to those taking oxycontin & morphine.

Discussion in 'Fibromyalgia Main Forum' started by oceans, Jan 7, 2003.

  1. oceans

    oceans New Member

    i've read a lot about oxycontin and i was under the impression that most doctors were apprehensive & unwilling to subscribe it for chronic pain sufferers, as well as morphine.

    exactly what are the effects of such drugs & side effects?
    how well does it manage pain?

    was your doctor apprehensive about prescribing such opiods?

    what is the difference between oxycontin & morphine?

    has your quality of life improved?

    how should i approach my doctor on this topic?

    i'm in severe, chronic pain and i wonder if this is something i should consider for those especially horrific days.

    i'm concerned about long term addiction, even though taking pain meds is always my last resort during a bad day, i wouldn't know what to expect with these kind of drugs.

    thanks & take care,
    kate.
  2. Skull

    Skull New Member

    You didn't say what causes your pain. At this site,
    FMS is often the tip of the iceberg. However, most of us
    have been the opiod route and it doesn't help for FMS pain.
    If you have Degenerative Discs or some other Chronic Pain
    causing condition, then you will find some relief from pain
    but with an nearly unbearable side effect...super-constipation!!! If you have the IBS that most of us do, then
    you know that can be as bad because of all the gas and bloating and general embarassment along with the real problem of figuring out how to "get moving" again. There is
    no opiod that is not constipating to the nth degree!

    As far as our FMS pain, for whatever reason, even high doses
    of morphine don't work and I, and others I know, don't even
    get a "buzz" from any pain killers- even morphine! Addiction
    is not an issue for us. Any doctor who has a significant Chronic Pain practice will tell you that people in pain don't get addicted because we virtually can't get high. We
    can become dependent on them if they do relieve our pain, but we don't turn into drug addicts so don't worry.


    practice
  3. catgal

    catgal New Member

    Hi Kate~~Around here I found that many doctors are highly reluctant to treat chronic pain with narcotic pain relievers for fear of addiction and the DEA looking over their shoulder. Oxycontin is one of the drugs that has to be written every month in triplicate form and good chart documentation for long-term use.

    I have FM/CFS, osteo/psoriatic/rheumatoid arthritis, severe asthma, allergies, and degenerative disc disease (ddd) with multiple back problems. It wasn't until I was diagnosed through an MRI with ddd that I was able to receive any narcotic medications for pain relief--and it took me 3 doctors to find one that would help me. However, narcotic pain management was a last resort for me as I tried many other alternative and traditional treatments that were documented before I decided to try narcotic pain management out of desperation.

    My 3rd physician had no problem prescribing oxycontin for me and was the one who suggested it. I was on 10mgs 3x's a day with 10mg percocet for breakthrough pain, soma for a muscle relaxer (spasms), and klonopin for restless leg syndrome and sleep. I followed this protocol for 2 years, and just last month had to have the oxycontin increased to 20mgs 3x's a day.

    Oxycontin is not for acute, fast, pain relief. It is a slow release, and you may have to do some trial & error with it before you find the appropriate dose for you. It is expensive. I just got my meds refilled today, and 90 of the 20mg oxycontin cost me $207 (no insurance). I use the fast acting regular 10mg percocet for breakthrough pain and immediate relief. The literature on the oxycontin says a pill will last 12 hours, however, I found it only lasted 8 hours for me, and that is why I take 3 a day instead of the usually prescribed 2 a day.

    When I first started on the oxy, I had a bad headache for the first 10 days while my body adjusted to it, and then I had no problems at all. Since I was born with asthma, allergies, and IBS with constant diarrhea--I have no problem whatsoever with constipation. Infact, the narcotics have improved the diarrhea, and I actually have some normal, solid, regular bowel movements in the mornings.

    However, my physician and I feel that I am still undermedicated plus my medical expenses run me $500 a month, and I only work part time with no benefits, no insurance. So, he has referred me to a Pain Specialist that I will see this month to maybe find a stronger, less expensive pain med that will get my pain under control.

    I get no high, no rush, no euphoria, no psychological payoff from the narcotics--just relief. However, after taking these narcotics for 2 years, I have built a physical dependence on them. I only carry with me what meds I will use for the day or when I'm traveling, and once I was delayed getting out of Oklahoma due to bad weather for 4 extra days which I had not included medication for. And, I went through some extremely wicked withdrawals.

    Oxycontin at the right dosage is a very good, long-term, slow release pain reliever. Except for the first 10 days of adjusting to it, I have not had any side affects.

    I have not taken morphine, so I cannot compare it--only know that it is considerably cheaper than oxycontin.

    I find that the narcotic pain management has been a God-send to me not only with my back problems, but with the constant aching of FM and the arthritis. Though I am not completely pain free yet--for the first time in my life I do have relief. I could never get anyone to help me with the pain of the FM/CFS.

    But oxycontin is not a fast acting drug to be used on and on & off basis. There is oxy IR (instant release) you can get for that.

    If you suffer from debilitating, chronic pain, and it is demoralizing the quality of your life, I would encourage you to see a Pain Specialist. Pain medications are their speciality, and they are not afraid to treat chronic pain with appropriate narcotic pain medications like some physicians. Best Wishes, Carol...
  4. layinglow

    layinglow New Member

    I have FM and have found significant pain relief with opiods.

    I also found this you might be interested in.
    Some US reknowned FM/CFS specialists and other sources:

    "PAIN A Clinical Manual for Nursing Practice", by McCaffrey and Beebe.

    * "No evidence supports fear of addiction as a reason for withholding narcotics when they are indicated for pain relief. All studies show that regardless of doses or length of time on narcotics, the incidence of addiction is less than 1%."

    * "Research shows that, unfortunately, as pain continues through the years, the patient's own internal narcotics, endorphins, decrease and the patient perceives even greater pain from the same stimuli."

    Devin Starlanyl On Medications For Fibromyalgia:
    "Prolonged use of narcotics may result in physiological changes of tolerance or physical dependence (with- drawal), but these are not the same as psychological dependence (addiction)."

    Robert Bennett, M.D., on Treatment of Fibromyalgia in Detail
    "Narcotics (propoxyphene, codeine, and oxycodone) often provide a worthwhile relief of pain. In most patients, concerns about addiction, dependency and tolerance are ill founded."

    "Currently, opiates are the most effective medications for managing most chronic pain states (Friedman OP 1990, Portenoy 1996). Their use is often condemned out of ignorance regarding their propensity to cause addiction, physical dependence and tolerance (Melzack 1990, Portenoy et al 1997, Wall 1997).

    While physical dependence (defined as a withdrawal syndrome on abrupt discontinuation is inevitable) this should not be equated with addiction (Portenoy 1996). Addiction is a dysfunctional state occurring as a result of the unrestrained use of a drug for its mind-altering properties; manipulation of the medical system and the acquisition of narcotics from non-medical sources are common accompaniments. Addiction should not be confused with "pseudo-addiction". This is a drug-seeking behavior generated by attempts to obtain appropriate pain relief in the face of under-treatment of pain.


    LL

  5. Sunshyne1027

    Sunshyne1027 New Member

    I have been trying to get a higher dose, something more helpful with the pain, in order to have a somewhat normal day.

    I been fighting with my doctor of a year to up the dose, and he finally has.

    I have been in a flare, like no other I have ever experienced. I was able to deal with the pain, cope with it for a year and a half or more. This time around, its unbearable.

    My doctor upped my pain medication from Tylenol 4's to vicoden 5/500. I know there is a stronger vicoden out there and I am going to try and get a script for that next. I have been reading about oxycontin. I never heard of it, until now. The vicodin, it dont even touch the pain, maybe a hour, thats it. I dont want to abuse it, so been taking it like prescibed.

    I cant sleep because of the pain. I cannot go outdoors, anywhere because I am not functioning with this sort of pain. Its in my right hip, leg, neck and back.

    Alot of great info within this thread/post. Thank you!