Tours for People with CFS/ME/Fibro?

Discussion in 'Chit Chat' started by MsE, Apr 13, 2007.

  1. MsE

    MsE New Member

    Hi! This is the first time I've posted on this particular board, though I'm a faithful member of the fibro/cfs gang.

    Have any of you heard of any bus tours or train tours geared to people with CFS/ME/Fibro or other diseases that make going slow and easy necessary?

    Sometimes I think I would like to see more of the U.S. before I croak (I'm 72), but I know I would need to go with a group that understood my limitations. Is there such an animal?

    If you know of any, post a reply, please. Thanks, MsE
  2. MsE

    MsE New Member

    Is that the Inland Passage Cruise? I am going to do that in September with my oldest daughter. She has made all the arrangements, so I know I'll be able to manage that one. That will be a once in a life-time event.

    I had no idea they offered discounts for people with disabilities! I don't have anything in paper to show that I have a disability except for a prescription pad the doc wrote for me that says I have CFS. I doubt that would do it!

    I think the September trip is what got me to thinking about other possibilities--whether they existed--something relatively inexpensive I could do without one of my kids officiating. You know what I mean? Something I could do without depending on them? Something to look forward to in the future?

    Before I got sick, I used to think some day I would just hop a bus and ride it until it stopped in some little burg that looked interesting. Then I'd get off and stay for a few days and get another ticket when I wanted to leave. What a dream! What my mother used to call "a pipe dream," I suppose!

    I would really like to find a tour for puny people that goes down to the 4Corners area of the U.S. And Sedona. And Santa Fe. I wonder if bus tours ever offer trips made easy for people with disabilities. Or whether there are train trips that don't cost an arm and a leg that cater to pokey people.

    I don't have much money; it would take a couple of years to save for another major trip, but my life, since CFIDS, has been so darned limited. I watch my friends go traveling here and there and I get pea-green jealous. I admit it!

  3. MsE

    MsE New Member

    I remember that! I wonder if Amtrak still has that option. If one limited herself to just one rolling bag it might be manageable.

    When I was a kid, I loved train travel. In the summer, my mom used to take my little brother and me to Boise, Idaho (we lived in Spokane, WA) to visit her parents. Sometimes we went by bus, but a few times we took the train.

    I loved looking out the window and watching the engine disappearing waaaaay up ahead of the car we were in. Oh, and the lovely dining cars! White linens and heavy silverware! And walking from car to car, feeling tremendously adventurous when we left opened the door at the end of the car and felt the rush of the wind and distinct clatter of the tracks as we hurried across the connecting bridge to the next car. Adventure!

    You can tell I was a very little girl when that took place, can't you! Do they still have dining cars, or have they settled for snack machines? Please tell me the dining cars are still part of the romance of the train!
  4. MsE

    MsE New Member

    Whaddayaknow?!! I'm on the Olympic Peninsula! We're neighbors!

    Sandpoint used to be a wonderful little town. I've spent several happy days there. Terrific swimming beach! Do they still have that crazy mall built on what used to be a pier? It had lots of interesting shops. And there was a neat little movie theater downtown. Yes, I remember Sandpoint!
  5. MsE

    MsE New Member

    Tell me about the Amtrak sleeping cars. Can you actually lie flat--as in a bed--or do they just have reclining seats?
  6. MsE

    MsE New Member

    Well, the sleeper cars sound reasonable. When I was a kid, they used to make up the cars into bunks and just pull curtains around them until morning. Like that old Jack Lemmon and Marilyn Monroe movie. I suppose one still has to wander down to the end of the car or into the next car to find a bathroom in the middle of the night, or have they modernized that setup?

    A houseboat on Pend Oreille sounds fabulous. Coeur d'Alene has them, too, as I recall, and I always thought it would be great fun to rent one for a vacation.

    You wrote that you had a five-year-old grandson. So do I. He lives in Kent with his mom. I have seven grandkids; he's the youngest.

    This message board is fun. I wonder why I hadn't visited it before? Slow learner, I guess.
  7. MsE

    MsE New Member

    That's right! I had forgotten that you didn't have to go clear into Seattle. I know where the Edmonds station is. My folks took the train from Edmonds to Spokane years ago. The trip back leaves Spokane at some horrible time though--middle of the night, if I remember correctly.
  8. MsE

    MsE New Member

    The sleeper is already made up? I wonder if it is done the same way if you get on in Spokane? I have relatives in Spokane that I rarely visit because I try to avoid driving out of town. Bad eyes. Bad reflexes. CFIDS dizzies, etc. Not all the time, but every now and then. Actually, the worst of it is if any changes occur, like a detour or accident, I have trouble staying calm and taking care of the changes needed. Get too nervous. So a train sounds like a good idea.
  9. kholmes

    kholmes New Member

    I've never heard of such a thing, but I've always dreamed about travelling by train, in a sleeper car. Only problem is, it is prohibitively expensive. I wonder what kind of discounts Amtrak offers to those with disabilities.

    Wish we could all rent out an Amtrak car for a cross-country ship, or the deck of a cruise liner for a trip up the Inside Passage.

    I did go on an Alaskan cruise several years ago, before I became disabled, and I absolutely loved it.

    You live on the Olympic Peninsula? I'll bet that's beautiful. I spent a summer in Bellingham, WA, once.

    Now, I live in Albuquerque, and before I became disabled, did lots of exploring of the Four Corners area (I lived in Farmington, NM, for ten years). The landscapes, history, and culture out here are amazing. I just wish I could get out a bit more!

  10. MsE

    MsE New Member

    I never cease to be amazed at the way lives cross. When I was a pre-teen, my father was offered a job in Albuquerque. He didn't take it because my mother wouldn't agree, but I always wanted to see the area.

    Then, in 1999, I met a woman on-line who was my email friend until she died a couple of weeks ago. She had lived in Phoenix, but last summer had traveled to Albuquerque to visit two of her daughters. While there, she had a stroke and never recovered.

    I wrote to her weekly until her death. I miss her. And now I meet someone else from that area. Life is amazing: so full of interesting coincidences.

    Yes, the Olympic Peninsula is beautiful. The Strait of Juan de Fuca is to the north, the Olympic Mountains to the south, the Pacific Ocean to the west, and traveling east will take me to the Hood Canal Bridge that Ouch mentioned earlier in this thread. Everything is green and blue and gray and, when the sun shines, gold.

    I would love to see your part of the U.S. Such a contrast!
  11. MsE

    MsE New Member

    I just read your bio. Another coincidence: I was a teacher for twenty-nine years--actually more than that if I count the part-time teaching I did at the college after I retired. Middle school, high school, and college. I miss it, but it is just too much for me now.
  12. MsE

    MsE New Member

    Excellent idea! I think that with donations, etc., we should be able to put together something that meets all our needs. We'll have to run several trains to pick up each of us at our home communities, or nearby. Then those trains can all meet at a central location where we can sit around and get acquainted while they combine the necessary cars for our comfort. Yes?
  13. MsE

    MsE New Member

    Since I started this thread, I've found myself daydreaming about where I would love to go if I were a rich lady and physically fit. This one is another train trip: the trans-Canada train trip would be one I would definitely take. Wanna come along?
  14. kholmes

    kholmes New Member

    How wonderful that you corresponded with your friend up until the time she passed away in Albuquerqe.

    It's neat that you were a teacher also. What did you teach? What ages?

    I taught English, Video Production, and Media to Navajo students in the Four Corners are for ten years, and then I taught at Albuquerque Academy for several years, before becoming disabled with CFS at age 39. One amazing experience I had while teaching Navajo kids was leading a trip to Siberia. We stayed in Moscow, and then rode the trans-Siberian railroad for a day and a half, across the Ural Mountains, to towns called Tyumen and Tobolsk. I had probably the best night of sleep in my life on that train, as we travelled through the snowy pine forests of Siberia.

    That train is amazing. You could ride it from Berlin to Vladivostok or Beijing, if you wanted to. It would take you about 8 days, and you would pass through at least 12 time zones. We only spent 36 hours each way on it, though.

    I love your part of the country. While in Bellingham, we rode mopeds around San Juan Island, hiked the Skyline Divide Trail near Mount Baker, and spent time in Vancouver. I even climbed Sahale Peak in the North Cascades (I use a scooter to get around now, but used to be very active). In fact, the desert southwest and the Pacific Northwest are my favorite areas of the country). I hope you're getting some sunshine this spring, though!

    For some reason, though I'm a bit limited, I'm still fascinated with geography and travel.

    If you have the time, why not consider joining our book club on this site? This month, we're reading BASKET CASE, by Carl Hiaasen. Each month, we read a book and post on it during the last week of the month.


    [This Message was Edited on 04/17/2007]
    [This Message was Edited on 04/17/2007]
  15. MsE

    MsE New Member

    A few years ago I took a geography course. One of the countries we "visited" was Russia. Our professor talked about the trans-Siberian railroad, and he made it sound like a fascinating journey.

    I also taught just about everything offered under the heading of "English" for 9th, 10th, 11th, and 12th grade students: writing, literature, speech, journalism, yearbook--the whole shebang. Eventually, however, I specialized in honors classes in American lit and Advanced Placement. After I retired, I spent five years getting my groove back and then took a part-time position at the local college. However, the dratted CFS and my eyes both got so bad that I had to give it up a couple of years ago.

    Next week I'll see a specialist about my eyes, and perhaps he'll decide surgery is in order. If so, and if it works, I'll consider your suggestion of the book club as I dearly love reading. I still read, but for the most part I confine myself to large print books. I do belong to one book club, but I find it difficult to keep up with the itty bitty type of the books they invariably choose. Right now I'm having to fight my way through "Innocents Abroad," and no one should have to fight her way through Twain.

    You were much younger than I was when CFS struck. I was laid low by the dratted stuff in 1997, but I'm think I had it for at least two years prior to that.
    I don't think I was ever quite as active as you were--at least when it comes to outdoor adventure. However, I loved to dance and I loved to walk and did most of my own house and lawn work as well as raising five kids. So I wasn't exactly a slouch. But since CFS, life has become unpredictible and much slower. No more dancing the night away! Drat!

    I think I covered most everything in your post, so I'll sign off for now. Thanks for writing. MsE