To Shannon, Swood, and all other Wisconsinites--what docs?

Discussion in 'Fibromyalgia Main Forum' started by tired42long, Sep 16, 2002.

  1. tired42long

    tired42long New Member

    Hey Shannon, stephanie, and other Wisco-girls. I'm just wondering where you are finding help with doctors that don't just diagnose, but also have some input with your health afterward. My Rhuemy is listed on the "good doctor" list, but doesn't actually SEE "us" as patients after dx...that is up to our family practitioner. I only was able to see him once...then, as Emeril puts it BAM...no more! I see you are pretty close to me...am in Madison area. Shannon, i have a sister-in-law from Mayville and my husband knows a couple from there a few years older than you. It was nice to see some input from others near us. There are several I know from Madison I just happened to meet. And one neighbor right across the street has had this for 13 years---was a teacher and thinks got it from mold in the school she taught at. Shannon, what did you mean about the QUAD? Is that some form of electrical transformer. One lady in Madison is really into electromagnetic stuff causing this. I think I was affected by the last house we lived in also, moved there in Aug 2000 and immediately symptomatic. We suspected electrical problems as the transformer was in our back yard and supposedly stray high-frequency came back into the house. Can you beleive we were getting radiomusic on our computer speakers and the computer was TURNED OFF! My husband is an electrical engineer and freaked because he said "that's not possible". ANyway, trying to see what we in this area could have all been exposed to. For me, they first thought was Lymes. Blamed it all on thyroid at first til a flu finished me off. Sick 19 months. I've heard that a bunch of kids in Green Bay area are sick with this....all at once, about a dozen. Makes you wonder. Do any of you have strenth to go to support group meetings anywhere?
  2. tired42long

    tired42long New Member

    Hey Shannon, stephanie, and other Wisco-girls. I'm just wondering where you are finding help with doctors that don't just diagnose, but also have some input with your health afterward. My Rhuemy is listed on the "good doctor" list, but doesn't actually SEE "us" as patients after dx...that is up to our family practitioner. I only was able to see him once...then, as Emeril puts it BAM...no more! I see you are pretty close to me...am in Madison area. Shannon, i have a sister-in-law from Mayville and my husband knows a couple from there a few years older than you. It was nice to see some input from others near us. There are several I know from Madison I just happened to meet. And one neighbor right across the street has had this for 13 years---was a teacher and thinks got it from mold in the school she taught at. Shannon, what did you mean about the QUAD? Is that some form of electrical transformer. One lady in Madison is really into electromagnetic stuff causing this. I think I was affected by the last house we lived in also, moved there in Aug 2000 and immediately symptomatic. We suspected electrical problems as the transformer was in our back yard and supposedly stray high-frequency came back into the house. Can you beleive we were getting radiomusic on our computer speakers and the computer was TURNED OFF! My husband is an electrical engineer and freaked because he said "that's not possible". ANyway, trying to see what we in this area could have all been exposed to. For me, they first thought was Lymes. Blamed it all on thyroid at first til a flu finished me off. Sick 19 months. I've heard that a bunch of kids in Green Bay area are sick with this....all at once, about a dozen. Makes you wonder. Do any of you have strenth to go to support group meetings anywhere?
  3. contessa

    contessa New Member

    I hooked up with Dr. Jack Lockhart at the Gunderson Clinic in LaCrosse. It's was a long drive but once the initial exam/interview is over I see him as a visiting specialist at the Hess Memorial/Mile Bluff Clinic in Mauston. He's a wonderful listener and works with me on issues, changes, and has encouraged me in my efforts to claim disability. He personally has arthritis, which he why he became a rheumatologist. Lots of empathy from him. La Crosse is a two hour drive for us, and Mauston is around 50 mins. I could go to Madison to find a specialist but I'm going to stay with Lockhart. The Mauston Clinic is large, modern and well equiped to handle just about any testing procedure.
  4. klutzo

    klutzo New Member

    I am from Madison, but live in Florida now. I've lived in Florida fo 22 yrs. and a still homesick for the Madcity! I can't believe you can't find an excellent doc at the U.W. If you can't find one there, then God help us all!
    Klutzo
  5. shannon

    shannon Guest

    When I asked about quad I ment the Quad Graphics plant in West Allis. I think I got this DD from mold that was in an old home of ours. I actually gave up on reg. Doc's. They all seem to want to throw drugs in your face to help you cope as well as keep you away from their office. I now see a wonderful chriopractor named Dr. Regalman who is very understanding and wants to help you by doing things very naturally. He does classes on fibro. and what it does to your body. He is in Mayville. He is by far the best medical doc. I have found to help me. I see him three times a week.
    So if you do not mind me asking what are all your symptoms?
    mine are thyroid disease, cfs, fibro, mps, dizzy spells, pain everywhere but alot in my lower ribs, headachs, burning in my tummy, leg pains, no sexual drive at all, lightheaded, weak, tired and i know their is more but those are the biggies...
  6. shannon

    shannon Guest

    just letting others around our area see your post
  7. tired42long

    tired42long New Member

    Symptoms....well I think it's gone back to my early 20's. Started getting weak, headaches and dizzy with heart irregularities. They said it was minor hyperthyroid and also depression...convenient for them to say, since I'd just had my second child. Was on top of the world and it just hit. I really wonder if I was hit with Lyme then, as I went deer hunting with my husband (at the time) and wonder if I got a bite. It just didn't seem right for all hell to break loose for no reason. It hit again about 5 years later, they definately called it thyroid problems plus a lot of divorce and financial stress probably caused some situational depression...or just chaos. I got to the point I couldn't walk...had to crawl to the bath and kitchen...I was so exhausted and limbs so weak. Got a break from the severe stuff for about 7 years (but never really the same)while I went back to school, met my husband (now), got married, started working, having more kids....and then the mysterious "thyroid" problems hit again...Right after we moved into a certain house.I did have a growth removed just 3 months before I crashed after a flu hit the family. A barage of symptoms hit me like a train...weakness (I collapsed at work a week after the flu and never could go back), heart irregular stuff followed by dizziness and passouts, severe headaches above the right brow and at the base of the head, severe brain drain, vision changes, constant ear ringing that has never left for one minute, unrelenting pain under the left rib--very deep, sore joints in hands---mornings can hardly open my fingers, changes with cycle and "very heavy days", and not constant, but lots of pain and lock-up in right shoulder, mid upper back, and base of neck on r. side. When this happens, I literally can't move and have to hold my right arm close to my body or I am so busted by pain I am ready to puke (sorry, I hate that word..lol). Have been in by ambulance 4x in last 19 months with what seems to be cardiac problems but what they say I have is "not serious or life-threatening". Was feeling a tiny bit better in mid-May and all of June and the S#&& hit the fan again. It's made me mad enough to find out info, write to docs, demand tests, and READ, READ, READ.This site has helped me develop a healthy anger and use it to my benefit. I also just last week finally saw a Chiropractor---wish I could go to Corpus C...I have a cousin who is one there....free sessions would be ever so nice!! I don't like to take drugs, as am very sensitive to lots of them, along with a lot of other environmental and food stuff now too. I agree with the drug issue, they throw them at you I think to just shut you up. I have several young kids I need to be available to mentally and not shut down by drugs. I do take thyroid med (the smallest dose available) and a half tab of a sleeping type med. Just started adding different vitamins. Am hoping to order some supplements and things, but am scared of any reaction and wonder if I have good absorption anyway. Have heard alot about the yeast thing and believe Ihave a problem with that. (Was on antibiotics 3x in last year and always end up w/ yeast. I think it's never really gone away.) Have been talking to one good affected friend ---she even got me in a UW study about electrical waste effect on "us". Also, an old doctor friend who did 5 back surgeries on me in the 80's has been helping me alot. His wife has been affected for years and had taken her to a clinic in New York, Dr. Sherry Rogers, who has many books out about this and also personally affected---and also took his wife to Dallas to Environmental Health Center. Have been discussing mercury toxins and also toxins in drinking water. I am hoping to put a good water filter in but we are most times financially drained. Too bad good medicine wasn't around for ALL of us. OMG, I din't mean t write a book. Just glad to see others in our area...it sucks to say that, but support does help.
  8. tired42long

    tired42long New Member

    Sounds like you found a very good doc. I know La Crosse area some. I can't travel very far or it puts me in painful "crashes" with heart irregularities and just pain in general. I am hoping to find a doc that will consider alternative medicine and stop throwing pills at me. I want to work more on avoiding the causes of flares, not just covering them up. Thanks so much for your response. Read your bio...man, so many have really been through hell in our lives. God bless you girl!

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