Urinary Tract Infections

Discussion in 'Fibromyalgia Main Forum' started by gwenan, Sep 1, 2005.

  1. gwenan

    gwenan New Member

    Can anyone help me? In the last 2 years I have developed constant UTI's. Antibiotics work(thank god)but bacteria counts are low and cystoscopy didn't show anything. I am on daily antibiotics which I have to switch every week.
    Any advice welcome,
    Thank you
    Gwenan (Wales, UK)
  2. Bruin63

    Bruin63 Member

    quite a lot. Before I had FMS make it's slef at home, I very rarely had them.
    Then about 4years before I was given a dx, of FMS, I started having them all the time.

    I used to take Cipro, now I have to use Zithromax which isn't exactly for that but for some reason it works for me.

    I drink Cranberry Juice, and that helps, Plus I take a Tablespoon of Vinegar, the Apple Cider kind, once a week.
    I also use it for Hic-ups, ;o]

    I wear cotton breathable undies, when I leave the house, I don't wear them at home, I wear long dress's, and that let's the whold area breathe.

    Also quit wearing my Jean's because they made that area, Moist, when I was driving, and also, don't hold it to long when your Traveling, go when you first have that urge, lol.
    That was something I did, I used to Drive, for a living and then for fun.

    Watch out for Starchy foods too. I found they would set me off and I miss them Patatos/French Fries,

    Good luck to you, and be sure to eat Yougart, to ward off a Yeast Infection, which you can get from the antibotics, I think a YI add's to the UTI.
    Could be wrong, but I think it's possible ?
    Sharonk
  3. elizajane40

    elizajane40 New Member

    I just got over a UTI, that not only was uncomfortable, but caused my FMS to flare up! It was pretty horrible. I did some research online. Several things can cause UTI's.


    Using spermicide (included on most condomsand or douches can drop the level of "good bacteria" and allow the infection to develop. Also diaphrams can be a problem.

    Also not a good idea to take tub baths. Avoid soda pop. Drink lots of water. Try taking cranberry supplements!

    Hope this helps!!! Good Luck!
  4. ilovecats94

    ilovecats94 New Member

    Try the apple cider vinegar. I think Ace's Nanna originally posted about that. I used about 1/4 of a cup and it really helped me. I'm already on Detrol for bladder spasms, so I was so happy to find something else to try.

    I do take a tub bath, but the vinegar works for me when I feel I'm having a problem.

    Good luck!

    Hugs,
    Faye
  5. Bruin63

    Bruin63 Member

    We were raised on Apple Cider Vinager, it's also good for Sunburns, it takes the stings out, and reduces the pain.
    Then you can moistureze your skin, so you don't peel so bad.

    Apple Cider Vinager has Many used's, besides being great in a Salad Dressing. ;o] lol. lol.

    I tried the Cranberry Pills, but they had a red dye added to them and I am allergic to that, but I can drink natural Cranberry juice and that helps me a lot.

    I also eat a lot of Cherry's, for my Arthritis, it helps with the Joint pain.

    Plus I love Cherry Pies, ;o]

    sharonk
  6. jess

    jess New Member

    I use this for utis now. I started getting them more frequently after menopause. I read about d mannose. It's a sugar that goes right to the bladder and sticks to bacteria so they are washed out. It is safe to use long term and for maintenance. I don't know if I am allowed to give you the name of the company but you can do a google for d mannose. Good luck and feel better. Jess
  7. Bailey-smom

    Bailey-smom New Member

    The doctor suggested I make sure I empty my bladder completely when I urinate. Maybe I was in too big of a hurry???

    I have not had a problem since.

    Kelly
  8. NyroFan

    NyroFan New Member

    Gwenan:
    I do exactly what Sharonk (Bruin, above) does. I just wanted to emphasize it because it is what works for me, too.
    NyroFan
  9. quigmoore

    quigmoore New Member

    Gwenan-
    I was plagued with a chronic bladder infection that lasted steady for 4-1/2 years. During that time, I learned a few things that might help you.
    1) Drink lots of water, NO coffee, tea or soda pop.
    2) Don't ingest sugar. Sugar feeds the infection. (This is very important!)
    3) Cranberry capsules are better than cranberry juice because the juice contains sugar. Capsules are more concentrated too.
    4) Always urinate after intercourse. It flushes out any bacteria that could cause an infection.
    5) I began drinking a tea (Morning Sun brand) which I can't find anymore. I would drink a strong cup at the first indication of bladder sensations that might lead to infection. The mixture was: strawberry leaves, camomile, and peppermint leaves. I don't know the proportions or why it works, but I gave the list of ingredients to a friend who bought the bulk teas and mixed them together. They helped her husband who has lived with chronic UT infections. I'm sorry you have to suffer with these. They are very painful.

    Quigmoore


    [This Message was Edited on 09/01/2005]
  10. Bruin63

    Bruin63 Member

    You can buy Cranberry Juice unsweetend, that is why I usually dilute it with water, been doing it for years now and I have reduced the UTI's, in fact it's been a long time since I had one,. Hmm, didn't pay attention to that.

    I also haven't been on a long road trip either, and that's when they would usually happen.

    Funny how we notice something, then don't, because something else comes along to take it's place.

    I bought some Milk Thistle, to help with my Liver, and couldn't use it as it also has RED 40 dye.

    It's hard for me to find Meds. or Supplements, without it.
    Even certain Foods are colored with it.

    Sugar, no doubt should be avoided at times, but it's hard to resist, when someone brings Chocolate into the house.
    Dh has a sweet tooth. lol.
    ;o)
    Sharonk
    [This Message was Edited on 09/02/2005]
  11. Smiffy

    Smiffy Member

    Some of us with CFS/FMS also have interstitial cystitis. It's not an infection, & doesn't always show on cystoscopies (mine doesn't). I had the wrong diagnosis of bacterial cystitis for years.

    If you have this, it is important not to take anything acidic such as cranberry juice, vinegar, Ibuprofen etc. There is an ICN message board.
  12. gwenan

    gwenan New Member

    Thank you all for your advice. Unfortunately I have used everything from Cranberry to D-Mannose. The infection is not caused by E-Coli but a different bacteria. My doctor actually suggested I'm allergic to my own bacteria which is why I have symptoms immediately without antibiotics. It is not IC but very kidney infection like - I have a fever, agonising pain in pelvis, back and legs, and sweat to high heaven. Thankfully antibiotics do work but need to be swapped regularly when the symptoms return.
    I have never heard of anyone else who has this problem where they cannot go one day without antibiotics. Is there anybody out there??????!!!!Anyone know of a brilliant specialist I could see ( yes I would travel to America if I thought I could get an answer).
    Many thanks and all the best
    Gwenan
  13. proteinlady

    proteinlady New Member

    Have you had drug sensitive urine cultures done to make sure that you're taking the right antibiotic for the strain of bacteria you have? I used to get recurrent UTIs when I was in my 20s. I was told to take 500 mg ampilicillin before intercourse and 500 mg after.

    The usual standard of care at my academic health center is 6 mo or longer of low dose macrodantin or a dose of antibiotic right after sex.
    Below, I've pasted in info that I found on a web page:


    Recurrent Infections in Women

    Women who have frequent recurrences may benefit from preventive therapy.

    About 4 out of 5 women who have a UTI get another in 18 months. Many women have them even more often. A woman who has frequent recurrences (three or more a year) should ask her doctor about one of the following treatment options:


    * Take low doses of an antibiotic such as TMP/SMZ or nitrofurantoin daily for 6 months or longer. (If taken at bedtime, the drug remains in the bladder longer and may be more effective.) NIH-supported research at the University of Washington has shown this therapy to be effective without causing serious side effects.

    * Take a single dose of an antibiotic after sexual intercourse.

    * Take a short course (1 or 2 days) of antibiotics when symptoms appear.


    Dipsticks that change color when an infection is present are now available without prescription. The strips detect nitrite, which is formed when bacteria change nitrate in the urine to nitrite. The test can detect about 90 percent of UTI's and may be useful for women who have recurrent infections.

    Doctors suggest some additional steps that a woman can take on her own to avoid an infection:


    * Drink plenty of water every day. Some doctors suggest drinking cranberry juice, which in large amounts inhibits the growth of some bacteria by acidifying the urine. Vitamin C (Ascorbic Acid) supplements have the same effect;

    * Urinate when you feel the need; don't resist the urge to urinate;

    * Wipe from front to back to prevent bacteria around the anus from entering the vagina or urethra;

    * Take showers instead of tub baths;

    * Cleanse the genital area before sexual intercourse;

    * Avoid using feminine hygiene sprays and scented douches, which may irritate the urethra.
  14. moxiepup

    moxiepup New Member

    HI i'm sorry to hear about your troubles with UTI'S, they are awful, annoying and painful.

    Is your Dr sure you don't have PID (Pelvic Inflammatory Disease) which some Drs confuse with UTI'S.

    I think at this point I would look around for another Dr either a very knowledgable Urologist, or Nephrologist(Kidney Dr.) or a GYN that really knows there stuff.

    This just doesn't sound right to me, I hope I'm wrong, but good luck.

    It can't be good to keep switching AB every wk like the other poster asked have they even done a culture & sensitivity on you to see what will and won't work??

    Good luck,

    gail
  15. loreha

    loreha New Member

    I have IC and IBS with my fibro. I have been on Elmiron for nearly 4 months and I' not sure that this is helping.
    Cystoscopy confirmed diagnosis after many years of frequent UTI's.

    Any suggestions ?

    Lore
  16. pam_d

    pam_d New Member

    ...if you have cystitis, and NOT an infection, don't guzzle that cranberry juice, it makes it worse!

    For a true infection, cranberry juice will help....but not for the inflammation from cystitis, it aggravates it.

    Hope you find something to help, Gwenan...

    Hugs,
    Pam