Waking Up Early Morning With Headache Between Eyes, Anyone

Discussion in 'Fibromyalgia Main Forum' started by greatgran, Jan 22, 2009.

  1. greatgran

    greatgran Member

    I am not sure if its sinus or the darn CFS but when I awake around 4 or 5 am with a headache between my eye brows then I know I am in for a bad day. When I get up after awhile the headache usually goes away but my body aches, chills , anxiety etc. stay with me. Usually this is an off and on thing but lately its been happening for about a month everyday.

    I have a doctor's appointment Mon. I am seeing a different one so hoping he can tell me something.

    I have had this off and on since CFS but when I mention it to the doc she would say I think you just have a sinus infection and so did the ENT but if its a sinus infection why does it happen one day and not the next.

    Sorry, I am venting to try to keep from crying.

    God Bless,
  2. loto

    loto Member

    I have not been checked or diagnosed for/with CFS, but do have Fibromyalgia. At least once a month I get a terrible headache/migraine that I fight with for at least 2 days in a row. Well, this morning at 4:00 it woke me up. I take vicodin daily for other pain, and so far this morning have had 4 500 mg tablets (not all at once!). So far it hasn't even touched the headache. The pain is behind my eyes, and goes down to my jaw. I hate when I get this way, and also feel like crying because the only thing that makes it go away is time. So far, it's not bad enough to put me in bed. I actually made myself come to work because I have so much to do here, and people depend on my greatly. Don't know if I'll be able to accomplish all my work, if the pain gets any worse I'll definitely have to go home and get in a quiet dark room. It's so aggravating, also, the docs don't really know what you're going through! Like your doc telling you you have a sinus infection. FRUSTRATION, I think right now is my biggest problem!!! Not getting any concrete answers as to what ails us and why. To the specialists out there, KEEP RESEARCHING!!! Get us the answers we need to understand our conditions!!
    GreatGran, you keep venting, and so will I. I'm sorry for your pain.
  3. Nanie46

    Nanie46 Moderator


    It's hard to say, but I know you are going to look into lyme and I read that lyme symptoms can exacerbate in 4 week cycles.

    Headaches are definitely on the symptom list.

    [This Message was Edited on 01/23/2009]
  4. greatgran

    greatgran Member

    Thank you, I hope you get to feeling better. I use to have migranines a lot but since menapause haven't been bothered with them. So maybe that is something to look foward to , haha..

    God BLess,
  5. hensue

    hensue New Member

    I was having them every day when i got up also my face and eyes were swollen. found out it was hbp. i still have them out of the blue throbbing headaches no swelling. Sometimes waking up with them. No rhyme or reason, weather has a lot to do with mine sometime. I do think it is also hormonal.
    I hate them they are horrible,
    Do make sure you are ok with your blood pressure, i could have died!
    Get better soon
  6. MsE

    MsE New Member

    If it isn't a sinus thing, for me it is usually blood pressure climbing. Doesn't happen too often, but sometimes.
    Hey, Greatgran, I finally get to meet my little great-grandson this coming Sunday! Hooray!
  7. greatgran

    greatgran Member

    Thanks, hensue and MsE its not hpb as mine tends to run low. Sometimes I think it is a sinus thing that I have never taken enough antibiotics to clear it up. I am so afraid of meds (no wonder I am in the shape I am in) that I never finish my dose. I don't understand my fear of meds. You would think as miseralbe as I feel I would try anything.

    Great, MsE , so happy to hear about your great grandson, let me know how the visit goes . Here's sending you a feeling good day.

    God Bless,
  8. SusanEU

    SusanEU New Member

    That has been happening to me over the last few months. It is so excrutiating, isn't it? like you said it's right between the eyes. I'm sure it's sinus, cause my sinuses trouble me most this time of year.

    I keep naproxen (aleve in US, I think), by the bed with a few crackers and some water, and take it before I get up and it helps a lot. Also, I have put a humidifier in the bedroom, which has also helped.

    Good luck, my dear

  9. SnooZQ

    SnooZQ New Member

    Hi GG,

    In answer to your question -- if it's sinus infection, why headache one day/not the other? Depending on your sleep position, depending on your stress level, depending on your diet (esp. sugar consumption) -- it's possible for a chronic infection to flare/fade from awareness from day to day

    Have you had a CT scan to rule out sinus infection? I hate to rec. that, but it is one very common test that is done & you do seem to be at the point of wanting to figure it out, one way or the other.

    On another track, have you ever had any question about your hormonal function? Has your pituitary been evaluated?

    Best wishes.
  10. greatgran

    greatgran Member

    Thanks for your input. I have not had a CT of my sinuses just an X-ray but did have a CT of the head. As far as my pituitary being evaluated I did see an ENDOG. and he did a lot of hormone test, etc. Even sent me for a CT of my Adrenal Glands all normal.

    When I have this darn mess in my head seems my anxiety is so much worse as my aches and pains. I do hope the doc I am seeing on Mon. will have some answers.

    Thanks so much for your reply.
  11. TigerLilea

    TigerLilea Active Member

    I get sinus headaches, on and off, all the time. It turns out that it isn't an infection, but nerve damage that becomes painful if there is the slightest bit of swelling in my sinuses. After seeing six ENT's, one of which was an ENT specialist, the cause has been put down to nerve damage which resulted from dental work that was done.

    Have you tried using a neti pot to clean your sinuses each day? A lot of people swear by them and claim that they clear up sinus infections and allergies. If you can't find one at your local pharmacy, try somewhere like e-Bay. I bought one really inexpensively that way and have found it to be useful for my swollen sinuses.

  12. TigerLilea

    TigerLilea Active Member

    It is possible that your headaches are hormone related. I have a friend that gets migraines every month around the time of her period. Some doctors aren't that well educated when it comes to women and their hormones.
  13. SnooZQ

    SnooZQ New Member

    May I ask, did your endo send you for the adrenal CT after the hormone tests? Or was everything ordered at once?

    Just a thought -- have you obtained copies of your test results? By law, in the USA, a patient owns his/her test results. All you have to do is to phone your doc's office & ask for paper copies of the the radiology results (you don't need the pictures, just the verbal eval report). Also, you can get copies of lab results, with ref ranges.

    Your PCP's office may have the test results in your file. It would be simplest to get everything from one place. But if they balk or insist on charging you more than a dollar a page, you might want to go to the individual specialist's offices.

    Many patients who have been told everything is normal have been surprised when they read the findings for themselves. Not in all cases, of course, but it can happen. If you fear you are lacking in medical background to understand the reports, think about whether there is a friend or family member who is a nurse, or who has a med background. Someone who is trustworthy.

    In our family we obtain printouts on all lab and other medical tests on a regular basis.

    Best wishes.
  14. loto

    loto Member

    thanks for the reply, my period just got over. guess i'll have to keep track of the dates i get them so i can compare it to my cycle. it's now 2:45, and my head isn't throbbing. I can still feel it lingering, like usual, so it will probably rear its ugly head again later and in the morning. I've taken enough vicodin today to probably kill someone who isn't as used to it as I am!
  15. greatgran

    greatgran Member

    Yes, I do the nasal irrigation which helps some but seems to make my ears feel full of pressure and it doesn't seem to help much at all.

    I feel if it is a sinus infection I messed up by not taking all my antibiotic the first go round and it keeps coming back and has never cleared up.

    I juist used a decongestant nasal spray and that seemed to help some. I am do not have a headache just a weird head and ear feeling and my ears are ringing so loud, as they do 24/7.

    Thanks for your input,
  16. greatgran

    greatgran Member

    The endo sent me for a CT after the hormone test? There was an elevation in my castacolamines (spelling) and he thought it might me a tumor on my adrenal gland but when that was ok he said I was hypoglycemic and a very bad case of Anxiety. Then sent me to a therapist which I didn't find helpful .

    My doc thinks all this is anxiety/depression related. That sinus infection won't cause the anxiety, aches, chills etc.

    Thats why my husband insist on me seeing another doctor.

    God Bless,
  17. Heyygirl

    Heyygirl New Member

    Over the years, I have dealt with different kinds of headaches...severe migraines for years...all but died out after my thyroid and uterus/ovaries were removed. Weird. But the 4am headaches only seem to respond to titrating my cortisol intake. 10 years ago, I started cortisol for low adrenals...it TOTALLY removed the 4am headaches! When I lower doses, or up my thyroid doses, the nighttime headaches seem to be an indicator that I need to up the cortisol...sometimes only as much as 2mcgs will improve the situation.

    I hope you find a solution. Not fun going to bed worrying if a headache will hit in the night.

  18. Janalynn

    Janalynn New Member

    I was getting horrible headaches - tension, then hormonal as well. I hated it when I'd wake up with them. I'd sometimes get them so bad, like behind on eye, I'd have to put pressure on my eye and hold it shut.
    Dr put me on Topamax - not for headaches, but for Fibro and sleep issues. Same family as Lyrica and Neurontin without the side effects. It doesn't really help me with the Fibro pain, but it has helped tremendously with the headaches. It is often used for migraine patients.