After 2 weeks of excrucating pain and 5 Drs later I am DX with Trigeminal Neuralgia today when I brought it up with my sleep disorder neuroligist. Along with FM, CFS, Lupus, RLS, PLMD... I now add yet another DX I have never heard of until now. I see that some of you suffer form it too. I have been on Neurontin for about 5 months for my RLS and PLMD and it has done wonders. I have suffered for headaches for as long as I can remember with them last for days, weeks and the latest severe one in October for over a month. Now, the headache in October I am told was Trigeminal Neuralgia and possibly a lot of my past headaches. I guess it's good news to find out the "why" it's happening. My biggest "why" is WHY ME??? I think I have enough on my plate! I am the only person I know that can go to a Dr. for a check up and come ont with a new DX!! LOL Anyway, he wants me to increase my Neurontin 900mg 3x a day. Guess we will see. How have those of you with TN survived the pain? Thanks for letting me vent!! Bless you all!