to lilwren: dr. in central florida

Discussion in 'Fibromyalgia Main Forum' started by jan a., Oct 11, 2002.

  1. jan a.

    jan a. New Member

    dear lilwren, was going back over posts from several days ago that I missed since I dont get on the internet all the time...saw you were looking for a dr. in central florida...if you have not found one yet I go to dr. David Reifsnyder...hes an infectious disease specialist and is constantly learning more abouts cfids...he will make many blood tests including for hhv-6 and mycoplasmas amoung many other including lyme disease and other tests regular drs. overlook...hes in clearwater , florida, has limited office hours and you have to send in your own insurance papers...you have to pay up front..but he knows his stuff and has many cfs patients....good luck with whoever you choose...his phone # is 727-446-3515.......
    Jan A.

  2. jan a.

    jan a. New Member

    dear lilwren, was going back over posts from several days ago that I missed since I dont get on the internet all the time...saw you were looking for a dr. in central florida...if you have not found one yet I go to dr. David Reifsnyder...hes an infectious disease specialist and is constantly learning more abouts cfids...he will make many blood tests including for hhv-6 and mycoplasmas amoung many other including lyme disease and other tests regular drs. overlook...hes in clearwater , florida, has limited office hours and you have to send in your own insurance papers...you have to pay up front..but he knows his stuff and has many cfs patients....good luck with whoever you choose...his phone # is 727-446-3515.......
    Jan A.

  3. lilwren

    lilwren New Member

    You are very kind for sharing the info with me. Thank you for taking the time and energy to do that - I really appreciate it.

    I have been seeing Dr R for about a year and a half, but he isn't really helping me over all. He treats me with pain meds, steroids, and anti-virals - and I just seem to get worse and worse. He isn't interested in talking about alternative treatments, and even got pissed at me for seeing a psychiatrist to help with the depression. I've done everything he has suggested and I just seem to keep getting worse. I'm due back for another blood test to check my HHV-6 and CMV viral loads. He has been the only doctor who believes me! Which is nice, but all the meds he had me on kept me vomiting and out of it. Maybe I will try to talk to him again.

    Thanks ever so much for taking the time to help me.

    love,

    Sharon L

  4. jan a.

    jan a. New Member

    dear liwren, wow thats too bad about dr. reifsnyder...I know hes not perfect, hes had me on stuff that was wrong too but he keeps me feeling that he is doing whats best...Ive talked to my regular dr. (internist about my illness) and she dosent have a clue so when I heard about him I thought finally some help.....he talked about steroids with me but I know they make yeast worse and I know I have yeast in my gut from all the antibiotics so I wouldnt take it....I am by no means cured but hoped he being so knowledgable was the answer...Its such a problem to find a good dr. for this illness....Ive even heard the famous dr. lapp hasent really made anyone well and hes supposed to be the best...I know someone who went to dr. cichron in tampa and he said he could only take him so far and he was no longer helping him so now he goes to reifsnyder....well at least Im glad I met another patient of his to get some input to how they are (or not) are being helped....If you hear of someone beter please e-mail me at janaschwanden@webtv.net