To Mercury (Sandra)...Re: fillings, hormones and chelation...

Discussion in 'Fibromyalgia Main Forum' started by nell-UK, Aug 27, 2002.

  1. nell-UK

    nell-UK New Member

    Hi Sandra...

    I know you are in a similar position to me believing that mercury is the cause of your illness, so I hope you don't mind me asking you a few questions?

    I have recently done a 24hr hormone test in which the results cam back as very high DHEA and cortisol, I have tried looking for info on this and can't find any, especially pertaining to mercury poisoning, do you know of anything?

    Also do you take anything to chelate your mercury? I am unable to tolerate most things (I have severe MCS)and have a hard time even taking supplements but I am at present trying "metal-free" although have only been on it a couple of days, have you tried this?

    I had all of my fillings removed a week ago, and am now looking to get the horrible stuff out of my system, have you had your fillings removed yet? I had then all done in one go with an I.V of Vitamin C and have actually felt better since, although that could be down to having an infected tooth out also.

    Sorry for all the questions, I am just interested in what stage you are at with all of this....

    Take care, Nell

    P.S. Forgot to add I have Andrew Cutler's book coming tomorrow also!



  2. nell-UK

    nell-UK New Member

    Hi Sandra...

    I know you are in a similar position to me believing that mercury is the cause of your illness, so I hope you don't mind me asking you a few questions?

    I have recently done a 24hr hormone test in which the results cam back as very high DHEA and cortisol, I have tried looking for info on this and can't find any, especially pertaining to mercury poisoning, do you know of anything?

    Also do you take anything to chelate your mercury? I am unable to tolerate most things (I have severe MCS)and have a hard time even taking supplements but I am at present trying "metal-free" although have only been on it a couple of days, have you tried this?

    I had all of my fillings removed a week ago, and am now looking to get the horrible stuff out of my system, have you had your fillings removed yet? I had then all done in one go with an I.V of Vitamin C and have actually felt better since, although that could be down to having an infected tooth out also.

    Sorry for all the questions, I am just interested in what stage you are at with all of this....

    Take care, Nell

    P.S. Forgot to add I have Andrew Cutler's book coming tomorrow also!



  3. nell-UK

    nell-UK New Member


    Love Nell
  4. rge

    rge New Member

    Nell

    Use DMSA -

    History ( very breif)

    self diagnosed Chiari Malformation - had decompression surgery in 2000 - symptoms continued and worsened

    self diagnosed Heavy metal poisoning - challenge test showed lead mercury etc. - this was according to a holistic doctor and allopathic doctors do not recognize these results. I had all of my fillings removed - 12 altogrther Chelated with DMSA - numbers came down- still sick - then 10 weeks of EDTA IV thearpy - still sick.

    (All of my medical docs were in Detroit area and I stayed at my brothers house - he has a well, not city water - and I always started to feel better while I was there and went down hill fast upon returning home)

    Rhum. Doc diagnosis of Fibromyalgia - 6/02

    self diagnosed Fluoride Poisoning - may 2002- one night I got sick after dinner - and a couple of days later I thought back about what I did different that nite - I drank three glasses of city water at that meal instead of milk. Fluoride calcium seeks and makes it less toxic.

    I did my own blind tests - I can pick out F water EVERY time - my daughter can tell by my eyes if I have had 3 glasses of water!

    I have confronted docs with this - Some look at me like I'm from outer space, some belittle me, others just laugh.
    My neurologist looked at me wide eyed and ordered serum and urine fluoride tests. He never called me back. I went and got copies 3 weeks later and both were ELEVATED - my blood levels are 10x normal - he has NOT dx me or schedualed another appmt. Romhatoligist dx me with fibro and then I told her about Fluoride - she doesn't want to see me again!


    I found Dr. Myra Preston PHD - of SIBER IMAGING who has a patented method of dx CFIDS through QEEG. I did before and after tests dirnking my city water and I think I now have proof that F causes brain damage in humans and is one of the causes of these "mysterious syndromes" CFS,FM,GWS, MCS etc.
  5. nell-UK

    nell-UK New Member

    Hello.....

    Oh my goodness, what a coincidence!! I knew there was someone else having theirs out after me, I can't believe we could meet here!!

    No I have felt worse too, to be honest. My teeth are very sensitive and I spoke to Mr Maioilini yesterday and he said that was normal. I have aslo felt quite spaced out and drunk since, I think the only reason I felt slightly better was because I had a wisdom tooth out which was infected amd getting rid of that made me feel better.

    I am unable to take supplements as I am so sensitive to everything so went ahead with getting the fillings removed anyway. I must admit walking down the stairs afterwards I was very shaky! And yes it was me chewing the charcoal tablets, takes me ages to swallow anything so I had a nice black mouth and tongue!

    So are you also a patient of Dr Hyams? Have you taken anything like metal-free yet? If you want me e-mail addy let me know, would be nice to talk to someone going through the same thing.

    Take care,

    Love Nell
  6. JaciBart

    JaciBart Member

    Hi, I am just on a rampage right now about this "fluoride" issue and mercury, aluminum, etc. Accdg to the info I researched last night a good chelating agent is alfalfa. There should be no side effects from this and it may actually help our IBS. I am going to start on it today. Soon as I can get dressed & go get some. Ha ha. Also, our hair can be tested for excessive amounts of these metals & toxins. I looked up the ingredients of my synthroid & fluoride is in there!!! We are being poisoned. Maybe our body is just ultra sensitive. Definitely worth checking into. I had all my silver fillings replaced yrs ago because I thought the silver was unattractive & white does not show, vanity sometimes is a good thing.

    jacibart
  7. tired42long

    tired42long New Member

    Hey guys. I have posted for Nell before. I have contacted an area dentist listed on National safe biological? dentist forum in the states. I am in Wisconsin. I am wondering what credentials to look for. Do all these "specialist" dentists have to fit some sort of criteria? I am so shocked that your doctor actually referred you to someone. Here, they think you are nuts beleiving your fillings have impact and you are on your own. I can't beleive this, as the FDA has even banned the disposal of the "used" amalgams for general garbage...it is considered toxic waste. Scares the B-Jesus outa me!!! I would like to hear more about the removals. Some of my teeth are so loaded with fillings I wonder how they can remove the amalgam without cracking the "shell" of the tooth. Any info would be SO appreciated. I am just in the early stages of starting...I will have to check if it is even "do-able" financially. Just want to know what I'm in for. And, WOW...talk about ironic that you two were both in the same place at the same time. It's a very SMALL world!!!
    Will add email addy if you will respond. Thanks. AND SMILE PRETTY!!
    [This Message was Edited on 08/29/2002]
  8. mercury

    mercury New Member

    I'm so glad you ordered his book. Guess what? I have how hired him as a consultant to assist in my recovery. He does do that also. He has your physician sign an agreement that he will consult and provide support and suggestions based on your particular situation. I have signed the forms at this point and so has my physician. I had my amalgams out three years ago and am still working on my recovery because I am "very poisoned". Your answers about the adrenals, DHEA and cortisol as related to mercury poisoning will be found in his book. You don't have to have him consult on your case if you don't want to. You can actually get well just by addressing some of the things in his book and having your doctor treat you for them and then you must chelate with DMSA or ALA in accordance with Andy's protocol for chelation schedule. Do not do a 3 day per week chelation schedule as this can poison you further. I am currently chelating 5 days on and 5 days off with DMSA and ALA (you'll read about that in his book). It can take up to a year to chelate the mercury. Meanwhile they key is to stabilize yourself as best you can so you can feel better NOW while you chelate. You'll read all about this in his book as well.

    Good luck and write anytime
    My personal email address is skg59@attbi.com

    Sandra
  9. mercury

    mercury New Member

    It is very important that you go to a dentist that follows a very strict protocol for amalgam removal, or they can make you sicker by poisoning you further with the vapors. The best and safest way to do it is to go to a dentist that uses Dr. Huggins' protocol (by the book). Go to hugnet.com and see his protocol. Then you can call his office and they will give you a referral to a dentist in your area that is trained "his way" to do this properly. I personally would not let any dentist remove my amalgams unless they are on Dr. Huggins' list. He is after all the pioneer on this who brought it all out into the open and then the ADA took his license away because he was "stirring up trouble" by realizing and reporting what the mercury fillings were doing to his patients. His website is very informative and I went through him for everything. I was refered to a holistic dentist here in Mass. by him. This dentist followed his protocol completely by the book, including taking the electrical current readings on the mercury fillings as to determine which quadrant to begin with and what order to do them in. This is all very technical but very important for your safety.

    Sandra
  10. tired42long

    tired42long New Member

    I am going Back to Dr. Huggins site...I missed the portion that gives trained dentist listings in our area. I hope there is one. Otherwise, the one I found near Milwaukee did say there was an 8 point criteria they have to meet to promote safety of ALL involved. I will take Dr. Huggins reports to this dentist at my consult. I am so happy you responded. I was pretty leary but it is easier when you know someone else has "been there". Thanks loads. Eileen

    Ps.This may be personal, and you don't need to offer , but how many teeth did you have worked on? My teeth are very bad due to dhildhood problems. I think I have only 10 unaffected teeth in my whole mouth. I am pretty scared of work AND mostly the cost. I sure hpe they set up payment plans .
  11. nell-UK

    nell-UK New Member

    Barbara, thanks for your e-mail address, I will e-mail you soon, I hope all went well with Dr Hyams, I was supposed to have a telephone consultation with him yesterday but it was changed to Monday.

    I didn't actually do the brown rice etc diet as I was trying to sort out other things before beginning, did it help? In the end I was having to go to have my wisdom tooth out when the dentist said well while I'm there I may as well take out the fillings, I was getting frustrated by lack of progress so agreed.

    I also didn't do the kilmer challenge test as I know there's no way I'd have been able to tolerate that, I did a urine test which was sent off to Germany but I organised that myself, not through Dr Hyams. The results were very high and that was without a challenge which Dr H said meant I was severely poisoned.

    Sandra.....I received Andrew Hall Cutler's book and it is very good and although I have only just started it, it makes such a lot of sense and it's nice to know you can recover. Do you visit the Yahoo group which he's a member of? I find that very useful for learning information, he does seem very knowledgeable.

    Eileen....Good luck in finding someone to help you out with all this, I suggest getting the book too if you can, it would be a big help to let you know where to begin with all of this.

    Jacibart...Glad you have had all yurs removed, apart from the safety of them aren't they awful to look at?!! Good luck with your health and finding a solution.

    Take care everyone,

    Love Nell




    [This Message was Edited on 08/31/2002]
  12. jenifurlii

    jenifurlii New Member

    I am new to this board. Yet to write my story--will do that soon, however I had to reply to this post. Having Fibromyalgia makes us more vulnerable to tooth decay--I have heard something about FMS patients having a certain enzyme in their mouth that causes excelerated tooth decay. So, then here we are...We need the fillings, we get the fillings (MOST OF US COMPLETELY UNAWARE OF AMALGAM BEING TOXIC), but then the fillings make our Fibro and autoimmune condition worse! Alot of us FMS people have Hypothyroidism as well--YET ANOTHER IRONY--Synthroid has Fluoride in it! I am sooooo frustrated. Does anyone else see the humor in this?
  13. tired42long

    tired42long New Member

    Thanks for info, I will find the book. And be very careful about finding a dentist. Wisconsin is near Canada---were both still in the ice age for alot of the year!!! It's only about a 9-10 hour drive to boundary...but I know that kind of travel is not gonna happen...riding sends me to the depths of HE*#!! I found a site on biological dentistry and it looks like most states have dentists on "biological war" with fighting for removal. They do discuss precautuions set up by the IAOMT---International Academy of Oral Medicine and Toxicology. Anyone heard of this organization?

    The cleansing of toxins from body sounds worse than the removal of fillings. but I know it would be worth it.
    To Barbara...thanks for in depth info...I looked and found I have at least 12 to do. And wonder...do they use amalgam stuff UNDER crowns? I have a crude bridge made completely out of metal...a little "train" of toxic teeth. (CHOO-CHOO--NOT FUNNY!!)
    I know the work on 2 teeth a couple years ago started part of this...I immediatley had all kinds of "thyroid" stuff going on---at least the docs said it was this even tho levels were normal. A growth in my thyroid did grow pretty fast after. Whacked out my whole body. go figure! How can a tiny little tooth filling mess up a body so much!Sigh!
    [This Message was Edited on 08/31/2002]
  14. sb439

    sb439 New Member

    I had a DMSA Kelmer (chelation) test done to determine mercury toxicity, and came down *very* sick for 10 days, although I am only slightly toxic. Have since read in a lecture by Cheney that he thinks some of his patients had brain damage as result of taking DMSA.

    Taking the test involves taking a large amount of the stuff at once, so small doses a la Cutler at regular intervals may of course be safe.

    Susanne
  15. jackiec

    jackiec New Member

    If you've been following SharonR's threads recently, we are doing a very simple-study (for our own personal knowledge, and who knows we may find a common thread to much of this). My part is tracking how many have been exposed to mercury (we chose the thermometer as a starting point, but are also taking yes/no replies regarding mercury fillings, or other exposure). If you're interested, please go to the thread: Mercury Thermometer- our simple "research" study here

    The message there states:
    "Who broke open and played with mercury when they were kids....accidentally or on purpose. We will keep track of it for our "research" project here. A simple reply is all that is necessary. If you need further explanation, see "OK, let's get serious" (started by Sharon R) "

    Thanks. J.C.