URGENT: READ Quayman's CFSAC Oct 29/30 Post NOW!

Discussion in 'Fibromyalgia Main Forum' started by skeptik2, Sep 22, 2009.

  1. skeptik2

    skeptik2 Member

    Look dear ones, we all are suffering from one degree to another with
    these DDs, but NOW is the time for us to put some of our energy into
    the most important event of the past 25 years.

    If you have been sick for 2 years, unless we all act concertedly, you
    may be sick for another 25 years unless you happen to have a lot of
    money and can see one of the expensive specialists in this country
    or abroad.

    Follow Quayman's thread: do only what your energy level allows. Do
    not stress yourself out, do not do more than you can; just join the
    voices here, sign a petition, or email cfsac@hhs.gov or the CDC.gov.

    If you can write up a little 5 min. talk to do over the telephone, call and
    register. We will try to have a concerted voice, asking for Reeves (once
    again) to be let go from the CFS program and allow for outside
    researchers to give their vital input (The Whittemore Peterson Institute,
    the International Association for CFS, etc.).

    You must register by OCTOBER 14.

    A copy of your remarks have to be at: CFSAC, Dr. Wanda K. Jones,
    Exec. Sec., CFSAC, DHHS 200 Independence Ave, SW, Wash DC
    by OCTOBER 15TH.

    If you just want written remarks to be put into the record, the above
    Oct. 15th deadline applies.

    All speeches and written remarks are disseminated to all who are
    there in person, and go into the final report after the conference is

    REMEMBER: the only way HIV folks got research and treatment was
    by joining together, acting out and acting up and raising he**! It's the
    only way we will get help also.

    I urge you to join the effort. Your help has never been more needed.

    strength to you all
  2. AuntTammie

    AuntTammie New Member

    everyone, please, please, please do whatever you can; even if it doesn't seem to be much, it matters
  3. QuayMan

    QuayMan Member

  4. mbofov

    mbofov Active Member

    I just called Wanda Jones' office, spoke to Loretta Jones (a very nice woman), who checked with Dr. Jones' assistant, who said that e-mail submission is okay to CFSAC@hhs.gov, limited to 5 pages.