Visit to neurologist

Discussion in 'Fibromyalgia Main Forum' started by jake123, Oct 16, 2005.

  1. jake123

    jake123 New Member

    I saw the neurologist on Friday afternoon. He spent an hour with me maybe because I was so discouraged and in alot of pain.
    I kvetched about my primary care doctor who won't give me anything to help the pain and said I am going to find another doctor who is more compassionate.
    I said I had tried everything humanly possibly. He suggested a pain clinic. I said please don't suggest some-where that wants me to do shots in the spine or yoga or meditation. I don't want the shots and I don't have the patience for the other.
    He asked me to try the biofeedback. I said I would try it but I was afraid I would be resistant to it - I just
    had a bad attitude this late in the game!
    Then, he said he thought my body pain was related to my migraines NOT the other way around. And, that I should try taking my Maxalt when the body pain started.
    He increased the Topomax to 200 am and 200 pm. And nortrytilene from 75 to 100 mg. We bought a new mattress and my husband said I didn't snore at all last night. It was either the meds or the mattress.
    Did anyone see the program last night on DSC about the woman with Reflex Sympathetic Dystrophy? It sounded a little familiar to what my doctor was saying.
    [This Message was Edited on 10/16/2005]
  2. jfrustrated

    jfrustrated New Member

    You have my sympathy and a special prayer tonight. I though I had problems with pain, but nothing like you. I hope you find something that helps. I notice that magnesium has been suggested. I use prescription magesium cream which helps a bit. I have also found that acupuncture helps me. Take care.
  3. orachel

    orachel New Member

    As my appt with my neurologist is on Halloween. I've been having major neurological malfuntions, and have just recently begun having migraines regularly ( I used to get about 1 per year...had 3 last week). Showing signs of mini strokes, but nothing showed on the cat scan without contrast (of course the doc told me if they were small enough, they wouldn't show up.

    I did't catch the special on DSC....

    I would also tell you to double check 100% about insurance covering biofeedback. I have the highest level Aetna PPO available (and we pay thru the nose for it!)...they cover everything, including unlimited chiropractor and aquatic therapy....however, they absolutely don't cover biofeedback (much to my dissapointment). Just wanted to warn you. Nothing worse than getting excited about a procedure and finding out you have to come up with $1000 for it.

    I'm thrilled to hear your neurologist referred you to a pain clinic. The doctor who primarily cares for my fm just isn't my ideal doc, period. But between him and one other guy, they've let me suffer pain levels between 7-9 virtually nonstop (and had bunch of 10s due to extreme sensitivity of skin) for four months. I've explained that between my pain and fatigue I don't feel that I can have any quality of life, let alone participate actively in my recovery! I have a few specialist appts in next few weeks, but I figured the neurologist or the psychiatrist (and I don't think they prescribe "pain" meds, do they?) were my best bet for pain relief. Otherwise, I've just gotta focus 100% of my time finding a new doc to treat my FM...pain cant' go on this indefinitely!

    Good luck with biofeedback and your clinic. Would you page me to the board if the increase in your migraine meds helps? And also interested in hearing your experience with the pain clinic....we're similar in that neither of our hcp's for our illness will prescribe anything strong enough, and hopefully (i'll get one too) the pain clinic referral from the specialist will help!

    Hugs,
    Rachel
  4. winsomme

    winsomme New Member

    i remember an article in People about Paula Abdul saying she has RSD since high school, and that she finally got some relief from those anti-TNF treatments used for Rheumatoid Arthritis - Humira or Enbrel. i can't remember which one.

    do a google for Paula Abdul and Enbrel. i bet you will find info.

    thanks
    bill
  5. winsomme

    winsomme New Member

    i just did a search and i guess there is some controversy from this article.

    the DR whi treats her said he uses the Enbrel to treat her arthirtic inflamation, and something called Aredia to treat her RSD.

    there is alot of info out there about her. here is one link:

    http://www.rsds.org/5/news/2005/rsdsa_response.htm
  6. jake123

    jake123 New Member

    I had forgotten about Paula Abdul having the RSD. I am on my 3rd good day. I went to my psych. today and told him what was going on, increase in meds, too much excitement in brain sending pain messages to body, etc. He said it was a novel approach. He was dead serious. He approved. He has always been a very pragmatic person.
    Orachel, have you been to a neurologist? That might be the gatekeeper to the pain management like it is for me. And thanks for the advice on the biofeedback, I will check it out.