to apply.

    Step 2. A Supportive CFS Medical Specialist should make the diagnosis and be involved in your care As stated, the Ruling places a premium on medical documentation: This Ruling explains that CFS, when accompanied by appropriate medical signs or laboratory findings, is a medically determinable impairment that can be the basis for a finding of “disability.”

    In my experience in representing clients, CFS too often is overly diagnosed, misdiagnosed or the basis for the diagnosis is not adequately documented in their records. Having the diagnosis made or confirmed by a board certified medical doctor (or osteopath) such as a rheumatologist, internist or infectious disease specialist, should eliminate any questions about the diagnosis and/or treatment course.

    The Ruling provides several acceptable bases for the diagnosis: (1) the CDC criteria, (2) an elevated antibody titer to the Epstein Barr virus capsid antigen equal to or greater than 1:5120, or early antigen equal to or greater than 1:1640, (3) an abnormal MRI scan of the brain, (4) Neurally Mediated Hypotension confirmed by tilt table test, (5) any other laboratory findings consistent with medically acceptable clinical practice (i.e., abnormal stress test or sleep studies).

    Documented neurocognitive impairments as well as anxiety and depressive disorders can also establish the existence of CFS as a medically determinable impairment. However, your diagnosis and case will be much stronger by using one or more of the five referenced above as I believe it is very important for you to either meet the CDC criteria or have an objective test result that confirms the diagnosis. A medical specialist is important because they should know how to diagnose CFS by documenting your symptoms, making objective findings and then ordering the proper tests. Without sounding like you are only seeing them for your disability claim, be sure to tell the specialist early on you have a pending claim and need their support. If the doctor seems reluctant to be involved I suggest you immediately find one who is more compassionate. Unfortunately, too many disability claimant’s cases have been left for dead by an unsupportive doctor…don’t let your claim be one of them!

    Step 3. Your case is won or lost based on the severity of your symptoms (limitations) and not on the CFS diagnosis With the new ruling, winning a CFS disability case is now 10% documentation of the diagnosis and 90% documentation of impairments and limitations! Never lose sight of that crucial fact! Remember, no one is disabled simply because of the diagnosis…it is the severity of your symptoms and limitations resulting from CFS that makes the difference between obtaining disability benefits or not. If you learn one tip from this article let it be this…adequately documented medical records and medical opinions from treating doctors are everything in a disability case. Focus on the severity of your symptoms and limitations…not the diagnosis!

    It is critical to have all of your limitations (physical, psychological and cognitive) and their severity documented in your records. The primary limitations in a CFS case generally will be unrelenting fatigue, multi-joint pain, muscle pain, headaches, cognitive dysfunction…resulting in unreliability as an employee. If your symptoms are not documented in the medical records, SSA and/or a Judge may deny your claim because the records fail to show how your condition meets the criteria set forth in the ruling. At each visit, give your doctor a detailed history of all your complaints and their severity. After several visits to the same doctor, obtain your records and check to see if the records adequately reflect your condition.

    Step 4. Have your doctor perform your disability examination rather than Social Security’s doctor In most disability cases, SSA will request that you undergo a physical and/or psychological examination to determine disability. In my experience, more often than not, SSA’s doctor will conclude you have CFS but it is not severe enough to be disabling. Armed with this opinion, SSA usually issues a claim denial.

    Did you know SSA Regulations permit your own doctor/psychiatrist/psychologist to perform the examination? The advantage in a CFS case is obvious. Hopefully, your doctor is a specialist and knows how disabling CFS can be. Hopefully, s/he knows you better than any other doctor and supports your claim for disability. Thus, your claim is much stronger when your doctor performs the examination, confirms the diagnosis and then concludes your symptoms and limitations are so severe they are disabling. Your doctor’s opinion is persuasive because your symptoms and limitations are well documented. Moreover, you have avoided the admission of contrary evidence (SSA’s doctor) that could be used to deny your claim. Using this strategy is usually only effective (and permitted) if you have followed Steps 1, 2 & 3 of this article. Of course, knowing how and when to utilize this strategy is critical.

    Step 5. Hire an attorney who specializes in disability law and has experience handling CFS cases I talk with and exchange email with hundreds of people nationwide who have been told it is virtually impossible to win a CFS disability claim. This simply is not true. However, I have talked with too many people who tried to represent themselves and lost. Don’t let it happen to you…you have too much to lose. An attorney who has experience representing CFS clients will help make the ruling a friend rather than foe. Hire an attorney who specializes in disability law as soon as possible after filing your claim so your case can be developed and the record protected. You have nothing to lose by hiring a quality attorney; in almost every case you only pay a fee if you win your case and obtain benefits.

    Remember, keep fighting for what you deserve and don’t ever quit!

    About the Author: Scott E. Davis is a social security and long-term disability insurance attorney in Scottsdale, Arizona. The majority of his disability practice is devoted to representing individuals with FMS and/or CFS. Scott has extensive experience in handling FMS/CFIDS cases and does represent clients throughout the United States. In most cases he charges a fee only if his client obtains benefits. He invites your questions and inquiries regarding representation at (602)482-4300, or via email:

    [This Message was Edited on 06/05/2003]
  3. DonnaMarie

    DonnaMarie New Member

    I got approved for SSD in the State of Georgia right at hearing. I was told I was the 1st case here in this state to be recognized as FM/CFS being a disability under the guidelines that Social Security has set. I cried like a baby when the Judge said, Miss, I believe you and I am approving your claim for disability. Let me add that I went for a closed period for the time only when I truly was house ridden. That time lasted about 2 years. I now work 2 businesses from home since I don't feel that a job out of the house would be good for my tender health. I own a booking agency booking singer/songwriters/entertainers to venues and I set up new accounts for another company.

    My lawyer told me that it is easier to get approved for a closed period than it would have been for an open ended claim. You might try going that way but I do believe that you need to have a diagnoses. I was diagnosed by a doctor in NY and then moved to GA and was diagnosed by 2 different doctors here.

  4. zggygirl

    zggygirl New Member

    Thanks for gathering all that info for me.
    Also I will print the "links" and check those out too.

    Lane, just one thought, I have not told my new doctor that I am pending a claim (this is very hard for me to do,the stigma I guess) plus we are just building a relationship. I have seen him 3 times.

    But it sounds ssooooo important to have them back us.

    My psyhciatrist has seen me for 3 years. The lawyers "post' said the a psyhciatrist can do the tests.

    Perhaps I should e-mail the lawyer to verify.
    Do you have some doctor that you can ask for help with your claim?

  5. MemoryLane

    MemoryLane Member

    Since I have no insurance and am now in the County Hospital healthcare system, I have all new doctors.

    I am also with a new PCP and building a relationship too, but he is not a "believer". My other new doc is a Psychiatrist and she told me to give him some time, as I have only seen him once and things are changing in respect to CFS & FMS. At least she acknowledges what I am dealing with.

    It has been recommended strongly by others, that you should always try and retain a specialist for your treating physician as they take better notes and usually dictate a report after each visit. They are frequently called upon to testify in court, so they are very disciplined in this method of record keeping.

    A general practice doctor doesn't have time to keep good notes, much less have a typed report. My old doctor did a lousy job of this, so when it came down to asking him for a letter to help with my claim reconsideration, he hand-scribbled a few statements and then had the nerve to charge me $150 for his time.

    Good Luck with your new Doctor,


    [This Message was Edited on 06/06/2003]