Vitamin C and Salt Protocol

Discussion in 'Lyme Disease Archives' started by jarjar, May 25, 2006.

  1. jarjar

    jarjar New Member

    I noticed on a posting where people with CFS and FM are rating the C and Salt protocol as very helpful. I went to the site as I knew many Lyme patients are working with it.

    Sinc the ABX that I'm rotating on this week doesn't make me herx much I thought I would just try one dose for fun.

    Man does it pack a punch! Upset herxing stomach and had headaches at 400am. This was just off one dose.

    I can say it kills critters. Anyone else talked to anyone about this protocol. There web site is interesting.


  2. victoria

    victoria New Member

    I've seen a lot of posting about it at the yahoo site, CFSExperimental etc...

    stopped reading that list tho becuz there were SO many posts it was too much on a daily basis...

    Are you going to continue with it?

  3. jarjar

    jarjar New Member

    No I will stick with my LLMD protocol for the time being. I just thought I would see if there is anything to it...and there is! I am doing good with what I'm on so I'm not going to walk away from abx at the moment.

    But I would suggest for any that are looking for a new treatment to read up on it. There is a site with a lot of lyme pics on it that goes into detail.

  4. victoria

    victoria New Member

    if the abx you were taking contributed to the herx - what do you think? Perhaps it augmented the abx killing the nasty little buggers?

  5. jarjar

    jarjar New Member

    From what I was reading on the post I was getting the same reaction from die off that that they were.

    It does make sense with the added salt you are creating an environment that the critters can't stand.
    Kind of like pouring salt on a slug.

    I'm really surprised there aren't alot of people with cfs and fm on the main board not working with it since it is rated so highly as a treatment and is so affordable.

    [This Message was Edited on 05/27/2006]
  6. morningsonshine

    morningsonshine New Member

    This is the first posting i've seen about this!!

    I asked on the other board about it and didn't get much response.
    A friend emailed me the web sight, but i wanted to know if anyone was trying it.

    Jar, is your Dr. doing anything else for you besides the ABX treatment?
  7. jarjar

    jarjar New Member

    Yes my doctor has addressed alot of issues that are making me feel so much better. Some are Amino Acids,Omega 3 and 6,several things taken for low hormones. Of course the ABX. Raising glutathion levels. Will see him in a couple of weeks and probably address hypercoagulation.
    This is the best I have felt since I became ill.

  8. morningsonshine

    morningsonshine New Member

    Is he a LLMD, or some other type?
    This is a second time i've seen my LLMD, and he is a really great guy. He's a infectus disease specialist

    But he isn't all that concerned about other issues. Just getting the lyme out with ABX. He seems to have patients who have gotten better.

    I feel if i'm going to be taking ABX and stiring this stuff up, my body needs support, and i've always said my hormones are out of whack. I wonder if i just need to treat this stuff on my own.

    My LLMD said he is all for supplements, what ever seems to help me. He said, as a infectious diseasse Dr. he can't start treating hormones.

  9. jarjar

    jarjar New Member

    He is a LLMD one of the most respected in the U.S. and has people come from coast to coast to see him even Canada. He does nothing but Lyme and researches everything. Many LLMD's don't want to get involved in the other issues and he wants to treat all the defeciencies in the body so one can heal faster.

    Although he doesn't like to get involved with prescribing for heavy pain problems. He tells patients to go to a pain clinic for those problems. He does offer natural things such as prolo therapy for pain tho.
  10. morningsonshine

    morningsonshine New Member

    Where is your Dr. located, i'm in MN, but i heard alot of people go down to missouri.
  11. jarjar

    jarjar New Member

    BINGO! funny yes I go to the infamous Dr. in Springfield MO. I don't think you have to travel that far though to have your hormones tested. You can be sure you get a plenty of Omega 6 and 3 from flax seed oil or Fish oil and Evening Primrose oil.

    You can find a good blend of all the amino acids in a health food store or on the internet. I did the amino test and it was going to cost at least 75.00 a month to have a custom amino blend made for me. I bought a blend from a health store that had everything I was low in for maybe 12.00 a month.

    For my hormones I took cortef which helped tremendously. I no longer need to take that very often.

    I take the Liddell HGH spray for my low growth hormone. Which I can already can is making my fingernails grow faster and hair feels thicker. Also taking a compounded testosterone cream.
    There are a couple of other things I take but don't want to bore you to death!
  12. morningsonshine

    morningsonshine New Member

    Definitly NOT boring, i'm always interested in what someone else is doing and what seems to be helping.

    I think i would be afraid to try and start treating hormones on my own without testing first. I just don't know if a regular Endrincolisgist Dr. would be up to it, i would perfer natural, supplements to help.

    I need to find the right dr. i guess.

    I do use fresh ground flax seeds almost everyday, boy is my hair getting nicer than it's been in along time.

    And i think amino acids sound like the next thing to try?

    I guess there is a group of S. MN people who fly out together to MO. Some on lyme net mentioned it to me.

    Thank you for your help. I would never have pushed for a Igenex lymes test if it hadn't been for firecop on here. I miss her, but think she's doing better.

    She always said if only she could help one person, well she helped me.
  13. jarjar

    jarjar New Member

    God Bless her she finally left the board after various negative comments about lyme were made. And there is more to the story but better not get into it. She does pop up on lymenet sometimes and probably can be contacted.
  14. happygranny

    happygranny Member

    Maybe you tried the salt/c protocol at too high a dose?

    From what I have read, and what I tried myself, you have to start out slowly.

    It is recommended that you mix 1/4 tsp of vitamin C and 1/4 tsp sea salt in a glass of water and sip it throughout the day.

    Do that for a 4-5 days then up it to 1/3 tsp of each. Very slowly raise the amounts. I think the most I have read that anyone has taken is 2 tsp a day, and that is after months of upping the dose.

    You will herx a lot in the first months, just as you would on ABX.

    I am not using the Salt/C at this time. I am using just ABX and will go back on the salt/c in a few months time.

  15. jarjar

    jarjar New Member

    I purposely took a single high dose just to see what it would do. So I found out it does kill bacteria. That was my experiment and I'm glad I did it. If I was going to get on it long term I would follow directions.

    Did any of you do the search and look at the pics of all the critters that could be floating around in us! Pretty disgusting. Especially when you read how they try to leave thru your body to escape the salt and c thru your eyes etc.