Very Weird Pain Specialist's appointment

Discussion in 'Fibromyalgia Main Forum' started by CanBrit, Oct 5, 2008.

  1. CanBrit

    CanBrit Member

    Hi All:

    I was referred to a pain specialist by my family Dr. The first appointment, he had me waiting 3 hours but I couldn't stay any longer and had to reschedule. This time, I got the first appointment of the day and it still took an hour to seem him.

    After I'd sat down, he asked me if I had any neuropathic pain, and I said "Yes, in my arms and legs". He then said "well you don't have fibromyalgia then". I said "Really"!!!

    I think this guys off his nut. He didn't even give me a proper physical exam, just poked me a few times. He said that he thought all my trouble was with my spine and is sending me for an MRI. Never once asked about my symptoms, which are many.

    I then found out that he gives these injections which are a combination of botox and some type of anesthetic. He charges $350 a shot, and it's not covered by any health plan. I left feeling like I was being setup as some kind of retirement income fund.

    Has anybody else had any experience with pain specialists? I'm going to have the MRI done anyway as it's one more thing tested and out of the way but he sure won't be getting $350 out of me.

    All the best,


  2. jenn_c

    jenn_c New Member

    I have been blessed by having a wonderful PCP. therapist and pain doc. My first visit with pain doc I was crying my eye's out. He sat and listened to all of my symptoms and touched the tenderpoints. He then said to me " Has anyone told you, you have Fibromyalia?". He did semd me for an MRI on my back. I have arthritis. So I am now on a pretty good regimine. I still have flares, but other than that I doing pretty good. Hope you have a good day. Jenn
  3. lallerb

    lallerb New Member

    Did the MD explain what neuropathic pain is? If not, how does he know that you understand exactly what it is? It seems really weird to me that he would use a term like that to the patient. If he was really ivestigating what you experience he would ask you a series of questions to get the info. It was like he was setting you up in a way, like you were on the witness stand and gave the wrong answer. He's very dismissive about the FM. FM has so many weird components I don't know how neropathic pain and FM can be mutually exclusive.

    I would suggest you go to another specialist for a 2nd opinion and/or treatment. Call your insurance to see if you can go to a doctor other than the one you were referred to. Or tell your family MD you need another referral because you don't feel comfortable with the one you saw. There are good, caring doctors out there. Sometimes we have to try out a bunch of different MDs before we find the right ones.

    I've also had bad experiences with specialists, Eileen. One MD told me he didn't see anything wrong with me, and he didn't do any kind of exam. I read the report he sent to my PCP afterward. He lied, lied, lied about the exam. He stated he put me through all kinds of ROM tests and palpated the affected areas. He never did any of that! He did tell me that I shouldn't let a little pain get in my way, and said I could go back to my job where I lifted upwards of 50lbs regularly, and had to crawl around under desks and stuff.

    About a year later I went to an MD who said he didn't see any reason for me to be having the pain I described. Yet another year after that I saw another specialist who ordered an MRI of my entire spine. It showed a severely degenerated cervical spine with stenosis, along with disc bulges and degenerative changes in the rest of my back. I was rushed into emergency surgery on my neck after that.

    I was only recently diagnosed with FM, which sure answers a lot of questions and makes me think maybe I'm not crazy. Most of the MD's I've seen over the last 7 years have had the attitude my pain is all faked or in my head. This includes pain mgmt doctors who, strangely enough, wanted to treat the pain with expensive injections.

    I hope this helps!

  4. 3gs

    3gs New Member

    if i didnt know better id say this the same jerk i saw

    I saw one who kept you waiting for hrs then screamed at everyone.

    Got nerves in back burned no anthesia and it got in a fight with person in room. Yelled at you if it didnt work.

    Wife was supposedly a shrink. billed medicare got caught!

    I have never seen a pain specialist yet that helped and wasnt a jerk. Not my cup of tea.

    Hope you find someone better
  5. FMsaddenedspirit

    FMsaddenedspirit New Member

    ya .. I just had my fist pain Doc Apt yesterday and the last with him.. waited about 45 in the back room for him.. I was just going to look for someone when he cam over to me. lucky him,, I was ready to hit he fan... totally waist of time.. all they really do is injections. they want to try some in my neck,, but as he even said,,, do you think it would really help,,, its most likely the Fibro ... also my Fibro Doc wanted me to see him for pain meds also.. he just advised , they don't really do pain meds fro Fibro there and what I'm taking is just fine. and infact I could have my family doc up it some If I needed... so what a waist of time.... I am also going to be looking for a new Fibro Doc. as this one does not want to even talk about the fatigue issues, and just, well is really no help at all.. I get more from my family Doc than anybody
    so frustrating
  6. CanBrit

    CanBrit Member

    Regarding the neuropathic pain question, I never considered that it was a strange thing to ask. My father's a Dr., so I'm very familiar with a lot of the terminology. (I used to read his medical books as a child).

    I was very surprised that he didn't even do the tenderpoint test. Dismissed my shoulder injury that is causing extreme pain (and he's a pain specialist!!!). I'm going to take advantage of the MRI on my spine as it's just one more diagnostic tool that may show something else. I know I do have FM. Too many symptoms, tenderpoints, tests coming back negative, for it to be anything else.

    Thank God I have a good family Dr. This joker will not be injecting me with anything.

    Thanks for your post.

  7. CanBrit

    CanBrit Member

    It makes me feel better that others have experienced strange appointments with pain specialists as well. I spoke to my Dad (a retired Dr.) and he said that he sounds like someone with a "God" complex. He couldn't understand how a pain specialist could keep chronic pain sufferers waiting for 3 hours at a time.

    Well, 1 more appointment for me and then I'm outta there!

    Thanks again,


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