Hello all- I'm in the fibrl/chronic neuro lyme category. I've been having increasing pelvic and abdominal pain for over a year when they discovered a complex ovarian cyst on my right ovary 5 cm. The day before my surgery which was april 5 the ca -125 numbers came back at 854. During the laproscopic surgery there was no evidence of cancer and washings were also benign. I was diagnosed with stage IV endometrosis, large uterus (also lining thickened with small growths), chocolate cystmost likely on right ovary, small cyst on left ovary. I'm 51 and not in menopause and don't seem to e close The Doc is recommending totaly hysterectomy which is scheduled for May 2 with the da vinci. I'm debating whether or not to keep cervix. I did have an abnormal paps 3 years ago due to uterine polyps, last 2 pap smears have been normal. On hyster sisters it seems there are nightmare stories especially with the fibro folks --what are folks experiences here? It looks like the lord has given me another experience to grow stronger. The dr is recommending lupron shots for 3 months (which I am not going to do) and no hormone therapy to quiet endometrosis. I'm hoping this will make me better/stronger w/o the monthly cycle which usually makes symptoms worse too and too much loss of blood. I did try progesterone creme for 6 months which did help the bleeding but not the pain. Any advice? Encouragement? Thank you so much ladies!