To people who get headaches, need some help!

Discussion in 'Fibromyalgia Main Forum' started by matthewson, Dec 31, 2005.

  1. matthewson

    matthewson New Member

    I hardly ever get headaches, except have had a few tension headaches and some painless migraines where you get the flashing light aura and then in 30 min. it goes away and I get a little nauseous but no headache.

    I started developing a UTI on Tues. Actually have never had one before and thought my bladdar was spasming and chalked it up to the FMS, but when I looked at my urine in a cup, it was very cloudy and stunk! (sorry!!!) Since I was off work, I couldn't get in to work and look at it microscopically (I am a med tech), so I just figured I must have a UTI. Meanwhile, I started developing a bad headache that felt similar to a tension headache. It would not go away as one's I've had previously in a day and 1/2. Friday, I went to a urologist that I had seen for other problems and he confirmed the UTI and gave me macrobid. I had hubby take me to the ER afterward to have them try to knock the headache out so I could go to work the next day. Sat. Well, they gave me tordol and it knocked it down a little, but was back up in a few hours. I ended up going back to the ER Sat morning, had to call in work, and then came the nightmare from you know where! Anyway, it was so bad of an experience, that I can't even talk about it without crying. Will try later to tell you the whole story.

    Anyway, they ended up giving me morphine and an anti-nausea drug, because I have been throwing up for days now! Then they sent me home with a prescription for vicoden 5.0/500. I STILL have the headache and that is after taking my tramadol and a 5.0 vicoden! At least I don't feel so nauseous now. They also did a cat scan and spinal tap in ER.- nothing wrong.

    Anyway, it feels similar to a tension headache, but with some sinus pain on laying down. It just feels like my head is full of water and it is pressing on my brain. The top of my head feels like it is going to explode!

    Can I pick your brains, you people who get headaches, as to what to do, what is this! I really get very few headaches and to have one going into the 5th day now is scaring me!

    Have an appt to see my int. med guy on Monday.

    Thanks for any info. you can give me!

    Take care, Sally
  2. matthewson

    matthewson New Member

    Bump please for some response.
  3. nanna4550

    nanna4550 New Member

    Sounds awful Sally. I dont think I have had a headache as bad as your, but when I feel one coming on, I take Midrin
    (generic name: Epidrin) and lay down with my sleep mask on.
    A cold pack at the back of my neck/head will reduce the inflamation at the base of the skull (heat will make it worse, so if you are using a heating pad- stop). I do put
    the heating pad on my lower back or stomach just to keep from getting too cold. If it is your sinuses, I have used
    heat on my eyes before and it makes them feel better.
    Also, I get dizzy and a headache from Vicodin.
    I hope you feel better soon.
    [This Message was Edited on 01/01/2006]
    [This Message was Edited on 01/01/2006]
  4. justlooking

    justlooking New Member

    My first symptoms of these DD were headaches that lasted for months on end, seriously. I went to every headache specialist in my area of a 2 year period and had every test known to man. I also tried every possible medication for headaches, from preventive to anti-inflamatory to pain meds. I'm no medical expert but I've been through it all.

    Let me first say Headaches stink!! They are definitely the worst pain ever and I feel for you terribly.

    Second, don't give up on getting something to end this one ASAP. I personally found Vicodin unhelpful in ending headaches, as a matter of fact found it caused my headaches to hurt worse. I would have to go to the ER sometimes to get shots, I found a combination of either Toradal/demeral or Ataran/vistiril to be the best working for quick resolution. Having your PCP call ahead of time to explain the situation will often help avoid the "drug seeker" attitude they give you and they will treat you much better... Otherwise, see your PCP ASAP and have them administer the shots and then give you something different to take home.

    What works for me, about 98% of the time is Fiorinal with Codeine and if that doesn't work I use the pill version of Toradal with it and that usually does it. There are times nothing works and I have to ride it out or go to my Drs for a shot.

    Hang in there, hopefully your Dr will call the ER and get you in today for help or your Dr will see you as soon as the open up again. In the meantime take an anti-inflammatory, a pain med and see if someone can massage your neck, shoulders and then take a warm bath and sleep. Oh a small bit of caffeine helps too!

  5. jake123

    jake123 New Member

    I think they didn't give you enough morphine at the ER. You should have been able to sleep through part of the next day.
    My ER doctor (if he is there) has a protocol (1) morphine (2)ativan (3)toradol (4)and something else, I can't remember.
    I sleep till about noon or so the next day but I don't get the headache back.
    Now I'm on Topomax 225 mg morning and night and Nortryptilene at night and I've gone ten days without a headache. If I get one, I have Relpax, Indomethicene and Phenergen. Oh, I also have been taking Skelaxin 800 mg. and I think that helps with tension also. It is so much better to prevent a headache than to treat a headache.
    Oh, yeah that is the fourth med in the protocol, Phenergan.[This Message was Edited on 01/01/2006]
  6. tansy

    tansy New Member

    be behind the continuing headache you have now? Some of the symptoms you describe are typical for sinusitis. Chronic sinusitis is common in these DDs and according to research at the Mayo this can be caused by IS reacting to a low grade fungal infection.

    Because I no longer have any feelings in my sinuses I missed sinusitis flaring up again due to a current viral infection. I tied lots of things in the past including sinus washes with salt, baking soda and xylitol; steroid sprays etc, but the most effective Tx for me was wild orgeno oil and a few short course of grapefruit seed extract. I have now ordered some wild oregano oil and also guai to thin down the mucous. In the meantime I am using OLE, garlic, and lots of vit C since I already have those on hand.

    I hope these awful head symptoms go away soon.

    love, Tansy
  7. pam_d

    pam_d New Member

    I wonder why they didn't at least TRY a triptan-type drug for migraine!! Such as Imitrex, Maxalt, etc. Since the painkillers are taking the edge off but NOT ending the headache, and since you are having nausea & vomiting, the most obvious thought, to me----and I'm not a doctor, of course, but a migraine sufferer----is that this is a migraine-style headache. I can't believe they did not at lewast TRY a triptan drug, worse case scenario is, it doesn't work. Best case, it shrinks the blood vessels in the brain, plus has the anti-nausea ingredient which all triptans have, and you finally feel relief!

    At least do a search on triptans & how they work and ask your doc on Monday. Somebody mentioned a sinus headache, but sinus headaches, while bad, usually aren't quite this painful & with all this nausea.

    Good luck, hope you feel better soon!

  8. ~Sibyle~

    ~Sibyle~ New Member

    My ER does the "Three Shot Wonder".

    1. Injection of Demerol
    2. Injection of Phenergan
    3. Nasal Imitrex spray

    Go home and put a cold pack on your head and neck and sleep for as long as you can. I have never had this approach not work for me.

    I suffer from chronic migranes. How fun!

    Hugs to you, I know how miserable you feel.
  9. matthewson

    matthewson New Member

    I knew you guys would come through for me! I will tell you the rest of the story now and it has to do with being made to feel like a drug addict!

    As some of you may know, I work in a hospital lab and have to use our hospital systems facilities. I live 35 min from work and the nearest place to go for ER is 25 min away. It is an er without a hospital, but my brother and sis-in law both work there and my brother infact DID my cat scan!

    I went once on Fri. and back Sat morning as I couldn't work in that condition and needed to get the headache stopped. I was given tordol on the first visit and left with a prescription for darvocet. Took the darvocet and honestly, did not feel any difference-it could have been a tic-tac for all it did!

    Then on Sat. they gave me dilaudid (which I remember having once before for something and it made me feel awfull! Also phenagren (sp). Nothing. Then he tried a muscle relaxer (possibly zanaflex given in port through IV. and more delaudid. That actually made my headache worse! Then he tried to do a spinal tap and failed and then they sent me by ambulance to a hospital that I worked at for the first 24 years of my career and I still know a few people there.

    Well, they basically would not give me anything UNLESS I agreed to a spinal tap! I basically was held hostage with no more help if I refused. My husband was really upset about the whole thing, but I was ready to do anything they wanted to get rid of the pain!

    I questioned why the spinal tap as I had no fever and the cat scan was normal and the anesthesioligist said, "Well you signed the paper." It went okay and of course came back normal. Then they gave me morphine, and phenagren (sp). When they gave me the phen. I started having involuntary muscle jerks all over my body! It was like an epileptic seizure! My husband got the nurse and they gave me some benadril in the IV port and said it was an allergic reaction!

    Through all this, I did everything they told me to do. The morphine knocked out the pain, but just before they were going to release me I could feel that it was going to start up again. I asked the Dr. what was she going to give me to take at home and that is when we started to argue.

    She said, well your headache is gone, so that's all we can do. You have a prescription for Darvocet. I said well if it would have worked, I wouldn't have come back! Then she said, I don't know what you expect us to give you and I said, I don't care if you have to lock me up on the psych ward, I am not going anywhere without something EFFECTIVE for pain. So they gave me 2 vicodin right then and there and begrudgingly gave me a prescription for 10 more 5.0's!!
    Whoopdedoo! I'll have a party with those!!! NOT

    I have not been in to the ER in 2 1/2 years and that was after my hysterectomy when this FMS first developed and I didn't know why I was in so much pain! One time in 2 1/2 years, did they really think I was a drug addict! Oh, by the way, I did say I had FMS, because I had to because they wanted to know what the tramadol and neurontin was for. I heard the ER Doc. tell the nurse that the headache was some kind of a fibro thing (her words about exactly)!

    I am planning on writing a letter to the administrator as I was treated pretty shabbily and I want them to know. They are pushing customer loyalty and I am going to tell them that I would never go back to any of our hospitals, except I have to because of insurance!

    I am so mad I could spit nails!

    Thanks again for your suggestions. I am going to print this out and read it thoughly and go from there. The pain has somewhat lessened and I am supposed to see my Dr. tomorrow.

    I think I will print this up and give him a copy also! Honestly, I'm 52 years old and not ever have I been treated with such a lack of empathy!

    It is a sad, sad world we live in. Take care, Sally
  10. Kacjac

    Kacjac New Member

    I'm so sorry you went through this, I also had a son, go to the ER for a severe headache, and was basically held hostage for the spinal tap too. I was so upset when he told me his experience, I could have also bit 10 penny nails! Whats up with these ER Doc's ?
    I can give you no advice on headache relief, because I'm also asking the same questions you are. I have recently started to have bad ones, and a couple of weeks ago, had one for 24 hrs. I took vicodin, 800mg.of Ibuprofen, Ice, heat, massage, and when nothing worked called my massage therapist on her cell phone, we met, and she worked on me for about 30 min. then I went home, and it went away an hour and half later. I have had one all day today, and can tell it's going into a bad one again. I recently had a
    CT scan done, because of chronic sinusitis, it was neg.
    I do have herniated disc, im my cervical area, don't know if this could be a problem with the headaches, or not!
    Can't take benedryl, or caffiene whatsoever, it will cause palpatations!
    So I can certainly have empathy for you, I hope we both can recieve the proper help we need, and get people to really listen, and that won't think we are just seeking drugs! Boy that makes me so mad!
    The last thing we need is to be really hurting and go to a DR. that has no sympathy.
    Hugz, to you, Sally, take care, Karen
  11. busybusymom

    busybusymom New Member

    Everything you were given would give me a headache! I am a person who suffers from chronic, daily migraines - nothing much helps except Midrin at times.

    I've taken vicodin, toradol, and Demerol (I assume it's similar to morphine). I have gotten terrible headaches from all of them - more like what you described, tension-like, pressure when I lay down. BUT, you could have developed a sinus headache somewhere, especially since you had an infection going already with the UTI.

    I hope you feel better soon - I know the pain you are in, whether it is tension, migraine or sinus - I've had them all! Another suggestion is a product called SalonPas. Have your husband go to the drugstore (or Costco sells them). They are patches you put directly onto your neck area. They help relieve some of my migraine pain, and since they are suppose to be used for muscle tension, they might work for your headache. Also, the heat on the face like the other poster recommended may help you feel better.

    Good luck.

  12. GranJan

    GranJan New Member

    is coming from having the spinal tap. Pulling fluid from your spine causes your head to throb when you sit up. You should stay laying flat until the headache is completely gone. This may take days. As far as the way you were treated in the ER, (I COMPLETELY UNDERSTAND) That has been the way I have been treated for years. Don't give up. The only lasting relief I have found for headaches have been Botox injections. I have been headache free for 90 days. My insurance paid for the injections also. Good Luck and God Bless.
  13. Kacjac

    Kacjac New Member

    Are you doing better now?
  14. matthewson

    matthewson New Member

    I took this week off because we go up to northern Michigan to my parent's house for a visit and to do some cross country skiing. I don't think I will be doing any of that this trip, as my back where they did the spinal tap is hurting and if I stretch, it makes it pull. So, after I see my int. med guy, I will be heading up north to relax.

    Thank God I don't have to go back to work right away. Calling in on a holiday is like the worst thing you can ever do there! I really don't want to face those people until I have had a chance to rest.

    The headache is for the most part gone now, but I still have some tingling in my scalp and mild pain, but the tramadol is holding it back from being worse.

    And as far as the spinal tap, I thought it was weird that they gave me no instructions to lay down afterward! When we got home from the ER, I did lay down the rest of the night and until late in the morning.

    I told my husband that we can not have any more big Christmas parties, as I think all the stress from that triggered all of this. We had 24 people at my house for Christmas! That's enough to do a normal person in! My whole family needs a reality check about this and my mom is on my side, so she is going to back me up on this.

    My husband just loves big gatherings, but I can't do it anymore. He has a super bowl party every year and I actually either work it, or go somewhere else as I can't take the stress from all of those yelling fools in my house!

    Thank you all for your suggestions and I have printed them out and written down names of drugs and am going to ask my Dr. to give me prescriptions for what he thinks I might need if this happens again.

    You guys are great! Take care, Sally
  15. Mikie

    Mikie Moderator

    I also have the ocular migraines but seldom the headaches to go with them.

    The UTI may be responsible for the headache. Whenever I'm fighting an infection, I always get a headache. It's unfortunate that they gave you Morphine for pain. Morphine is infamous for causing headaches or making them worse. When I have had to take Morphine for my FMS pain, it always left me with a headache for which I had to take Extra Strength Aspirin-Free Excedrin. The Excedrin knocks out a bad headache faster than anything I've tried, OTC or Rx.

    I also warm my hands and ice my head. I keep the gel packs in the freezer. I have a pair of electric mitts which warm my hands. This draws the blood flow away from the swollen blood vessels in the head and to the hands.

    I hope you are feeling better.

    Love, Mikie
  16. ~Sibyle~

    ~Sibyle~ New Member

    You might ask your doc for Zomig to have on hand. They even come in little dissolvable tablets in case you are nauseated with the migrane.

    I had pretty good luck with those. The other thing you can ask for is Imitrex. Imitrex is my favorite as it seems to always work for me. The nasal spray is the best. It comes in an injection too, be VERY careful taking the injectable form. I did once and it felt like I was having a heart attack. The doc had to give me something to counteract the injection.

    I hope you doc helps you better then those idiots at the ER.
  17. unbalanced

    unbalanced New Member

    I have suffered from migraines & tension headaches since my teens. I use ice packs for all of my headaches, I lay down where it is quiet, dark & cool(even in the winter). I will then pack my entire head in ice for about 30 min. then I keep it off for 30 min. Then back on for 30. When there is muscle tension involved I usually get that in my neck, I use a heating pad around my neck while I have the ice on my head. I must be a sight!! LOL. Sleep is also very, very important. I swear by sleep & ice for headaches!! I hope you feel better soon!!!
  18. pirtpain

    pirtpain New Member

    I have been having the same problem. I have had this headache for days. The difference is that I just had this flu virus. I was throwing up for 3 hrs. straight, and had it frm the other end too. I have been in bed for 4 days. Then this awful headache keeps coming back but today it just won't go away!! I had problems with dust mites which gave me a bad sinus problem a few weeks bk so my sinus' hurt but it also hurts in the temples and the front of my head & behind my eyes. Maybe you have this flu bug. Hope you get an answer soon!!

  19. zerped

    zerped New Member

    When I first started noticing my ME symptoms, I had about four days in the first 2 months where I DIDN'T have a headache. For me now, for example, the only thing I can do that really works is simply to lie on my back in bed, in the dark, not listening to anything. Yesterday I had a headache bothering me all day, and when it went away around 8 pm, I had been doing the 1/2-hour "quiet time" thing, along with LOTS of water, every 2 hours.

    After those first two months I mentioned, the big break was when my primary had me try nortryptaline and then amitryptaline. They take some time to build up in the body. Nortrypt. didn't seem to do any good, so we tried the amitryp. and I've been taking that since July 2002. A couple of times my doctor has had me take a "med vacation" since then and each time, I get a vivid reminder as to why I'm taking the amitryp.!

    Ask your doctor about these two. The only really good treatment we've found is prevention (I'm not working right now; SSDI case pending). Much easier to deal with the headaches now. Good luck!

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