TREATMENTS THAT WORK!!or at least help.

Discussion in 'Fibromyalgia Main Forum' started by mrpain, Jul 4, 2006.

  1. mrpain

    mrpain New Member

    If everyone could put down what seems to be working for them, then maybe we can identify what helps out the most for all of us.

    I know we are all different and we suffer in different ways, but at the same time, there could be some similarities that we might could draw from.

    If we notice something that is mentioned more frequent, especially for the same problem symptom, then it just might be something that can be useful..

    Put down what treatment, vitamin, supplement, or medication that has helped and the reason that you use it..
    It would also be helpful to know how long it took before you saw some results, and how much or often you do it..
    [This Message was Edited on 07/04/2006]
    [This Message was Edited on 07/04/2006]
  2. mrpain

    mrpain New Member

    I agree with you about the valerian.... I use that and melatonin along with an extra strenght tylenol and it has helped me more than the zma I use to take.. So I stopped the zma, but that's just me, I know a lot of people would disagree with me on that...

    I also take 3 darvocet throughout the day which also helps with sleep as long as I don't take any at least 3 hours before bed.. If I do, it has the opposite effect on me..
    I also take relafen for anti inflamation... I'm in real trouble with pain and tighting up if I forget to take that..

    And a ton of vitamins and supplements with lots of rest and chiro therapy including massage, ultrasound, electro stim. and adjustments..
  3. marw

    marw New Member

    Well, TENS does help me enormously with muscle spasms. I know someone said it did not help them, but we are all different, I guess, and it does wonders for me. I could not do without it. I do not need it every day, just when I have spasms. Then applying heat and using TENS will relax the spasm. (Which is better than taking drugs for me.)

    EXERCISE is the next best thing for me. I walk an hour every morning (or afrernoon) and work-out at a Health Club at night. My exercise program was designed for me by a Physical Therapist who treats Fibro, so she knew how to combine the strengthening exercise with the Cardio. The only problem with it, is that it is boring, but worth it not to be in pain.

    I take Vicodin and .5 mm of Atvan during the day, also. At night I take 5mm of Valium and Benadryl to sleep. Prune Juice and/or MOMS helps with the bowel to keep it moving.

    I also use Supplements.....1-a-day Vitamins in the a.m. and Calcium/Vitamin D and Magnesium at night.

    I, too, have Migraines, but the Imitrex shots work well and bring the headache down in 10 minutes if I get one.

    I am planning to try yet another "brain befuddling" drug--I have tried so many with such disastrous results!--but my doc has had 75 per cent of his Fibro patients going into remission while taking Lyrica, so that is the next one I am going to try. I will not be trying it until after my Peridontal Surgery next week. I will let you know how it works.

    Margaret

  4. mrpain

    mrpain New Member

    Great replies and thanks for the information. I have some questions for each of you.

    prickles- when you say flax, are you talking about flaxseed in a capsule, or the seed that needs to be grind up like in stormyskye's shake? and how exactly do you use the tennis ball? Do you just roll around with it under your back on the floor? or I guess the wall would do. Does that really help? And Bowen Tech. here, is way to expensive. Doc wants $250.00 for first consultation..

    marw-how are you able to work up enough energy to exercise, in order to produce energy? and imetrex doesn't help my migraine at all..I'm glad it works for you though!
    And which kind of doctor do you see in order to get the meds. that you have. I've been thinking about trying a pain specialist.. Is that a good choice?

    skywater84- I might show my ignorance now but what is a Myotherapist? and secondly, what's involved in a craniosacral therapy and what doctor does that?
  5. victoria

    victoria New Member

    One thing that really helped me with fatigue was taking physiologic doses of cortisol (cortef), as outlined by several doctors including Dr. Teitlebaum in his book From Fatigued to Fantastic.

    I had a hard time finding someone who would prescribe this for me at the time, however. I worked up on dosage to 20 mg spread out from morning to afternoon - this helped me to eliminate the need for afternoon naps.

    I took it for about 6 months, then weaned off of it to see how I did... I have not needed it since. The only times I need an afternoon nap now is if I have a really bad sinus headache (pain is exhausting), Im herxing, or not enough sleep, which is reasonable.

    Ive tried a lot of supplements and other things but nothing else had a lasting effect on me, sadly - and even tho I was high on mercury on a urine heavy metals test and chelated, I had no positive effect at all :(( -- but at least I know my immune system does not have that extra burden to deal with.

    all the best,
    Victoria

  6. mrpain

    mrpain New Member

    Well skynwater84, I learn something new everyday. Thanks for enlightening me.. I need all the help I can get. Hope you have a pleasant and fantastic night!

    victoria- Very interesting profile you have...
    I see your in Athens Georgia. My wife graduated from there many many moons ago...and yes, she's a bulldawg.....Don't hold this against me though, but I'm a gator! You should see us on Fla.-Ga. game day.. She use to have the upper hand in the 80's, but now the shoe has been on the other foot all thru the 90's up to the present... It's all in fun.. Take care!
  7. ANNXYZ

    ANNXYZ New Member

    and antiviral drugs have helped me - the only meds that I have found useful. I firmly believe we are all living with infections that can never fully clear up due to a glitch in our immune sysytems .

    Supplements that are essential for me : B vitamin, multi vitamin , extra selenium, N acetyl cysteine , extra VIT D , and fish oil and AMINO ACIDS ( have helped me think without so much fog and also help with depression a lot ) .

    Having watched posts for a few years here , I have observed many people remark that these made a significant difference in their health :
    B Vitamins , magnesium, B 12 Shots , N acetyl cysteine , ZMA , fish oil , and amino acid that are free form.
    [This Message was Edited on 07/06/2006]
  8. mrpain

    mrpain New Member

    annxyz; I've heard others say that antibiotics help them too.. But what I don't understand, and would love to know, why do so many holistic doctors say that antibiotics are bad for your intestinal bowel flora and that we need to take probiotics..

    And does probiotics wipe out the antibiotics if your on both? I had taken so much antibiotics when I was young, that my doc said I probably have candida... Can you put this into perspective?
  9. victoria

    victoria New Member

    Probiotics do not wipe out antibiotics, but abx do wipe out probiotics since they are bacteria... that's why it's recommended to take them midway between abx doses. It is very important to especially take them after finishing antibiotics to restore normal bowel flora (or is it fauna lol?).

    I have also done the candida diet and mostly stuck to it for the past 25 years or so; it has helped me with other things such as controlling endometriosis, and to a certain degree fatigue and memory as well, altho I think my problems (and most others') are more complicated than that. IMHO it is something we all need to ultimately address tho.

    I should probably add that I am finding the Marshall Protocol has gotten rid of really bad hip pain for the past 18 months and allowed me to get off thyroid medication for over a year now... I am hoping that I will get more results as I progress.

    all the best,
    Victoria

    PS: I like living in Athens but confess I am not a sports fan at all, so I cannot possibly hold anything against anybody for rooting for another team!, LOLOl! (It must be genetic cuz my daughter is now going to UGA and could care less as well... )

  10. mrpain

    mrpain New Member

    Which is best for us fibro patients; Fish oil or flaxseed oil?? and for us cfs patients also?