Underactive Thyroid .... what helps?

Discussion in 'Fibromyalgia Main Forum' started by twerp, Sep 29, 2006.

  1. twerp

    twerp New Member

    Hi everyone, I know a lot of us here have a problem with an underactive thyroid.

    I have Hashimoto's, and am taking Levoxyl to treat it.

    I think I've seen people post about other things - supplements or herbs - that might support thyroid function.

    Do you know about any of these? Have you tried any? If so, what were your experiences?

    Thanks & Hugs,
    [This Message was Edited on 09/29/2006]
  2. NyroFan

    NyroFan New Member


    I have hypothyroidism and take Synthroid daily.
    Now the blood comes back normal for me.

  3. twerp

    twerp New Member

    Thanks for your response. I hadn't thought of asking my Dr. to switch me from one prescription to another. I guess thyroid meds are like everything else, though - each one is a little different.

    Thanks again,
  4. twerp

    twerp New Member

    I know what you mean about not feeling 100%. I sometimes think my thyroid problem has been, and is being, undertreated as well.

    My Dr. only does the TSH test, no T3 or T4 testing which I've heard is more exact. He says the TSH test is fine.

    I've also heard that even if your TSH number is in the "normal" range, you could still need more medication to make the number even lower if you are not feeling well.

    Thanks & Hugs

    PS - I love your screen name.
  5. TKE

    TKE New Member

    It's very important to have the T4 & T3 tests done. They show how much hormone is in your body, how much is being absorbed & how much is being used. I went thru 3 Endo's over a 7 year period & get thois...not one of them ran anything but TSH tests! I finally got my family doc to work with me & he ran all the tests & has me do them once a year.

    With me my body either stopped converting or never converted the T4 hormone (synthroid)into the much needed T3 hormone, so my T3 hormone level was at rock bottom! T3 hormone is responsible for energy, body temp, memory, etc. I now take T3 (Cytomel) 5 mg 2 x a day. I could use more, as I'm still fatigued, but my heart can't handle it.

    I also have never felt the same since they ki--ed my thyroid gland with RAI back in 1987. I have never regained normal energy.

  6. ilovecats94

    ilovecats94 New Member

    I don't use anything but Cytomel .50 mg. a day. I've had hypothyroidism since I was 9 years old and I'm 56 now.

    I don't know any supplements to take and wouldn't. Don't take flax seed for diabetes or hypothyroidism. Soy isn't recommended, but I use tofu sometimes in food.

    My TSH is .2 something. It used to run 5.5 with the family doctor. Now I see an endocrinologist.[This Message was Edited on 09/29/2006]
  7. Slayadragon

    Slayadragon New Member

    Even if your T3 is within normal range, you still may benefit from supplementation. I've had three different excellent doctors (one a hormone specialist, one a CFS-interested conventional internist, and one a CFS-oriented "innovative" specialist) tell me that. The protocol is to start with a low dose, then go up a small amount (like 2.5 mcg--or is it mg, can't remember) every few days until you get excess symptoms. (Excess symptoms are feeling hot or having a fever, having a headache, and diarrhea.)

    After you get to that point, you should get a test to make sure that the T3 isn't above range. If not, stay with what makes you feel good, my doctors have told me.

    Seaweed may have some potential to help the thyroid.
  8. tobelct

    tobelct Guest

    Hi, thought I might share a little of what Ive learned.
    I was diagnosed with hypothyroidism 10 years ago. Havent felt hood sence.

    Did some homework and found out some foods do not help our condition.

    Shade tree plant foods like ; broccoli, caluiflower, brussel Sprouts hinder out bodies ability to use the thyroid hormone.

    another bad one is Soy. for me it will almost make me lathoric. Once again it inhibits are bodies ability to use are meds or thyroid hormone.

    This last year went to a new doctor. Not what her title was but I know she was a specialist in her field of fibro, fatigue and hormones. She diagonsed me with a reverse T3 meaning my body even though test were good, all of them my body had produced (if I remember correctly) antibiotics to my thyroid hormones not sure what one. so my meds were not doing much for me.

    I know you can look up more on the reverse T3 on the internet.

    Also I found all info about foods through the internet too.

  9. Slayadragon

    Slayadragon New Member

    Another note for people taking thyroid: if you add the hormone DHEA, you may not need to take as much thyroid. Check to see if you're having symptoms of overdose.

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