Very Scary Jumping eyesight almost to blindness. Anyone?

Discussion in 'Fibromyalgia Main Forum' started by alonebutnotlonely, Nov 14, 2006.

  1. alonebutnotlonely

    alonebutnotlonely New Member

    Last Saturday my vision all of the sudden started getting blurry. My eyes felt like they were jumping up and down and sideways at the same time. I could not focus on anything at all. Vision started closing in. I felt like I was going blind.

    Wanted to call my mother who lives next door and couldn't see anything on the phone. Finally hit the redial button hoping it would reach her. It did.

    She came over and said my eyes were perfectly still.

    I tried to walk to the bathroom and had to grab the wall.

    Called the emergency doctor on call and she said if it continued for another 2 hours to go to the E.R.

    It continued for about 1 1/2 more hours and slowly my eyesight recovered. I could see again.

    I had asked the doctor if she thought it could be a ocular seizure or an ocular migraine. I have epilepsy but this has never happened before. Well, of course it hasn't because I wouldn't be so freaked. I don't think she even knew what I was talking about.

    OK, has anyone ever had this happen to them or if you've ever heard of it happening to anyone.

    I am so afraid of it happening again. Every eye twinge wierds me out.

    Please help if you can.

    Thank you in advance.

  2. nerdieduckie

    nerdieduckie New Member

    I have had my eyes jump before but never for the duration or intensity you said you had.

    Sorry I don't have anymore words than that, but I hope someone else here can help you.

  3. alonebutnotlonely

    alonebutnotlonely New Member

    Thank you. I'm sorry it happened to you too.

    I used to tell everyone that my worst nightmare was losing my eyesight because I loved reading so much. Well, I can't concentrate enough to read a book now.

    Hope this is not a warning.

  4. LittleBluestem

    LittleBluestem New Member

    Have you called and told your regular eye doctor about this? S/he may still want to see you.
  5. PVLady

    PVLady New Member

    You might see a opthamologist. My husband has a problem with his eyes and it was caused by a problem in his middle ear.

    His eyes would move around like "doll eyes". He was also dizzy and nauseated. It happened because of a small calcium particles in his middle ear.

    In his case, we went to UCLA and saw Dr. Robert Baloh who only treats patients with this problem.

    Dr. Baloh does whats called the "Baloh Maneuver". He made him lie back and moved his head in a certain position. The eyes started rolling again so he confirmed the problem.

    The doctor moved his head and body around kind of fast to dislodge the calcium particles. After, my husband had to sleep upright for 3 mights. After that, the condition never returned - it has been over ten years.

    This may not be your problem but in any case, I would see a eye specialist.

    Hope you are feeling better.

    You can do a websearch on Google for Dr. Robert Baloh and there might be information on this condition.
    [This Message was Edited on 11/14/2006]
  6. DenialQueen

    DenialQueen New Member

    I'm surprised more haven't replied to this. Visual disturbance was my first symptom in 1991 & continues to be one of my worst symptoms. I have CFS/FM/IBS, etc. & of course get the pains & overwhelming fatigue, plus neuro-cognitive dysfunction (brain drain), but my vision problems are by far the worst because they're so random & cause me to not be able to drive any distance. My husband has to drive me everywhere further than a few minutes away.

    My eyes do exactly what you describe, plus an array of other weird things. My Ophthalmologist referred me to a Neuro Ophthalmologist who after hours of testing determined it to be part of this "entity" called CFS. My eyes go buggy anywhere with florescent lighting, any time I turn my head suddenly & just randomly. I can feel otherwise normal & then wham.. my eyes go weird on me. Usually it's extremely blurry, but I also get the jumping eyes - almost always when trying to read (I've had to give up reading because of the inability to concentrate & visual disturbances). I also get an "aura" every time I'm getting a migraine - which feels like looking through vaseline on my eyes, but only around the perimeter if that makes sense. Probably the weirdest thing with my eyes is when I get overly fatigued (which is anytime I don't get my daily nap on time) my pupils become tiny little pin points. My husband freaked the first time he saw that - as did my doctors, but again, they say it's just part of CFS.

    Of course anything new & unusual should always be checked out. We can't assume everything is CFS.

    Hope this helps! :)
  7. PVLady

    PVLady New Member

  8. alonebutnotlonely

    alonebutnotlonely New Member

    I have appointments with every doctor imaginable.

    I have Fibro. I'm thinking a little CFS too.

    I've had some pretty weird stuff go on with FMS but this beats all of them.

    Thank you all,
  9. Staceymarie

    Staceymarie New Member

    I have had problems where it looked like lightning was coming out of the corner of my eye...then a few minutes later, I completely lost my vision in that eye for about a minute.

    One night I was sitting on the couch reading a magazine and this same thing started again (the flashes of light), then it was like I had a blind spot right in the middle of my eye. I could see all the words on the page except the word I was trying to read.

    The other day, I was driving down the road and I felt really funny/weird. All of a sudden, it felt like my heart stopped for a split second and my vision in both eyes went completely out! I couldn't even tell if I was still on the road or on the side of the road, and as quick as it left, it came back. I felt completely weird for about 2 hours after that.

    I have never been to the doctor because I am terrified of what he/she may tell me plus I can't really afford it. I know it is not the same thing as you, but I can sure sympathize.....hope you find some answers.

  10. Back when I was on a high dose of Trileptal (anti-convulsant) and i don't remember what other meds, I just know sometimes I would metabolize the *same* dose differently, and get all whacked out, with vision probs, dizzyness, etc..

    But the one specific time, was insane, and ONE of the many 'scariest' things I've ever experienced. My hubby and I had watched an entire movie, fine, no problem, as the credits came on, my eyes went NUTS! felt like they were rolling just like a slot machine, but with jarring to, I had my husband look into them, but I couldn't even tell if I was looking at him, so he adjusted my head, and said no they were fine-----that scared me worse, because they felt like they were rolling around and around (up & down) just like the bars of a slot machine, & jarring. It was HORRIBLE. We double checked to make sure* I hadn't taken too much was gone in a few short minutes, but my god that was HORRIBLE.

    I have nystagmus, well, depending on which neuro you ask, "end gaze nystagmus" (eyes jump a little)

    Since I was a teenager, when I had to stare at a test paper, etc with a lot of typing, the words would jump all over the place, or 'roll" like they were doing the 3d or something, I have Uthoffs Phenomenon, meaning heat usually makes these symptoms worse. I've had blurred vision, etc..

    But the one time described above, was beyond anything I could have ever imagined experiencing. That was maybe 2 yrs ago, and has never happened again, thank god.

    My eyes, from the eye doctors standpoint, are for the most part healthy..I have *some* kind of 'gel' around my prelex lens replacement, that if i 'want to, " I can go see a retinal specialist to have it "sucked out" after 3 surgeries, to improve my vision, and since all the horrible white cloudy gunk has gone.....NO THANK YOU...

    Hope it doesn't happen again for you either.

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