UPDATE: What should I tell the new Doctor?

Discussion in 'Fibromyalgia Main Forum' started by lenasvn, Dec 23, 2006.

  1. lenasvn

    lenasvn New Member

    After spending 11 months with a doc who won't take me seriously about my DD despite the Rheumy's diagnosis of CFS I have called and set an appointment with a new doc. It's a small office with 2 docs. I asked the receptionist if one of her docs treated Fibromyalgia. She said yes, and she would talk to the doc and call me back.

    She did and said the doc was willing to see me. I figure if I say FM he will probably be familiar with CFS too, althought I am pretty sure I have a combination of both.

    My previous doc have told SSA and DSHS that I am fit for work, simply because he has no "clinical evidence". This means he refuses or won't diagnose FM, CFS and probably other similar illnesses. It doesn't matter to him my labs with EBV and CMV (high titers) and my severe tachycardia (postural) or any of the other problems I've had.

    I am wondering what I should say to this new doc? Should I be blunt and say that I wasn't taken seriously by my previous doc and that he thinks there's nothing wrong with me? I really need to know where this doc stands, I am not interested in wasting my time giving this doc "a chance" to "figure it out" like I did the other.

    I want straight shots, honest rapport, etc. I want to get treated, taken seriously, and know that he understands that I mean it that I can't walk up stairs, that I flare if I overdo it, etc. I am NOT fit for work! And it feels like my brain is eaten alive, my cognition and memory is even worse than before. Feel like a zombie,,,LOL!

    Please give me some sound advice on how to approach this new doc in a way that won't seem nutty to him, but still will get my point across and some real answers from him.
    [This Message was Edited on 12/28/2006]
  2. Yes be honest with him. I asked my rheum. dr. if he believed it was a real disease. I would tell him a former dr. didn't take you seriously. Be honest with him.

    MERRY CHRISTMAS
  3. lenasvn

    lenasvn New Member

    Merry Christmas to you too, and thanks, I will do as I planned! Got nothing to loose- it would be worse to just stay with Mr Clinical Evidence.


    [This Message was Edited on 12/23/2006]
  4. Jillian40

    Jillian40 New Member

    I just bumped a post called "Fibromyalgia Questionnaire
    for Dr. Visit" that I started last week.

    It's just a thought, perhaps you might think about filling out a questionnaire to present to the new doc to save some time and show him your numerous symptoms.

    You may also want to consider showing him the labs of your
    infection titers then see if he'd consider referring you to an infectious disease specialist. These guys may be willing to try your on an antibiotic or antiviral protocol or other approach.

    Just thinking aloud.

    Whatever you do, go with your initial idea of approaching the new doc with honesty, it can't hurt.

    In support,
    Jillian
  5. Catseye

    Catseye Member

    If you aren't they'll just string you along. Tell the new doc you already know that people with these disease almost always have normal blood levels of everything that is normally checked and he'll have to look beyond them and look at symptoms. For example, I was experiencing adrenal fatigue, I could tell by the symptoms, but my cortisol levels were always normal. So the doc wouldn't help me. When I treated the condition myself, I conquered it in 2 months. So if the doc can't look beyond a blood test to find a solution, it's a waste of time. Of course, he can only really help if you do have a condition that warrants a drug or surgery. If supplements will help you, he can't recommend them and you're on your own.

    Second, tell him/her you absolutely will not tolerate a suggestion of "counseling" or a "psychiatrist" because your body is broken and not your mind.

    Be tough and you will know where they stand, if they are really willing to try and help or if they just see you as another "regularly paying customer", who'll come by once in awhile, let them recommend useless tests and suggestions and charge you for it.

    Merry Christmas

    karen
  6. lenasvn

    lenasvn New Member

    I will fill out the questionarie. The good thing is, my "mind" is already "tested", I recieve continuous counseling since 30 months back, so noone can pull that leg (for PTSD). My Psyk. continue to tell me that is the ONLY battle I have.

    Thank you both for great advice and support!

    Merry Christmas
  7. lenasvn

    lenasvn New Member

    Thank you both for great advice.

    I will have to write a list to bring with me,,LOL!

    PTSD is considered a disability, especially since mine stems since childhood and have gotten complicated by experiences in adulthood.

    The Rheumy in Seattle told me that he has seen many people with PTSD develop CFS and FM, it seem to be the constant fight and flight phenomenon (adrenalin in a constant high) that triggers it. It also causes a high rate of cardiac complications, they have found that vets have a high rate of cardiac issues.

    Hey, Wake, I recognise the sudden change in attitude the next time you see the doc. Been there, done that. That is why I want to be precautious and not waste my time anymore,,,The guy is supposed to work for ME, not the other way around (when am I ever gonna learn?).

    Hugs
    [This Message was Edited on 12/24/2006]
  8. springrose22

    springrose22 New Member

    If you want straight shots and honest rapport, then give it to him straight off. Tell him how sick you are and that you don't want to waste any more time than you already have. From reading your post, you know exactly what to say!!! Go for it! And, if you don't like his attitude, don't waste your time with him. It's YOUR health and you know best. Marie
  9. lenasvn

    lenasvn New Member

    Ok, I met with the doc, he took me seriously, is very knowledgeable about FM and CFS and he believed me. He diagnosed me with FM besides the CFS and is starting treatment. He is also sending me for an EKG. My previous doc ignored my severe tachycardia for the 11 months I saw him and said there was nothing wrong with me!

    I told this doc I had given up on docs, but I gave this visit a shot for the sake of my children, they need a momn that feels better. He will address sleep, pain, fatigue and everything else. My previous doc only shrug his shoulders at me.

    Yepp! I am very happy to find this doc in this small town where there are so few docs and so many of them ignore FM and CFS.
  10. lenasvn

    lenasvn New Member

    The Cymbalta is surprisingly easy on me, I sleep better, and that helps with the pain.

    He will try Lyrica on me, and we started Robaxin yesterday.

    I will see him in 2 weeks after the EKG, and then he will get me something for sleep and try out the Lyrica.

    He will keep trying until we find something that works. I heard only great things about him, so I feel hopeful.

    If you start Cymbalta, take it in the evening when you go to bed. It seemed to work better, when I took it in the morning I was sleepless all night- no fun!