want off pain med...help needed?

Discussion in 'Fibromyalgia Main Forum' started by judywhit, Jul 2, 2003.

  1. judywhit

    judywhit New Member

    I have been on 20-40mg of oxycontin a day depending on the pain. Most days I just take 20mg. I am finding myself taking this med now even when I do not have pain.
    Have been on pain meds for 2 yrs.
    I want to get off of this stuff and see how I manage. I also think this stuff kind of depresses me. how should I go about this?
    Doc will give 5mg of oxycodone also. Would getting the 5mg be the best way and go off the contin all together?
    thanks for the help.
    Judy
  2. suz41

    suz41 New Member

    Judy:

    Sound like your having some dependecy issues with the oxy right now. If you are taking the Oxy even whennot in pain there is something else going on. Make an appointment to speak with your physician ASAP. Many people who start on pain relivers for pain end up without trying become dependent or even addicted. You don't want to go there!! If your doctor is comfortable try by decreasing your meds slowly. However if you start to Crave and most people who crave know exactly what I'm talking about than I would suggest you get a referral to an aaddictions or pain specialist that can deal with dependency issues. Get off this merry go round soon. I have seen too many people enter drug rehab clinics due to pain medications. You need professional help to stop safely. Also the reason you fel depressed is because Oxy is is in the opioid family and causes CNS depression and true depression cannot be seen when one is on pain meds and "feeling depressed" hard to know if its the meds or something else. Please get help soon. Let us know how you are doing. I'm not trying to scare you I just don't want anything worse to come your way.
    You have enough to deal with already.

    Suzanne
  3. judywhit

    judywhit New Member

    to chase the pain. Meaning that I should take it before I need it. Thus being the case I would take it. I do much better on just the plain old codone. No deppression and 10mgs will kick the pain. The contin is what I hate! I do not like taking the 20mg long acting when 10mg of the codone will do. I also do not need this everyday.
    I do not have an addiction problem because I never get a buzz off of this stuff. Just pain relief.
    I will take your advise Madwolf and ease off of the stuff.
    thanks guys,
    Judy
  4. klutzo

    klutzo New Member

    I found out the hard way not to trust doctors about drugs. Mine told me I could just quit taking Darvocet cold turkey after taking one 100 mg. pill every night for 12 years. He said the dose was so low, I would not have a problem.
    He was wrong. I have never been so ill in my life. I threw up 18 times, and it was blood and bits of pink tissue at the end, and I lost count of the number of times I had bloody diarreha after the 41st time! I was shaking and rocking and sweating and having stomach convulsions hard enough that it felt like my stomach turned inside out and came up in my throat. My blood pressure was astronomical. It went on for 11 hrs. straight. Then I spent 4 days in bed unable to eat solid food, and it was 9 days before I was eating normally again.
    After it was all over I looked in the Merck manual, and found out I had a 30% chance of dying because of quitting cold turkey.
    I called my pharmacist and she said the length of time on the drug and always taking it at the same time of day are factors too, not just the amount you take, and she would have placed the chance of going through withdrawl at 50% with my low dosage. She says the deciding factor is usually family history. If your first degree relatives have any dependency issues, ie. alcohol, food, sex, drugs, gambling ,etc. you should never go off a potentially addictive med cold turkey. If I had known that before, I would have slowly cut the pill into pieces and taken a few weeks to go off of it, since both of my parents were alcoholics.
    My point is that how slowly you need to take the dose down is dependent upon a lot of things, including if you inherited genes that make you more likely to be severely dependent on substances.
    Take it slow and good luck to you.
    Klutzo
  5. judywhit

    judywhit New Member

    that i need to take it slow Klutzo. I felt your pain when you were describing your withdrawl. I too had a similar experience going off of elavil for heavens sake. Doc said I could just quit. After 3 days of not sleeping and throwing up I figured out it was the elavil withdrawl. I am very nervous about going off this stuff and to tell you the truth this is what is promting me to want to get off. My fear! does this make sense?
    I will let you all know if I go through with it. I do know that I have a wonderful doctor that does not want his patients to be in pain. but, I worry about what happens when he is gone??? He is about to retire.
    Judy
  6. Lynda B.

    Lynda B. New Member

    I take pain meds too every day so I understand what you are asking. However, it seems to me that your doctor should be the one to advise you on that.

    Lynda B.
  7. judywhit

    judywhit New Member

    Linda, but this is the same doctor that told me to go cold turkey off the elavil. I am my own health advocate and I come to the message board and internet for info,support and experience from others. If I would have come here and asked about getting off the elavil I could have saved myself from a long weekend of hell.
    Judy
  8. Mikie

    Mikie Moderator

    Suzanne, "many" people do not become addicted to their pain meds. Less than one percent of people with chronic pain become psychologically addicted to their pain meds. Developing a tolerance to the meds and becoming physically dependent on them is not addiction.

    Madwolf, my new specialist agrees with you and said that constant pain signals in the brain will cause depression and that it is important to address the pain.

    Love, Mikie
  9. klutzo

    klutzo New Member

    I agree that asking the same doc who gave you a bum steer before is useless at best and dangerous at worst. Why not ask your pharmacist? They are the experts on drugs and are usually quite willing to look things up and talk to you about it, esp. when you preface your question as I do, by telling them that you are asking them since they know so much more than doctors do about drugs. Flattery will get you somewhere!
    Klutzo
  10. Lynda B.

    Lynda B. New Member

    I should have said, when it comes to strong pain meds I feel uncomfortable saying what is best. I still think a doctor should be the one to help but certainly not that one you referred to. And that you deserve better and I hope you find a wiser doctor that can advise you and help. This message board is great but no substitute for a good doctor.

    Lynda B.
  11. kadywill

    kadywill New Member

    IMHO, I must add the following. I am no doctor, nor a PA nor a FNP. I AM a nurse, but this is not really my educated opinion, but an opinion based on MY personal experience with this type of medication. I do NOT want to debate with anyone about MY personal opinion, either, as I am just not up to it today. But, I don't want you to be frightened of this and I sure don't want you to be in pain. If you do better on a PRN narcotic for occasional pain, stop reading this now and do as you feel best, by all means. But, if you are interested in my opinion as to the reason you MAY be feeling no pain on some days while taking the Oxycontin, please read on.
    It makes sense to me that you will have days when you have no"incidental" or "breakthrough" pain. That is the goal when you are "routinely" taking a med such as as Oxycontin. Oxycontin is a sustained release med that is given at certain times in an attempt to keep the level of med "consistent" in your system. That's why the doctors normally prescribe a PRN med such as Percocet or Oxy IR that acts quickly for use when you have "additional" pain while taking the Oxycontin "routinely". Until I stopped the Ultram, per Doctor's orders, I had days during which my pain level was a 0-1, as long as I didn't do things known to trigger my pain. I, like you, am not on a large dose of Oxy, but this is going to change, in my case, since I'm back to work and not taking Ultram any longer.
    I am afraid you may feel a return of your pain if/when you D/C the Oxy...I KNOW I would. I don't know the reason for your pain or the degree of pain you were experiencing prior to starting the Oxy...I can only assume it was severe, since this is a powerful drug. I know that, in my case, taking narcotics PRN, such as Vicodin or Tylenol #3 or Percocet, did NOTHING to keep me relatively pain-free, but the Oxy has, as I said, often given me good days, since I've taken it routinely twice daily since November of 2002. It is imperative that I KEEP the level of pain med consistent or I' will hurt like the blazes and it is very hard to get relief when I let the pain accelerate to that point. I've taken six Oxy IR SO FAR today and I'm at a level 9 right now. This is NOT good pain management and I will have to discuss this with my doctor on Monday.
    I hope you make the right choice for you. I hope I haven't overstepped my bounds and that you take my advice as it is intended, out of friendship and concern.
    Love,
    Kady
    [This Message was Edited on 07/03/2003]
  12. Lynda B.

    Lynda B. New Member

    If I understood you correctly, those of us who take meds like hydrocone on a daily basis or every other day will always have this breakthru pain. What you said, as I and many others have researched understand, is that if one needs to take stronger meds (e.g. oxycontin-extended release and such) this is better and helps level out the highs and lows of pain. It "should" keep pain at a more constant level. Hopefully, at a lower, more managable level. The oxycodone (immediate relief) is often used for breakthru pain with oxycontin and not necessarily by itself. If used by itself it can lead to higher levels of pain like you are in. Sounds like you've done research that does not always come with you job. I am impressed by your wording and ability and creativeness in stepping outside the box.

    Lynda B.
  13. horsegal

    horsegal New Member

    I think, if I remember right, you have been wrestling with this for quite a while....at least the last month. The way I understand it is you would rather take plain codeine than oxy. Do you really want no pain meds, or to just change them so you have more flexibility in the amount you take? That's what I hear you saying. I agree about chasing pain...if I just take a regular schedule, I am much better than if I wait to take them "when I need it". Then I suffer and end up taking more than I would have if taken on some sort of schedule or before the pain begins. I'm thinkin' of you!! Hope you get satisfaction....I Madwolf had great advice

    Good luck,
    Horsegal
  14. dolsgirl

    dolsgirl New Member

    Speak w/your doc about the lower dose & number of times to do it to wean down to a dose that actually suits your needs. It's very important to wean off to the proper dosing for you. Oxycontin cannot be crushed or chewed because it is a time release medication. You may choose to look it up at WebMD, I don't have the exact address, just put that in a search engine & you'll find their home page. There's alot of information there.

    Judy, it's great that you realize that you know that you don't need that particular dose. But, I would include your doctor in with the weaning process, so you can find exactly what is the dosing you need. Good luck. I'll be thinking of you. You will find the correct dose. Sometimes it's frustrating trying to find the correct dose so try to be patient. It happens with many different types of medications not just pain meds. The doctors work until they find the proper dose for a particular person. Hope this helps. dolsgirl