waking up and can't open my eyes?

Discussion in 'Fibromyalgia Main Forum' started by texasrose204, Jan 7, 2009.

  1. texasrose204

    texasrose204 New Member

    This has been happening for about 1 mth. Before this it was not being able to move my legs to get out of bed. My husband would have to move them for me and help me get up. Now its my eyes too. They are so heavy i cant open them sometimes up to 30 minutes. One might open up and still have to wait for sometime for the other one. It was pretty scary at first. I have mentioned it to several dr's but nobody has a answer. Was wondering if anyone else has had this or legs, arms doing the same?
  2. spmom

    spmom New Member

    I would have your thyroid checked. I have both hypothyroid and fibro. There was a time where I would wake up but it would take an hour before I could open my eyes. It was a huge mental and physical challenge. The thyroid really affect reflex and muscle movement.
  3. texasrose204

    texasrose204 New Member

    i am going back next week to the dr. Thyroid was one the of the tests she was doing.
    Also about the dry eyes maybe i have noticed my mouth and dry are alot drier now. Will try though drops thanks.
    So tired and exhausted i havent been on here much -- appreciate the input -
  4. gapsych

    gapsych New Member

    I would definitely bring this up with your doctor.

    Is it hard to open your eyes or is it the fact that you can't. If you can't, this could be sleep paralysis, especially since you reported the same thing where you could not move your legs.

    It can happen in sleep disorders, especially Narcolepsy or it can happen to a person maybe once in a lifetime. But best to get it checked out.

    Have you had a complete sleep study?

    You might want to google sleep paralysis.

    Take care.
  5. gapsych

    gapsych New Member

    I have been reading about sleep paralysis as I think I may have had a few episodes last year.

    Something very interesting I found was that one of the most common experiences while you are "paralyzed" is the feeling that someone is walking towards your bed to harm you. This may be related to alien abduction experiences.

    Sorry to get off the subject and yes it probably was your landlord but interesting that this is one of the most common dreams.

    Also if you are dreaming that you can not open your eyes or dreaming that your legs can not move,frequent dreams that I have, this can also be a sign of sleep paralysis.

    At one time I was diagnosed with Narcolepsy, however I think it was trumped by FM/CFS.

    [This Message was Edited on 01/07/2009]
  6. texasrose204

    texasrose204 New Member

    i try to open them and they just wont. Longest time it has taken is 45minutes. After they finally open they are so heavy feeling they are hard to keep open. I still experience not being able to move my legs and arms. feels like pressure on them and i cant move them might wiggle my toes and fingers but that is all. One of my dr wants a sleep study told that to my rhuem. who said after treating me for fibro alomost 2 years was that is not a bad idea since sleep problems associated with fm. I been waiting to get the money to pay my part on sleep study since ins. doesnt pay full amount. I wake up extremely exhausted everyday.

    I go back to ut dr in dallas next week so will see what they have to tell me. Of course my ltd is telling me its all in my head. I have heard so much of that on here but my first experience with it, I dont like it. so that has been stressing me and now feeling so much worse!

    Thanks for the help and i will look up sleep paryalis (misspelled) Thanks!
  7. lil_biscuit

    lil_biscuit New Member

    Dear Texas Rose,

    I have ME/CFS and FM. For the past two years I have been experiencing a sleep disorder I now believe to be sleep paralysis. You might want to google it as there is a fair amount of info out there about it. It seems as if, like ME/CFS and FM, no two people have the exact same experience, but it sound to me like that may be what you have. Also, search on youtube.com. There are a lot of videos with people relating their experiences. I am just beginning to learn about this disorder, and am hoping to do a sleep study to get to the bottom of it.

    I hope this helps you at least to know you aren't alone!


  8. Rosiebud

    Rosiebud New Member

    I instantly thought of sleep paralysis when I read your post. I havent experience it myself though.

    I wouldn't be happy with the docs shrugging this off, ask him to be referred to a sleep specialist if he doesn't have an answer for you next time.

    So many times though they just dont have an answer for the weird symptoms we experience.

    I hope you do get an answer though as this sounds really freaky - I hallucinate on waking, I've found out by myself (doc couldnt help me) that this does happen to people, there's even a name for it though I dont remember it right now. So keep researching yourself and keep asking.


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