URGNT CFSAC MEETING IMPORTANT HAVE YOUR SAY

Discussion in 'Fibromyalgia Main Forum' started by simpsons, Sep 13, 2010.

  1. simpsons

    simpsons Member

    have your say now and be part via live videocast submit questions
    YOU KNOW WHAT TO DO HAVE YOUR SAY THIS IS YOUR ILLNESS YOUR FUTURE ASK FOR FUNDING

    SUMMARY: As stipulated by the Federal
    Advisory Committee Act, the U.S. Department of Health and Human
    Services is hereby giving notice that the Chronic Fatigue Syndrome Advisory
    Committee (CFSAC) will hold a
    meeting. The meeting will be open to the public.

    DATES: The meeting will be held on Wednesday, October 13 from 9 a.m. until 5
    p.m. and Thursday, October 14,
    2010 from 9 a.m. until 4 p.m. CFSAC Subcommittees will hold scientific
    review sessions on Tuesday, October 12 from 8:30 a.m. until 5 p.m.
    All meetings will be open to the public. Public attendance at the meeting is
    limited to space available.

    ADDRESSES: Department of Health and Human Services; Room 800, Hubert H.
    Humphrey Building; 200 Independence Avenue, SW., Washington, DC 20201.
    For a map and directions to the Hubert H. Humphrey building, please visit
    http://www.hhs.gov/about/ hhhmap.html.

    FOR FURTHER INFORMATION CONTACT:
    Wanda K. Jones, DrPH; Executive
    Secretary, Chronic Fatigue Syndrome
    Advisory Committee, Department of
    Health and Human Services; 200
    Independence Avenue, SW., Hubert
    Humphrey Building, Room 712E;
    Washington, DC 20201.

    Please direct all inquiries to cfsac@hhs.gov.

    The agenda for this meeting is being developed. The agenda will be posted on
    the CFSAC Web site, http://
    www.hhs.gov/advcomcfs<http://%20www.hhs.gov/advcomcfs>,
    when it is finalized.

    The meeting will be broadcast over the Internet as a real-time streaming
    video. It also will be recorded
    and archived on the CFSAC Web site for on demand viewing.

    CFSAC Subcommittees will convene scientific review sessions on Tuesday,
    October 12. The purpose of these sessions is to update the latest
    developments in etiology, natural
    history, clinical trials, and related areas for chronic fatigue syndrome.

    The public is welcome to attend these sessions, which are not a formal part
    of the Advisory Committee meeting.

    These sessions will be broadcast over the Internet as a real-time streaming
    video. It also will be recorded and archived on
    the CFSAC Web site for on demand viewing.

    Members of the public will have the opportunity to provide comment at the
    October 13–14 meeting if pre-registered. Individuals who wish to address the
    Committee during the public comment session must pre-register by Friday,
    September 17, 2010, via e-mail at cfsac@hhs.gov.

    Time slots for public comment will be available on a firstcome,
    first-served basis. Public comment will be limited to five minutes
    per speaker; no exceptions will be made.

    Individuals registering for public comment should submit a copy of their
    testimony in advance to cfsac@hhs.gov,
    prior to the close of business on Friday, September 17, 2010.

    Members of the public who wish to have printed material distributed to
    CFSAC members for review should submit one copy of the material to the
    Executive Secretary, at cfsac@hhs.gov,
    prior to close of business on September 17, 2010. Submissions are limited to
    five typewritten pages. Any written
    testimony submitted after this date will be available for inspection on-site
    and will be posted to the Web site after the
    meeting.

    If you do not submit your written testimony prior to the close of business
    Friday, September 17, 2010, you may bring a copy of your written testimony
    to the meeting and present it to the
    CFSAC Executive Secretary. Your testimony will be included in a notebook
    that will be available for viewing by the public on a table at the
    back of the meeting room.

    Please ensure that written testimony does not include any personal
    information including your personal mailing address and that it includes
    only your name, if you wish to be identified. If you wish to remain
    anonymous, please notify the CFSAC
    Executive Secretary upon submission of the materials to cfsac@hhs.gov.

    YOU KNOW WHAT TO DO HAVE YOUR SAY THIS IS YOUR ILLNESS
  2. DeborahLynn

    DeborahLynn Member

    I plan to submit something... just what, I don't know yet... Only a couple of days left...

    Thanks for the reminder!

    Debbie