Today I think I met Satan

Discussion in 'Fibromyalgia Main Forum' started by TiredbutWired, Aug 29, 2002.

  1. TiredbutWired

    TiredbutWired New Member

    Today I think I met Satan he was posing as a doctor to help sick people.But as soon as he saw that I was balancing on a very small ledge and I mentioned that I had just came from a cfs specialist.He had no time to look at my test results or exam me.His eyes gleamed red and he said I FIND THAT THERE IS ABSOLUTELY NOTHING WRONG WITH YOU!I cryed and almost fell off the ledge but then I stood up for myself and all of us.He said he did not believe in cfs or fibro and that we are such difficult patients that they had to start creating places for us to go.I said is that why John Hopkins has a research center for cfs and he said yes they had to send us somewhere so these doctors just jumped on the wagon to make a living.I said so you are telling me that I just woke up one day along with around 800,000 other people and decided to give up everything I love and be bedridden.He told me to stop taking everything I was on including my vitiamins because we get everything we need from our food and to go on a antidepressant.I said I am not depressed I am sick and I have plenty of abnormal test to prove it.He said there is no proof just people complaining and being tired.He was a primary doctor that I will not be seeing again,even when I told him I fainted 2 days ago he did not care.I ask you who is the sick one him or me.I truley hope he does not come down with this TIRED disease!
  2. TiredbutWired

    TiredbutWired New Member

    Today I think I met Satan he was posing as a doctor to help sick people.But as soon as he saw that I was balancing on a very small ledge and I mentioned that I had just came from a cfs specialist.He had no time to look at my test results or exam me.His eyes gleamed red and he said I FIND THAT THERE IS ABSOLUTELY NOTHING WRONG WITH YOU!I cryed and almost fell off the ledge but then I stood up for myself and all of us.He said he did not believe in cfs or fibro and that we are such difficult patients that they had to start creating places for us to go.I said is that why John Hopkins has a research center for cfs and he said yes they had to send us somewhere so these doctors just jumped on the wagon to make a living.I said so you are telling me that I just woke up one day along with around 800,000 other people and decided to give up everything I love and be bedridden.He told me to stop taking everything I was on including my vitiamins because we get everything we need from our food and to go on a antidepressant.I said I am not depressed I am sick and I have plenty of abnormal test to prove it.He said there is no proof just people complaining and being tired.He was a primary doctor that I will not be seeing again,even when I told him I fainted 2 days ago he did not care.I ask you who is the sick one him or me.I truley hope he does not come down with this TIRED disease!
  3. glendamarie22

    glendamarie22 New Member


    I have been crying for the past several days about the exact same thing. I keep a good attitude almost all the time, even though I had to quit school and work and have almost no social life anymore. But when someone belittles me and acts as if I actually WANT to be sick, therefore I AM.........................I come unglued! I have had several doctors say to me what that quack told you. I have been passed from doctor to doctor and have had awful experiences in my last two tries to find someone who can help. How can these people be so uneducated when there are tons of books being written about this condition???? It boggles my mind.
    I don't know what to say to you except, please try to forget him. He is obviously not worthy to be called a physcian. Keep looking for a good one - I have heard they're out there. Keep your head up, sweetie.

    ~Glenda
  4. BonnieQ

    BonnieQ Member

    Sorry that you went to such ignorant drs. Please contact your local Arthritis Foundation and they will give you the names of drs. that specialize in Fibro! Also check out the list for good drs on this board! Good luck!
    Bonnie
  5. jackiec

    jackiec New Member

    These posts make me very sad, and VERY angry! After reading them I got to thinking----I wonder if any of us has NOT encountered such cruel attitudes from doctors along the way of our search for good care?

    I hope doctors like these get reported to the medical board. This ignorant attitude has to be stopped!

    Much loving support, J.C.
  6. TiredbutWired

    TiredbutWired New Member

    But I am very fortunate to being seeing a great cfs/fm specialist.I do not know if I can mention his name have not been on here long enough to know rules.But since he lives out of state it is a requirement of his to have a primary physican to work through.I asked them while I was there what if my primary does not beleive in this and all the meds I am on and they told me to not worry about it and they would make sure I got my meds and they would even talk to the doctor,but he is not worth the effort.Did you ever see 20/20 on the guy that was pretending to be a doctor for years and treating all these patients without a license that is what it made me think of.He did not even have any intelligent comments.I have really been about as low as you can get the last few days but for some reason I feel stronger because I did not just sit there and cry I spoke my mind.Maybe that is a part of a new me that can accept!So now I have to call the specialist to get my refills and either travel there to see him or maybe work through a cfs specialist from here.No more primarys for me!
    [This Message was Edited on 08/29/2002]
  7. BonnieQ

    BonnieQ Member

    I thought it was your fibro/cfs dr. but it was your primary dr. Sorry, sometimes with all the posts I read toooo fast.
    I am fortunate, my dr. has lupus herself, not that she is fortunate to have it, but I am fortunate as she seems to understand this dd as she herself has had some terrible bouts with lupus and knows what it is like to deal with a horrible disease.
    Bonnie
  8. TiredbutWired

    TiredbutWired New Member

    I found my doctor off that list.What a blessing!Tracey
  9. Shirl

    Shirl New Member

    Sounds like you saw the 'old dragon' face to face! Glad you gave him a dressing down, he sure deserved it.

    I would love to see those type of doctors deal with these two illnesses for just about a month. Then I would love to ask them if they still thought it 'didn't' exist!


    Glad you have a good doctor, and don't need to see this jerk again!

    Shalom, Shirl
  10. herblady

    herblady New Member

    yes you did meet satan. what a sorry excuse for a dr. my advice is always get another dr. give your good money to a real dr., not an evil demon. too bad you didn't tell him off right then and there. it's not too late, write the a**hole a letter. i get so mad when i read about these idiots who are supposedly healers. b.s.! i really feel bad for you honey. cindi
  11. dartgirl

    dartgirl New Member

    I wandered over here from the depressed board...this thread has a catchy title (hehe). Doctors tell people to take an antidepressant waaay too much. Other problems DO exist, that are more often than not physical...:p
    Well I had to say that this man sounds like a complete jerk-off. Why oh why are there doctors like this in the world...?
    Well, take solace that there's a doctor somewhere who knows what your ailment is and how to properly treat it.
  12. TeaBisqit

    TeaBisqit Member

    I found out two days ago that my doctor is moving out of state and the clinic is giving me someone new. I didn't make it to my car in the parking lot before starting to cry. I told her I am worried about getting a new doc for this very reason, we are so stigmatized by the horrible name of the illness. All they have to do is see Chronic Fatigue on my charts :( Give it any other name and we will be treated with some respect and dignity, but call it something stupid like that and they automatically decide you're just crazy. I had a terrible experience once with a rhuematologist. She had already decided before I ever walked in the door that everyone with our illness was full of it. So I was dead before I ever said anything. She was so mean to me that I was practically suicidal when I left her office. The lack of compassion and understanding is just amazing. I still believe that it's the name. The name should have been changed a decade ago.

    TeaBisqit
  13. klutzo

    klutzo New Member

    This doctor refused to examine you??? Then you and your insurance company don't owe him a dime. Threaten to take him to small claims court if he sends you a bill for that non-exam appt. Threaten to call your local "on Your Side" news channel...I assume you have a channel that does look into people's consumer complaints since they are everywhere, and have them look into this. He is a provider of a service and he failed to provide that service. If a plumber came to your house and said to you: "I'm not going to fix the faucet you called me about, but here's a bill for $200", would you pay him? Let's start hitting these bast**ds right in the pocket since that's the only thing they care about.
    Klutzo
  14. gentlee

    gentlee New Member

    TiedrbutWired
    I am really sorry to hear about the dud doctor. I hope you find another one who is more knowledgeable soon.

    When I was ordering my creatine stuff the local pharmacist, who I normally have a good rapport with, made a throwaway comment about how in his opinion, most of these complaints are psychological. I told him, in front of a large crowd of customers, that it is precisely attitudes like this that have caused a lot of people to be even more ill and that CFS is a physical condition affecting the central nervous and immune systems. He stopped arguing! I hope he learned something...

    Good luck anyway. We must all keep fighting this ignorance!
    Liz
  15. TiredbutWired

    TiredbutWired New Member

    I know exactly how you feel!!!To be very honest I have been suicidal for a few days and even did some very stupid things that I am ashamed of.I was not looking forward to going in to see him because I just did not care.Then when I went down to the car to wait for my husband,I thought I wish I still had that gun in the car.THen I thought NO that would just prove him right that this DD does not exsist and I was just depressed.I actually feel more confident and that visit shifted my emotions and put a little fire under my but.I do think that it is very sad that if I was only depressed and nothing else was wrong with me that his behavior could have clearly pushed me over the edge.I read somewhere that they said it was going to take a long time for the doctors to swallow and admit that they were wrong.I beleive on the I Remember Me tape that one of the doctors admited he was wrong.They did not beleive in many of the other diseases that are so widley accepted now.My body may still be very weak but my spirit is getting stronger.That is a positive change that I will gladly embrace as part of the new me!!!Love,Tracey
  16. kitkat623

    kitkat623 New Member

    How dare he!!! This disease has been accepted as a real illness for years! He is only showing what an unstudied, ignorant creep he is! Hanging's too good for him, but since that's unlikely, staying away from him is the healthiest choice. I'm angry and sorry that you had to be put through this when you are feeling unwell and in need of help. Good for you for not going back! Be well, Kathy
  17. MicheleF

    MicheleF New Member

    So sorry you're going thru this. But pat yourself on the back for sticking up for yourself & the rest of us.

    He sounds like he's suffering from Disturbed Physician Syndrome (DPS)!! lol (I made a post earlier on it.)

    Don't give up. There are good doctors out there, it just takes some of us a little more time to find them.

    Take care, don't give up & don't give up hope! Michele
  18. nana42

    nana42 New Member

    I am new to this board as far as posting. I have been reading for quite a while. I met my Satan the end of June. I was referred to a neurosurgeon after my most recent MRI showed further progressing in my degenerative disk disease. Not only do I have to pay his $206.00 out of pocket, I had the priviledge of him calling me physcosymatic. My husband was with me, and both of us came out of there thinking he needed to turn in his white coat and begin repoing cars, furinture, houses, exc. He was the most obnoxious, self-centered, egotistcal person I've had the misfortune to meet. The worst part is, if I had taken my pet to a vet like this, I would have told him off and walked out. No, I was polite for 15 minutes, and depressed for weeks. I have been battling depression for over a year, and after his visit I was afraid to return to my primary Dr. or even therapist! All I can say is he is not as educated as he feels he is.
  19. jmWitt

    jmWitt New Member

    These medical professionals who do not wish to take on the responsibility for treating persons with FMS/CFIDS should hang a sign in their office waiting rooms, add a "caveat" to their computerized phone menus, or add it to their listing & specialty Advertisement in the yellow pages! Most of us manage to cope enough to stay employed, run a home, and mother our children. We miss enough work days due to illness! We must be careful how we manage our small bit of personal time we must use for our medical visits, tests, therapy (shrinks) etc. You have been victimized twice

    #1) Suffering from a poorly understood collection of symptoms that are as yet only linked as a "syndrome" that has no true TEST (except for Polymer Antibody)

    #2) Victimized again by a doctor, (one who doesn't even know you yet) who chooses to act unprofessionally, venting his feelings and frustration and ignorance on a suffering & unprepared patient. The obscene thing is that of course you are PAYING him for him to speak to you in such an unacceptable manner! I am sure he charged you for an office visit, where he chose not to treat you, but lambast you and all FMS patients in general.

    This sounds like one of those "spiritual attacks" that some female TV minister has written a book about! An attack in which he, the doctor, INTENTIONALLY inflicts additional harmful stress on a patient who already suffers from an illness that is exacerbated by stress.

    This scenario happens way too often, I would bet. I'd love to have this web-site take a POLL of all folks (members and visitors) who have been verbally "abused" by this type of behavior from a medical professional (an M.D.). It is no wonder that our guts twist and we have high blood pressure when we visit a brand new doctor, since we do not know what kind of emotional damage we are going to have to endure. We think it is a successful visit if we are not insulted! No matter if the doctor is any GOOD or not, or admits to having other FMS patients, or is even familiar with our illness; even if he doesn't even offer some sample medications or some reprint of an article with helpful suggestions! We feel that we've found a doctor who can help us, and that we had a good visit if we ARE NOT INSULTED during the first appointment!

    We are the least empowered population of patients they treat! They know we approach NEW doctors with a great deal of anxiety and will remain passive in the face of such inexcusable behavior!!! (He would not have behaved in this manner if he had not gotten away with it one too many times previously). One thing that causes me terrible pain flare-ups is being subjected to unavoidable stress, and this incident definitely falls in that category! You were a "captive" audience and got used as an emotional/verbal punching bag. He's probably gotten away with speaking in such an intimidating manner to other FMS patients during his years of practice (if he's an older doctor which I am guessing he is). I would bet he has never even been "written up" by any licensing board or brought before an ethics panel! Doctors like this one MUST get a message from the growing population of FMS/CFIDS population and their insurance providers that they will not tolerate such boorish behavior. Doctors are sanctioned and disciplined for just touching someone wrong during a physical exam, and it is my opinion that you are injured more, psychologically by what you were put through today! FIGHT BACK! If your HMO or insurance company has made him a member in their contractual arrangementes with "Preferred Providers", you have an advocate. If you contact your group insurance carrier, and file a complaint against this particular doctor, you can feel that you have been able to fight back against feeling victimized! During his ranting about his personal feelings concerning patients with FMS, if you felt psychologicaly harm or a harmful intent, then his display of unprofessionalism violated the expectations of the Board who examines such complaints from patients. If your insurance company recieves another complaint or two, concerning his personal behavior, he will be taken off their "PPO" list, and will lose "paying business". They do write a warning letter, before taking action, and he will be notified in writing that his behavior will not be tolerated and that it is unacceptable among doctors in their orgnization.

    A letter from your insurance carrier, or from the State Board of Medical Professional Ethics will cause him to take notice much more quickly than if you just don't ever cme back (which was his purpose, anyway). Losing one patient who has FMS is not a great loss, but losing all patients with a particular PPO due to unprofessional behavior toward one FMS patient will make him sit up and take notice! It will also cause him to re-examine his position towards FMS patients in general. Stands to reason that if insurance companies feel legally bound to pay claims for FMS patients doctos' visits and claims for their many medications, then he may wish to re-examine HOW he treats FMS sufferers.

    You can go on the internet, to SSA.gov site, and print out the Social Security Disability Ruling SS 99-2p and mail it to him. Sounds like he needs to be informed and up to date and recognize that FMS/CFS are REAL and debilitating enough to cause people to become unable to work, and that the Federal Government has finally even recognized that fact. If he learns that the U.S. Social Security Administration recognizes FMS/CFIDS as a valid diagnosis for receiving Disability Benefits, he will perhaps change his opinion about us FMS patients - that maybe we are NOT nuts, but jsut plain sick and tired of being sick and tired to the point of suffering "Mood Disorder resulting from Chronic Pain". (Sounds like he was just plain RUDE and boorish, and wanted to make sure you never darkened his door again, and that you'd tell all your fellow FMS sufferers that he doesn't "fool with Fibro patients". (His strategy works, but it's very cruel and he deserves to lose other patients as well, if he doesn't want to treat FMS/CFS patients).

    We've all been through similar encounters, since it takes 10 years or so to finally find a doctor who BELIEVES in this disorder, one who has even done enough research on his own to understand how to approach treating FMS. We are always prepared to deal with an encounter of this type, every time we visit a new provider, and that is sad. I often follow the advide from the Fibromyalgia Network News Letter, and take my husband with me to the doctor, so that I have someone to authenticate my complaints (I cannot sleep, or sleep well, and am sore in the mornings). My husband vows and swears that he has to pull me up and help me out of the bed and wait on me hand and foot, until I can move, and that he is kept awake by my nocturnal myoclonus (movements I make in my sleep that I am not aware of). You might find that taking an advocate (proof) with you, someone to corroborate your complaints will help.

    If you do make a complaint through your group insurance carrier, they may be the very persons who can tell you which doctor is treating the most FMS patients among the insured persons on their rolls. If a doctor has a preponderance of FMS patients this at least means that he does not POINTEDLY discourage them from coming back! Right?

    Good luck and Go Get 'em. (I get really "wired" when I am angry, but instead of letting your anger make you sick, let it work for you! It can be an asset to cause you to do something about what makes you angry ! We have got to get "activist" and demand to be respected as a population of patients that is here to stay! (That is the subject for another whole book - why are there so many of us - NOW?) - Janice
  20. jmWitt

    jmWitt New Member

    Dear W & T,
    A rheumatologist I used to see was always willing to pump me full of cortisone and prednisone (often enough to melt my bones and give me ulcers), but when it came to prescribing opiods, he was obstinate. He didn't "go there".
    During my final encounter with him, I was in such a terrible shape that I was sure I was going to have to just resign from my job, my pain was so severe and NOTHING short of hitting me on the head with a big rock was going to give me relief! He wouldn't even speak about Darvocet, and repeated, "Sorry, I just don't go there, and cannot offer you any other help". I told him that I would go down to the part of town where the crackheads squat in abandoned houses and stand on the streetcorner and get some pain relief before I would come back and see him ever again, and walked out of his office. (Verbatim - I swear it - and one of his colleagues heard it - it was that loud). Up until that particular encounter, I had never been made to feel like a "drug seeker" (because I was not one). I think the only "pain pills" I'd ever taken were the ones with Tylenol and 5 mg Hydrocodone, and usually only 5-10 of those to be taken 1 at a day, and stretched over a months time (as needed), with many months between pres-criptions. I could hardly be called a "drug seeker"! I might have needed pain meds, but they were never offered, and I was too timid to ask, until I got in such a pitiful shape I had to beg this jerk! Aleve would give me bloody diarrhea within 24 hours, and I was living on Tylenol, Advil and Anacin.

    One thing to rememberthat might help you feel better:
    Some physicians get into trouble with the authorities if they write themselves frequent prescriptions for pain-killers, opiates, Schedule II drugs, etc. Maybe they have been disciplined and cannot write scrips for opioid meds anymore? They do not always lose their license - often their DEA # is suspended for a while, as a disciplinary action. I do not imagine these fellows want to admit to their patients that they stuck their hand in the cookie jar a little too often and a little too deep! Ha! Ha! Just look for the reasons behind the reasons and tell yourself, you might have been speaking to the "addict" in the room, and he was venting his frustration if he was "jonesing" (missing his drug of choice)! Again, the state boards have records about these disciplinary actions, I would imagine, and if you anticipate running into one of these physicians who have lost their ability to prescribe Schedule II or ANY narcotic analgesics, it would be nice to know in advance, so you don't waste your time, trying to establish a new relationship with a "Primary" physician who doesn't want to admit that he has no DEA # and cannot prescribe. Problem is, that most insurance companies insist you go through a gate-keeper physician, so that you must see a PCP (in your new state), to obtain referrals to Specialists in Pain Mgmt in your area, for your FORMER doctor to liaison with. Perhaps it would help for you to have an introductory letter from your out of state (former)"physician of record", outlining your treatment at present, and the reasons for the different medicines. Being able to use this referral/introductory letter, he might be a bit more receptive to you as a new patient who is already on medications that he would gradually introduce with his own patients who are not already on them. Or maybe he was just too free with the old Scrip Pad and they jerked his DEA # (that is always a possibility). I think I ran into that, myself, because a patient of my rheumatologist (former) was prescribed all types of Sched II medicines by him, and this was a few years before I got referred to see him, and by then he "didn't go there". Always a possibility that this is the case.

    Sorry about all the typos in my first memo - when I get mad about something like this, I fire them off and don't proof read! ----------- Janice