VestibularVertigoHELP

Discussion in 'Fibromyalgia Main Forum' started by FOYBOYFOY, Mar 21, 2007.

  1. FOYBOYFOY

    FOYBOYFOY New Member

    THANKS FOR YOUR TIME
    BEEN DX WITH SOME AUTOIMMUNE DISEASE-SEE PROFILE

    ALSO I HAVE VESTIBULAR DISORDER-GOING TO CLINIC IN LA IN A FEW WEEKS. THE LAST FEW MONTHS HAVE BEEN MURDER.

    I GET SO DIZZY AND NAUSES WHEN: I READ-COMPUTER STUFF-TAKE OFF MY GLASSES-EVEN DRIVING- BARNES AND NOBLE KILLS ME, MY EYES CANT HANDLE THAT MUCH STIMULI..

    ANYONE HAVE THIS CRAZY DEBILITATING DISORDER- HAVE YOU BEEN TO A SPECIALIST- ON ANY MEDICATION- HELP!!!

    GOD BLESS YOU AND HAVE A GREAT DAY FOY

  2. mezombie

    mezombie Member

    Yes, I have pretty much the same symptoms. Fun, huh?

    I hope the clinic will come up with a diagnosis.

    There really are tons of vestibular disorders. If you google it, you'll see what I mean.

    I'm going to get an EEG with photostimulation soon to see if I have something called "Photosensitive Epilepsy". Maybe you have that? Like you, I have the same triggers for the symptoms.

    Good luck. I understand there are treatments for this type of mess. I've lived with it for 16 years, so that would be nice, ha ha. (rolls eyes).
  3. mezombie

    mezombie Member

    I use light blue sunglasses when I'm on the computer or in stores with fluorescent lighting. Sometimes ginger helps with the nausea. Some people are helped by Antivert, a prescription drug. And, of course, avoiding the triggers helps, but that's almost impossible. I do try to limit the time I am subjected to anything that will bring on the symptoms, sometimes taking a break every 15-30 minutes. When I have to drive somewhere, I try to find alternate routes that go through neighborhoods or parkways.

    I hope this helps you a bit. Hang in there!



  4. FOYBOYFOY

    FOYBOYFOY New Member

  5. TerryS

    TerryS Member

    I understand what you're going through. My ENT just ran a bunch of tests on me and was able to diagnose me with Meniere's disease (hydrops in the inner ear). Sounds like something you might want to look into. It's been a couple of weeks since I looked it up, but I think it's diagnosed based on:

    Episodes of vertigo
    Confirmed hearing loss
    Feeling of fullness in the ears
    Ringing in the ears

    There may have been another symptom...I don't remember. The ENT ran a hearing tests along with several other tests. He was able to confirm that I have inner ear issues.

    Not only do I have episodes of vertigo, I also have dizzy/lightheaded spells which happen daily and sometimes go on for hours. I have to use a cane or walker a lot of the time...I can't keep my balance in the shower...I bump into the walls going down the hall, etc.

    The ENT put me on a diuretic. I've been on it now about two weeks. At first, I'd say it wasn't helping. I seem slightly less dizzy now (but it could be coincidental as it pretty much went away last October for a couple of weeks but then came back with a vengence!!!). So, we'll see what happens. I go back to him on 4/11.

    Good luck to you...don't give up until you get a diagnosis. I was having serious vertigo and dizziness for over a year before I found someone to run the tests and diagnose me.

    TerryS
  6. Shalala

    Shalala New Member

    I gave up reading years ago. Now driving worries me terribly. I work on a computer and I just go nuts (flourescent light galore too). I am sorry you are having a rough time. It is no fun.