Urge CDC to include CPET, NK cell & viral testing

Discussion in 'Advocacy and Fund Raising' started by mbofov, Aug 13, 2013.

  1. mbofov

    mbofov Member

    Here's a very good article posted on PH about how crucial it is for the CDC to include repeat exercise testing (CPET - to look for post-exertional malaise), and tests for NK cell count and viral load in their clinical assessment study, and how various advocacy groups are urging the CDC to include these objective testing criteria in their study, instead of just subjective reporting from patients.

    There is a template for a letter to Elizabeth Unger at the CDC in the article which you can copy and paste and send on yourself. Until we get objective measureable testing including as part of CFS studies, they are going to keep acting as though CFS is all in our heads.

    Here's a link to the article, with the template:
    http://www.prohealth.com/library/showarticle.cfm?libid=18267

    Mary